how does fibro effect you guys the most

I know fibro effects people in different ways i was wondering how does it effect you guys the worst? For me it's my legs, my whole back, once in a while if i do to much my arms.

When my legs and arms really hurt i feel like i just got done working out for eight hours and was in a real bad car wreck. My back when it flares up real bad i feel like someone has taken a pieace of wood and just hit me real hard in the back. My back often feels like it got a bad sun burn all over it.

My other problems are: real bad headaches. I can't even look at the light anymore without my head hurting all the time. I feel like i got the flu bug 24/7. I get real bad deppression and anxitny. When it hits me the worse i have real bad anger out burst that i sometimes can't control. I get real bad fog moments. In fact it's getting so bad i am often confussed and can't even talk right sometimes. I have to take my time talk and when i am talking if others talk as well i get confussed more and that also causes me to have outburst. I also sleep all the time. Sometimes all i can do is sleep. Just a few days ago i slept for 20 hours.

How does it effect you guys?

i know that feeling. if i don't sleep for a long amount of time as well the next day i hurt all over real bad

How is fibro from me? Well I'm 26 I'm a male, not 100% sure that fibro is my problem even though that's what I've been told and I have literally every symptom.

Its hell really, I can't get a single doctor to take me seriously and I get brushed off by them quickly because of my age and I'm a chronic pain patient. I'm about to quit my job and give up on life.

Ljm2014 said...
I think fibro can be very different day to day..i personally do not have the flu type symptoms...

But with barometric changes feel pressure, stress, and pain.

Recently had the flu, so less activity from that equals more pain.

It upset all of my normal routines, so the fibro is flared up, but i am working on it. Working on getting back to my normal days, and more active again. The bitter cold is not inspiring : )

I am trying to work on mine. I don't drive and since i was a teenager i used to walk everywhere. I lived right behind a mall as a teenager and so i would be at the mall every night walking around. I used to be able to do that real well. Last night i finally expect that i can't do as much things as i used to. I walked up to my old job which is just a ten minute walk and when i got there i had to ride in a wheelchair cause i was hurting so bad and when i got home i had to take a really hot bath. At first i though it was cause of the cold weather but now i also see it's cause of the fibro it self. I am finally learning that this is just how it is now. I need to learn to how to do things differently now

I don't have the flare ups like some people do, I deal with this pain on a daily basis. I do a lot of self talk and try to keep my mind busy so I can concentrate on something other than the pain. I do a lot of sewing and craft things and garden in the spring/summer. I try to move around often as if I sit still for too long, I hurt more. I have IBS, multiple chemical sensitivity disorder, fibro fog, can never remember things (my family is constantly telling me that they have already told me things over and over again) and then I get to the point where I don't want to ask questions. Others tell me things and I can't remember what they told me afterwards so have to write everything down. That to me is the most depressing. Dr says I have no signs of Alzheimers, it is the fibro along with some spots on my brain (can't remember what they are, but was told at least one of them is causing some memory loss). I am sensitive to touch, feels like I have a sunburn constantly. I get headaches/migraines often. Depression, anxiety and seasonal affective disorder. I take meds for it all and I know it helps some, but am still in a lot of pain daily. When first diagnosed I had a really hard time and didn't think I would make it another day. I take it one day at a time now and have learned to accept the fact that this is how it is and there are others that are worse off than I am. Really focusing on other things helps and not feeling sorry for yourself. Try to be stress free, which is very difficult for me as I worry about everything. I don't go anywhere except to dr appts. due to the smells that cause me to get sick. I ended up in the hospital for 4 days, tried to go back to work 3 times and dr. said no more and now am on disability. That was another stresser! We have to learn how to cope with our symptoms and try to alleviate as much of them as possible and figure out ways to deal with what we can't do anything about. To nooneknows, don't give up, that isn't the answer!! We who have fibro know!!

i am sure you can Mishell. I just started getting that sunburn feeling over my body. I used to feel it in my back only but now i feel it in my arms and legs as well. I was telling my wife we are going to have to start carrying extra of my meds with us when we go places. Last night we we're at church when i was having a hard time even at church

Acheybody said...
I'm like Sherrine, my back has given me the most trouble. Then there's my left neck/shoulder area, actually the first thing to get tight 30 years ago and stay tight.

Fibro affects me so much in my muscles, not letting me lift much of anything at all without paying for it with increased pain everywhere. Then, I have a lot of pain from Sciatic nerve damage, and Fibro accentuates that ;(

I also get an extremely weak feeling in my arms if I try to do much with them. I really hate that.

Debbie

I've been there before. My back and legs are the worst part for me. My back often feels like it has a real bad sunburn all over it and lately my legs and arms have been feeling that same way. I was just cleaning up our apartment the other day and i felt it the next day real bad.

My fibro effect me the most through constant tension in my neck, stabbing pains through-out my body, achiness in arms or legs, and the neuro symptoms...occassional tingling/numbness from the knees down. I could have any of these symptoms on any given day. I never know what I'm going to deal with when I start my day!

Ashaline - I definitely get that sudden extreme exhaustion. I use to nod off at work and then catch myself! I would go to my car and lay down for 15 min. It was the worst.
I have tried to explain that feeling to people and they don't get it. There's nothing you can do to stop it and u don't know when it will hit. It can actually make me sick to my stomach

Luckily it has never happened when driving.

My fibro effects my legs as far as them aching deeply, the most. I get lots of headaches and get tired a lot. I try and balance my day but am still trying to perfect that. I did have to quit my 49 hour a week Jon and now work 30. I work in a school system so we have lots of vacation days.

I just got over the flu. Bad part was I had it for about a week but thought it was a bad flare until I got the fever. So I went to work for 4 days just trying to push through....

I don't have the sunburned feeling
But do have just about every other symptom..

Don't know which condition or injury causes which symptom though.. is that neck pain fibro or disc issue or spinal stuff?? Sigh

Ashaline's description of spells of sudden extreme exhaustion is perfect !

Find that I do not know I have a virus for days - believe it is a flare .. hits me really hard & hangs around longer than other members of family.. love but dread visit from school-age kids 'cause I seem like a virus magnet!!

Sucks big time..

Someone mentioned problems lifting things, when i grocery shop...

Lifting the bags and carrying them in the house, feel fine when i am doing it...but later the arms ache a good bit..

My muscles definitely complain, after many jobs.

It helps to stretch and i do floor exercises most days .. Exercises that help with flexibility seem to help a good bit.