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Posted 2/6/2015 5:46 PM (GMT 0)
hey everyone..
how long have peoples flares lasted? i'm into my 4th month of low energy, exhaustion, brain fog, no strength (i find it hard and at times impossible to fold clothes, do dishes from the burning and numbness in my arms) i can't drive for long periods i just fall asleep, my feet get a popping sensation when i walk or stand for longer than 30 mins. I just can't seem to come out of this and to top it off i'm on my 4th week of actively passing a kidney stone :( its just adding to my decreased health.
i'm new to these illnesses and just looking for others experiences.
thanks so much! H
Posted 2/6/2015 7:10 PM (GMT 0)
Hi Hallie, I'm sorry you're having to go through this! I feel like Ive been going through a flare for the past year! It has it's ups and downs and some days are better than others. Everyone is different and sometimes it may only be a few days or a few months. You just have to find what works best for you. I'm sure the stress on your body from the kidney stone isn't helping. Good luck and I hope you start to feel better soon.

Are you on any "regular" meds for your fibro or lupus?
Posted 2/6/2015 7:56 PM (GMT 0)
I usually have more intense pain all winter long so that's about five months long. Then when the warmer weather hits I can back off some of the pain medications and still have control of my pain.

Sherrine
Posted 2/6/2015 9:12 PM (GMT 0)
It does take some time, IMO, to feel the difference between everyday pain and fatigue, and a genuine flare.

Boy, I sound real upbeat.

I have trouble folding clothes most of the time. Ditto with the dishes--I have to stop and start and move around.

But when I am flaring, I feel as if I cannot even do those things. And, most of the time, why even try? Eventually, I will feel better, and stuff will get done. I have learned from experience to keep pushing will result in a more severe and longer term flare.
Posted 2/6/2015 11:02 PM (GMT 0)
thanks for all of your advice. i am on plaquinel for my lupus, hoping my doc will start to treat my fibro soon to. its hard to find information out there that says they can last this long so I'm really grateful that you all opened up! makes it easier for me to accept! xoxoxo
Posted 2/6/2015 11:18 PM (GMT 0)
Our weather in the winter, definitely flares us up, are you in a cold climate?

Lj
Posted 2/7/2015 12:05 AM (GMT 0)
i'm in ontario, Canada. so ya its cold! this would be the first winter that has truly affected me :( not a fan if thats triggering these flares.
Posted 2/7/2015 2:53 AM (GMT 0)
Hi Hailie,

Some people don't experience "flares" and have a consistent feeling of pain and fatigue. At least that's my perspective, otherwise I've been in a "flare" for years. Lyrica and Tramadol, however, help significantly.
Posted 2/7/2015 6:05 AM (GMT 0)
Well for me barometric changes , for which , its been a tough winter, really cause more flares...a lot of folks with fibro seem to feel the weather more intensely..

I also feel better when i can get my vit d naturally : )
Posted 2/7/2015 5:10 PM (GMT 0)
Mine seem to hit me whenever the weather really changes. I have had real bad problems when it's winter and summer. I also hurt really bad when i over do myself. I can do some stuff but after a while i begin to hurt really bad and feel sick and then i end up sleeping the whole next day. I am in the process of moving next month so i don't even know how my body will handle all of that.
Posted 2/7/2015 8:36 PM (GMT 0)
One thing at a time when moving. Plan out the week before, and the week after. I pack for a month beforehand. I also INSIST on hiring loaders and unloaders.

I only feel the weather when it is extreme, though I do have a harder time in wet/cold climates. It's interesting--this winter so far has been relatively dry here. Even leaving at 6:30 AM, there is not a lot of frost on the car. It may be 20 degrees, but there is no water in the air to make frost. The winters I lived in the snow belt were very hard.

I just got home from doing laundry, for we still use a laundramat. BF carries the baskets in/out of the house and the laundramat. But I still ache from folding and shaking and pushing and pulling. I was going to go to the gym to try to work out some kinks, for the gym is right next door, but I was too achy.
Posted 2/9/2015 4:41 AM (GMT 0)
I've been sick 9 out of the last 11 weeks...I'm ready for it to be done!
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