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Fibromyalgia
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Posted 3/11/2015 4:02 AM (GMT 0)
Just saw my rheumy today. I swear she gets a kickback whenever someone has a sleep study done, does swim therapy at the Y Or sends one to a therapist. No matter what is going on she sounds like a stuck. My lack of any sleep is caused by sleep apnea so she thinks. Even after tells ng her it's been quite late when I actually get to sleep she thinks it's apnea. I don't sleep well when I finally do drop Off because of sinus issues. Have a CT next week for that.

I would really like to switch rheumy but every one is in that office. If I switch the wait is about 3 months because I would be a new patient. I see my PA
Friday I'll see what ideas she may have.
Posted 3/12/2015 7:25 PM (GMT 0)
Hi Ia lady:

It won't hurt to have a sleep study done. Many people with Fibromyalgia have sleep problems. I have been to a sleep lab. I slept for about 3 hours. I could not sleep with all the wires and had an A/C blowing in my head. When I finally gave up trying to sleep I told the staff and they said it was almost time to get up.

The Doctor told me I do stop breathing some but did not yet need a machine. He said that sleeping pills would make my situation worse. Another Doctor suggested I try melatonin and 5 HTP. I stopped these both as I was put on Nortriptyline again, it gives me a deeper sleep. I had no problems with melatonin and no withdrawal coming off. I do get a better sleep with Nortriptyline. I actually thought 5 HTP was helping some with pain but nothing has stopped my pain totally.

I, too, have sinus issues. I hate when I feel mucous congestion when I am trying to go to sleep. I had a CT scan on my sinuses also. I have a slightly deviated septum which the ENT did not share. He could find no reason for me washing out green mucous with blood attached. I use Neil Med or an allergy wash from the pharmacy.

Good luck to you.

Loring

Osteoarthritis in Multiple Joints, Fibromyalgia, Neuralgia, Chronic Daily Headaches, I.B., Hard of Hearing...
Posted 3/12/2015 9:28 PM (GMT 0)
Thanks. Take amitriptilyne at night and just upped my cymbalta. Hopefully with the increases cymbalta that will help too. Sorry your still having sinus issues .
Posted 3/13/2015 2:04 PM (GMT 0)
I had a lot of trouble getting to sleep and staying asleep due to pain. I knew it was due to pain so I never raised the subject of lack of sleep. But I found putting myself on a sleep schedule and staying away from caffeine worked better for me...but I still was waking up about five times a night due to pain.

I started taking a muscle relaxer for fibro and As pain and it made a significant difference of me. I only take half of what was prescribed so I don't have side effects from it. I take Robaxin. It's been around for years. Because I didn't have intense pain, I was able to sleep so much better. I now usually wake up once a night for a bathroom run. Having more sleep has helped my fibro, too.

I hope you have a better appointment with your rheumy this time.

Sherrine
Posted 3/17/2015 4:29 AM (GMT 0)
I put off my sleep study for years. Then I finally did one. I am so thankful for my cpap machine now. My oxygen was only 80 percent and I stop 17 times and hr. so it really does make a difference if you have sleep apnea. Do you snore? If you do a sleep study and your senstive to cold then bring a heat wrap with you. The rooms were so freezing cold to me I first couldn't sleep. The next sleep study I use those heat wraps and was able to relax. I had to sleep studies because the second time they titrate you cpap for you if you need one. They are costly, but insurance covered most of it.
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