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Hi. . I'm Marie and new here.

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Fibromyalgia
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Posted 3/25/2015 10:40 PM (GMT 0)
Hi to all...I'm new here, and I look forward to getting to know you and finding and giving support. I've had fibro for 14 years. At times, I think I'm getting better, and at times, I think I'm getting worse. Do any of you struggle with daily activities? I am having difficulty finding the energy or motivation just to do small things. I've been on disability for 12 years. Not very happy with myself at present, as I am confined to my house most of the time.

Marie I gave you a subject so more members can respond. *Michael

Post Edited By Moderator (Michael1968) : 3/26/2015 5:54:48 AM (GMT-6)

Posted 3/26/2015 3:13 AM (GMT 0)
Hi Marie

Welcome , if you put new here in the subject line..more will come to say hi...

I have a genetic origin with fibro. My mom and older sister also have it..

It is tough, but with trial and error , we can usually get help .

For energy help i like d ribose..it was recommended by an alternative dr. And i use it daily..having more energy is a motivator in itself.. Maybe google d ribose and fibro.. Read up on it a bit .

We actually feel better if we get up and move in moderation. If you are not active , with fibro ,they say change it in very small segments and work up.

Fibro 101 has some great info at the top of the page, and ask questions , many nice people will answer .

Lj
Posted 3/26/2015 12:14 PM (GMT 0)
Hi Marie
welcome. Do have a look at fibro 101. It's the first thread on the forum with lots of great info. We all understand how you're feeling. I have had this condition for 15 years. It can be tough at times.

There are so many variables that make fibro feel worse. I've had a great week Then. .... The rain moved in and the temp dropped. Achey everywhere. The show must go on as they say.

I have some questions for you if you don't mind sharing. Do you have other conditions besides fibro? Are you able to do some walking? You must keep moving with fibro no matter how bad you hurt, otherwise you become stiff achey sore weak and your muscles will atrophy.

I sense maybe there is a little depression going on as well. Have you talked to a Dr. about that? You should not feel down on yourself ever. Remember fibro waxes and wanes. Good days and bad and sometimes absolutely horrible.

It is possible to feel better though. I have a completely amazing life despite this condition. I have learned how to manage it so that I can continue to be active. Please tell us more about yourself because we are all here to help and support.

Take care. ..... Michael
Posted 3/26/2015 3:43 PM (GMT 0)
I do notice a fluctuation in symptoms, but I am still going through some diagnostic testing, so I don't always know which symptoms are fibro, and which are other conditions. Like Michael said, it's helpful to know if you have other things going on besides the fibro.
Posted 3/26/2015 4:36 PM (GMT 0)
Hi, Marie, and welcome! You have gotten good advice, as usual. We have wonderful members who love to help one another and, as a bonus, we do care about each other, too. I think you will like it here.

Yes, fibro waxes and wanes. But, if you are gettng worse and worse, do get checked out again. I developed another problem but I was blaming the excessive pain on fibro. Fibro isn't considered a progressive illness so I decided to get checked out. Ankylosing spondylitis was found and I was put on the proper medication and now I'm feeling so much better.

I use ibuprofen with food, Tylenol, magnesium malate, vitamin D3, and a muscle relaxer called Robaxin. I walk daily, do daily stretching exercises, and pace myself when doing things. All of the above have helped me live a full and enjoyable life in spite of this illness. I've had fibro for 28 years.

As others have said, please read Fibro 101...the first thread on the forum. It is chock full of good info about this illness. Even though I've had fibro for years I am still learning new things. There are links about the supplements I mentioned above and how they work in the body. Many have gotten help with these and I'm one of them. All of Fibro 101 is good so do read it.

Set small, achievable goal for yourself each day. This really helps and you feel like you are accomplishing something. Also, I find that if I'm busy, the pain fades somewhat in the background because I'm not thinking about it! Lots of time I don't want to take my walk but I make myself do it and feel better and have more energy because of the gentle exercise it provides. I swim in the summer, too. Activity will help motivate you and give you a better frame of mind.

Also, in Fibro 101 there is a link about how to maintain a positive attitude when you suffer from chronic pain. It really is good. I read it when I'm having one of those days.

I'm lookikng forward to getting to know you better. Don't hesitate to ask questions because we are here to help you. Hope to hear more from you soon.

Sherrine
Posted 3/26/2015 5:30 PM (GMT 0)
Hi Marie:

Welcome!

I have been on disability for 11 years but health problems began 13 years ago.

My Husband still works so I am home alone during the weekdays. I haven't stopped everything in the house. I do my share but I do need a lot of rest breaks in between. Yes, you have to keep moving. It is hard when you have setbacks, when pain is flaring so badly. Many things can cause pain to flare up. It could be you did way too much the day before, bad weather (for me windy days), sickness or the usual stressful events that very few people can avoid totally.

I also have Osteoarthritis in many joints. I attended a workshop once and I always remember learning, find ways to do the things you love. It is not always feasible but it is a reminder that you can't give up everything in your life.

I have found the boards to be a source of sanity. It is a place where we all have pain and truly understand what another person is talking about. We have differences of course and many of us have other health challenges.

You have had some wonderful suggestions. Do keep in touch when you need to.

Loring

Osteoarthritis in Multiple Joints, Fibromyalgia, Neuralgia, Chronic Daily Headaches, I.B., Hard of Hearing...

Post Edited (Loring) : 3/26/2015 11:34:23 AM (GMT-6)

Posted 3/26/2015 7:26 PM (GMT 0)
Thank you, all, so very much for your responses! I am taking each response to heart, and I'm going to make sure I read fibro 101.

As I read your replies, I realized that I need to pace myself when I have energy, and I need to ease back into stretching, slowly building my stamina.

As far as having other conditions, I do have osteoarthritis, with degenerative disc disease in my neck and other areas of my spine. I also have peripheral neuropathy. Both conditions affect me and give me limitations, but I do not want those limitations to control my life. I want to learn to live with my physical situation, rather than just live in denial.

I do have major depressive disorder, and I am on several meds for it. The fibro and depression seem to work together.

I'm on the following meds for fibro: neurotin, 1800 mg per day; tramadol, 200 mg day; skelaxin, 800 mg four per day; Norco, 7.5 twice a day;

Another thing I deal with is fluctuating blood pressure. I'm on medication, but it's a very tedious issue for the dr. to deal with because it can rise to stroke range and it can bottom out, which lands me in the hospital. Very confusing.

Thank you, again, for listening and caring.
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