other problems

Read Fibro 101...the first thread on the forum. There are links to good info about Fibro and you will learn a lot there. Good links for you would be Symptoms and A Thorough Explanation of Fibromyalgia.

Sherrine

There is this 'pain' that I can only describe as the body is a ball of negative energy and you can feel it radiating out of your body. It effects everything - spine, muscles, head, skin...and it's paired with a crushing anxiety. It's the absolute worst. I would call this my daily flare, I get it at 4pm EVERY DAY that I work. I'm trying to figure out if it's blood sugar related or just the stress of working 8 hours a day and my body/mind are saying 'okay, you've had your "fun", now it's time to go home!'. I usually pop my last pain pill for the day and grit my teeth until it's time to go home.

Oh and waking up is terrible. It takes me about 2 hours to wake up and get the motivation to get into the shower, a total of 3 hours needed to get ready for work. Commuting to work is a no-no. I used to work 20 minutes away that, with traffic, took 1.5 hours to get home. I would literally be falling asleep as I was going bumper to bumper all the way home after work. It is a bloody miracle I didn't cause an accident.

Unrefreshed sleep. Sometimes you sleep like the dead, like you've just ran a marathon, but you wake up and feel like you've never slept. This is paired with long term insomnia that can't be touched by drugs. So you basically have taken all the downers you can without actually offing yourself but you're awake, staring at the ceiling thinking 'when will my brain turn off???'.

Fibro is the worst. (sorry, I'm having a really bad fibro week.)

Thank you for the responses, I'm at the end of my rope. I have been so sick for so long and finally was told it is fibro, I just feel so bad and feel so alone. My family and friends don't know how to help and I don't think they realize how bad it is. I work full time and Im finding that so hard to do. Im a single mom of a 6 year old and I breakdown and cry all the time lately because I feel like I just cant do this anymore. I'm tired and my upper back, neck and lower back hurt all the time. However the worst thing is that at times my head gets really funny fuzzy feeling, like Im drunk or drugged and it scares me. Its so hard to explain how it feels but my vision gets weird, sometimes my hearing will go in one ear. I guess I could explain it as I feel like I could have a stroke or seizure even through I don't know what that feels like. At times I also feel like its not hard to breathe but I feel like it takes more work or Im more aware of it. I was told for so long that its stress and anxiety, but the anxiety comes when I don't feel well. They just started me on amitriptyline and hope it works but I absolutely hate taking any meds.

Post Edited (Nikcin3) : 5/7/2015 7:38:52 PM (GMT-6)

For. Me the original worst was before I had the sensory overload under control. I still can't stand the thought of some really good restaurants because I had a overload in them and could smell everything at once. I hate that I have to occasionally ask my husband to stop whistling because I feel like someone turned the volume up to "11".

The other thing I hate is when my muscles go through knotting and swelling at night. There will be sudden shooting pains, strong aches and some twitches too. I spend a lot of time using Arnica cream (the best stuff, and non-prescription too!) and running my mini EMS machine which is worth so much to me for pain relief.

I am really sorry to hear how you are feeling and that you are dealing with this at such a young age and with a child to care for. My advice is to break down what is bothering you and r echoed everything's itches in a notebook or in an app on your phone or computer and then break it down. Start attacking periods of time or trends and try to focus on relief on one thing or area. Then move on. The little bits of relief remind us that better things are possible.

Both my massage therapist and my physical therapist use arnica cream in their daily work. There are a lot of them out there. Walgreens sells one in a tube that works although it's not my favorite. I like one mixed with Shea for moisturizing. Or something. But the Walgreens one is easy to carry. Put a little on to any and all effected areas, and I found that it can give me up to 4 hours of relief. It's something you could do quickly and immediately to try and take care of yourself and make moving easier. Not a cure all, but my husband even started using for his hands which are arthritic. He makes sure I have some of the stuff every where I go.

Sorry to sound like a commercial. This cream has been helping to keep me sane as I go through physical therapy. I don't think many people know about and I always want to share what I know to help.