HealingWell
Search Close Search
☰

Deep down bone pain

Support Forums
>
Fibromyalgia
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 6/30/2015 12:33 PM (GMT 0)
Hello,

So I've been seeing my doctor to try and get my symptoms somewhat managed. We've definitely made some progress with some of my symptoms but some have been unaffected.

I'm currently taking 600mg of gabapentin three times a day. It seems to help with some of my muscle pain/ and spasms, but not completely. My doctor is comfortable increasing the gabapentin all the way to 1200mg three time a day, but I just don't feel like a higher dose will do more at this point. (Anyone have expiriences with higher doses?)

The worst pain is more of a deep down to the bones pain. At times it feels like my spine and other bones are in vice grips. Ive thought this could just be extreme muscle tension/compression, but am starting to think its something else. We're trying to get a lumbar mri scheduled but insurance is dragging their feet to look the request over for approval.

I am currently taking vitamin d, magnesium malate, fish oil, folic acid and probiotics as supplements.

Thanks for any insight :)
gentle hugs
Posted 6/30/2015 8:44 PM (GMT 0)
I hope the MRI will help in finding a solution. I take gabapentin but only 300 at bedtime. I have joint pains but they're from RA. I get mostly muscle and skin pain from fibromyalgia.
Posted 7/1/2015 4:25 AM (GMT 0)
I take 1200 mg of gabapentin and this seems to be what has finally worked for me. I haven't been to the hospital with a migraine in 5 months and the joint pain most of the time is almost gone. I've lost some of the weight I put on duty other meds also. I did titrate u slowly though. everyones experience is different but I've really not had any side effects from this dosage except for the first week of increasing it. Hope this helps.
Posted 7/2/2015 2:17 AM (GMT 0)
It doesnt matter how much gabapentin you take it just wont work. my advice is to see a pain clinc to help control your pain. A nurse told me that they wont give out the percocets and pain pills because of a new law. So just try and get a reffural from your doc to a pain mangemant clinc. it could be hard tho. All my doc says to me is lets just keep raising the dose of gabapentin i told her it just doesnt work on my pain i need the strong stuff. its a war bro a war. we all suffer from the bad things other people do with pain pills. but god bless ya
Posted 7/2/2015 4:47 AM (GMT 0)
I'm not sure its a good idea to tell someone that something won't work for that individual no matter how much they take nor iis it a good idea to imply that the only tjing that will work are heavy pain pills. What works for others doesn't always work for me and what works for me doesn't always work for others. Everyones response to things is different. Some people can find relief with over the counter analgesics and others cant find any relief no matter what they take. We all have to figure out what we each neef. The best we can do on this forum is share our individual experience with something and hope it helps someone.
Posted 7/3/2015 2:41 AM (GMT 0)
I'm on Gabapentin and it works great for burning pain but does not touch the deep aching pain (as you described) in my thighs. My doctor told me to take Ibuprofen for the deep ache and it works better than the Gabapentin for that particular pain.
Posted 7/3/2015 9:20 PM (GMT 0)
I am with gina , on we are all different...and different things help different people..

Some on here are helped with gaba, some tramadol, some anti inflammatories...its very trial and error for each of us..
Posted 7/26/2015 6:49 PM (GMT 0)
I was looking at the psoriasis board for my daughter and someone said that a gluten free diet helped with bone pain. That's pretty amazing. Theirs is the reply above mine, so you don't have to read all of the psoriasis talk.

https://www.healingwell.com/community/default.aspx?f=50&m=3281111&p=1

Of course some people get no help from gluten-free, or need to cut out even more things, but maybe it's worth a try. Bone pain sounds like it would be hard to ignore. Well what pain isn't, but maybe because I have never had it I imagine it is very bad. I hope you figure out something to help.
Posted 7/26/2015 11:00 PM (GMT 0)
I have been 99 percent gluten free (occasional cracker to take with medicine) for 3 years. It hasn't helped the bone pain.
Posted 8/3/2015 12:19 PM (GMT 0)
Hey Rockon,

I just wanted to post a big thank you for you providing me some info on mast cells.

I've done some reading up on it and it seems to be catching the symptoms that didn't seem to fall in the fibro bucket. I will definitely have a conversation with my doctor about it. I recently had my first nuero appointment and he was very thrown off by some of my allergy type symptoms, and my lightheadedness episodes where blood pressure drops, which this would seem to explain.

Gentle hugs :)
Posted 8/14/2015 3:47 PM (GMT 0)

cherrybomb7 said...
Hello,

So I've been seeing my doctor to try and get my symptoms somewhat managed. We've definitely made some progress with some of my symptoms but some have been unaffected.

I'm currently taking 600mg of gabapentin three times a day. It seems to help with some of my muscle pain/ and spasms, but not completely. My doctor is comfortable increasing the gabapentin all the way to 1200mg three time a day, but I just don't feel like a higher dose will do more at this point. (Anyone have expiriences with higher doses?)

The worst pain is more of a deep down to the bones pain. At times it feels like my spine and other bones are in vice grips. Ive thought this could just be extreme muscle tension/compression, but am starting to think its something else. We're trying to get a lumbar mri scheduled but insurance is dragging their feet to look the request over for approval.

I am currently taking vitamin d, magnesium malate, fish oil, folic acid and probiotics as supplements.

Thanks for any insight :)
gentle hugs

Hello cherrybomb7  I know exactly what that feeling is like, there are times when the pain in esp my back, legs, feet, arms, neck, heck whole body feel like the pain is literally coming from inside my bones.  It's so hard to describe.  When I bend over my back feels like its on fire.  Just laying down hurts, the ONLY thing that has helped me was my heating pad and when I've taken valium or strong narcotic (which I only get at the hospital when I go, waiting on pain managment at the moment to get back to me they are reviewing my case as I am newly diagnosed).  I had an lumbar MRI and I wouldnt be surprised if when and if you do get one done they tell you, you also have degenerative spine disc disease which is what I was also diagnosed with along with 4 bulging discs.  I am only 29 and have cried every day since I was told because I thought it was going to be something they could do a surgery and fix, all this time I thought the pains were coming from my back like a nerve was pinched causing all the other pains...but to now know this is a permanant thing has me so depressed.  Good luck with everything!

✚ New Topic ✚ Reply