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Paralyzed Flareups

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Posted 10/26/2015 2:07 PM (GMT 0)
Last week I got hit hard with a flare up. Its always been hard for me to describe fibromyalgia pain and symptoms. With my flareups I feel like I become paralyzed ( not sure how else to explain). It's not that I can't move because it hurts physically. I have that problem too but It's that my mind is in a state of freeze making it difficult to talk, move, think. The only way I could think to explain is like an electrical shock. I experience a nerve pain throughout my entire body.

Does anybody else get this? Any suggestions on what this is ? Medical terms? Explanations?

Thanks.
Posted 10/26/2015 3:13 PM (GMT 0)
Hi purple,

I would describe my fibromyalgia flare ups as feeling as if I've been run over by a truck. As I lie in my bed, I have to keep changing my positions to help ease the pain.

Here's an article about fibromyalgia that mentions aggravating factors of fibromyalgia toward the end:

http://www.afsafund.org/fibromyalgia.html

Here's one about diet:

http://www.webmd.com/fibromyalgia/guide/fibromyalgia-the-diet-connection
Posted 10/26/2015 4:46 PM (GMT 0)
I wonder if your saying that your mind is in a state of freeze might mean fibro fog? That's certainly a great description of when I get that. It's hard to move ahead on just about any project, and I get very little accomplished. It slows me down a lot, though I find if I do slow down I get more deliberate in what I'm trying to do, so in that way, it's a positive. I'm sure glad when the fog 'lifts,' though!

For nerve pain, have you tried Neurontin (gabapentin)? That seems to help me a lot. Just yesterday I had an odd pain behind my eye, and it quickly got better after taking a low dosage. I have a prescription for 100mg capsules, and sometimes just 100 or 200 mg helps.

Hope you have a great day and week! :-)
Posted 10/26/2015 5:28 PM (GMT 0)
Hi everyone, I'm new to the group. I have been having so much pain in my tailbone, legs ,hips feet just every where. My pain management Dr says you must have fibro and myopathy as they have ruled out any spine damage with mri's. I'm on Gaba for Neuropathy‎ 300 mg 4 times a day, Oxycodone 20 mg 3 times day, Cymbalta 20 mg 1 a day, Xanax 5 once a day,Meloxicam 15 mg 1 a day can't remember the others. The Cymbalta worked as long as I took the Oxycodne but last night I thought I'd try not taking the oxycodne and today the pain is back. I am losing muscle mass in my calves and thighs. I am not kidding the pain gets so bad when I try walking any distance my leg just won't move I can't walk another step. Pretty sad I can't even walk around the mall let alone try exercising. I'm going back to the Chiropractor this Fri for acupuncture back & alignment whatever else he can do.
Then back to the neurologist as my pain Dr wants a biopsy of where I am losing muscle. Has anyone else had this muscle loss? My pain Dr doesn't really believe in fibro but she said there is nothing else to call it. I really like her and she truly is concerned. I also get the brain fog. I'm in real estate and now I don't dare walk up or down stairs for showing condos as I'm scared because my legs are so weak I always feel like I am about to fall down. I think I am disappointed with the out come as at least a disc could be fixed.
Posted 10/26/2015 7:49 PM (GMT 0)
I too have pain in the tailbone, hips, legs feet, however when this flaring up occurs the electrical nerve pain radiates all over. I've been told I have the SI joint dysfunction. I can't afford to go the the chiropractor regularly.

Also , I am sensitive to meds. I take 100 mg a day and 200mg at night of GABA. When I take it during the day i get dizzy so it's a toss up. If I'm not flared up ill just take about 10mg a day of oxy for aches. Due to less physical activity, I know I've loss muscle strength. Earlier this years I was bedridden for over a month. This illness is so frustrating. Hopefully you will get some relief with your chiropractor and get feeling better soon.
Posted 10/27/2015 12:45 AM (GMT 0)
I think it can be scary heading into a flare.. We are never sure where it might be going...and of course we never have time for it..

I also had a flare last week, with pretty different symptoms than usual.

I really had to just pull back and ride the worst of it out..

I did a lot of self help measures, heat, acupressure, topical pain relievers etc..

I made myself do some stretching exercises even when i did not feel like it. And knowing that, just staying in bed , increases my pain and stiffness, i kept up with light housework and cooking some..

I cancelled a shopping thing i had planned..

We sure do need to pace ourselves in a deep flare..

Someone mentioned a SI joint issue.. I had a therapist give me an exercise that corrected an imbalance of the SI joint... I know that can be found online...

Purple , hope you are starting to come out of your flare

Take care. Lj
Posted 10/27/2015 12:54 PM (GMT 0)
Thanks everybody. Boy, I feel stupid alot with fibro . I forgot one of my own tools for flareup. I took amitriptyline last night and woke with groggy but that's ok that pain is calmed down. Why can't I remember that!!!

I told my husband , please remind me when I'm flared up to take my sleeping med. lol
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