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New Here, Is it possible I have Fibromyalgia, please help?

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Fibromyalgia
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Posted 12/2/2015 11:17 AM (GMT 0)
Hi everyone.
First off, I'm 23, Male.

For the last few years, I seems to be getting more and more pain.

It started out with chronic headaches, especially in the mornings with really a really stiff neck and in my back and shoulders.

2 years later, I started getting bad stomach pain and IBS symptoms. I was diagnosed with reflux and dyspepsia. I had the pain everyday. I ended up getting a Nissen Fundiplocation (Reflux surgery). It helped the reflux, but now I feel sensitive to a lot of pain in the operation site even thought the surgery was 7 months ago.

I suffer from:
- depression & anxiety
- nasal congestion & sensitive sinuses
- trouble concentrating
- restless legs
- waking up frequently at night
- sensitive to temperature
- extreme fatigue
- raynaud's phenomenon (numb fingers)
- dypepsia & bloating

It feels like I'm always in pain somewhere. If I'm not getting stomach pain, I'm getting chest pain (place of operation). If I'm not getting chest pain I'm getting headaches and so on.

It feels like I have layers of pain. Each pain numbing the others.

I remember I was prescribed Amitriptyline from my headaches originally and I did feel good on them. Headaches faded and I didn't really notice being in pain. But I came off them because I didn't like being on a prescription drug. Since them it's all gone down hill.

I'm getting to the stage where I think I'm just sensitive to pain. Something always hurts and I can't take my mind off it.

People who have been diagnosed with Fibromyalgia, does this sound familiar or am I completely wrong in thinking I have this?

I could do with some help,

Thanks,
Jason.

Post Edited (Jasonking92) : 12/2/2015 7:33:14 AM (GMT-7)

Posted 12/2/2015 12:32 PM (GMT 0)
Hi, Jason, and welcome! Many of your symptoms are common with people who have fibromyalgia. With Fibro you have pain in all four quadrants of the body that has gone on for at least four months. Many have cognitive memory problems, the tingling in the fingers, etc.

I would suggest you see a board certified rheumatologist who treats Fibro. Ask first since there are doctors that still don't believe this is an illness even though it is recognized by the American Medical Association, the American College of Rheumatology, the National Institutes of Health, and the World Health Organization just to name a few. You should be run through tests to rule out other illnesses that have many of the same symptoms as Fibro. Since there is no good test for Fibro these other illnesses have to be ruled out. They also have a different treatment.

Be sure to read Fibro 101...the first thread on the forum. There are links to good info about Fibro and you will learn a lot there. Good starting links for you would be Symptoms. What Else Could It Be, and A Thorough Explanation of Fibromyalgia. You just might see yourself there. All of Fibro 101 is good so do read it.

I'm looking forward to getting to know you better. Do let us know what you find out because we do care about you. Don't hesitate to ask questions because we are here to help you. Hope to hear more from you soon.

Sherrine
Posted 12/2/2015 12:33 PM (GMT 0)
Hi,

It certainly sounds possible . We are all different with fibro..but pain and fatigue are pretty constant.

There s good info at fibro 101 at the top of the page.

Are you seeing a dr. For your symptoms?

Most of us have to treat the symptoms , to just have better quality of life...if it is fibro you can learn self help measures as well as help from your dr.
Posted 12/2/2015 3:44 PM (GMT 0)
Thank you,
Currently speaking to doctors about stomach symptoms etc. But the idea I have Fibro has recently came to light. Not sure how to go about it with the doctor. I mentioned I always seem to be in pain and she said that could just be my profile.
Posted 12/2/2015 5:37 PM (GMT 0)
Huh? What did she mean it just could be your profile? No one is born to be in pain! It's like she is saying it's all in your head. Nope, it isn't. Your body has pain to let you know there is something wrong going on.

Sherrine
Posted 12/2/2015 11:13 PM (GMT 0)
Jason, have they tested you for celiac disease? My daughter was just diagnosed and she also has fibro.
Posted 12/8/2015 5:44 AM (GMT 0)
The rheumotolgist that I just saw last week told me that the other dr in the practice will not ever diagnose a patient with fibro since she does not believe it is real. SO do that research before you go. I did not know that but luckily someone was watching over me when I went to see this dr. He is amazing and sad but true he is retired and only covering till January but he already diagnosed me. So now I can see my regular dr when he leaves to continue my care and prescriptions. I will find a new rheumatologist too when he leaves that will help me.
Posted 12/19/2015 4:33 AM (GMT 0)
Hi Jason,

Have you had any tests done like blood work?
What were the results?
Posted 12/20/2015 3:42 PM (GMT 0)
Hello Jason. Fibro sums but not knowing what u have and having a Dr that doesn't believe in it is worst. Make sure that ur Dr doesn't put u off about the way u feel. Finding a good patient Dr is half the battle
Posted 12/23/2015 8:00 AM (GMT 0)
I have had numerous surgeries and also lost both of my parents when they were only 58 and 60 years of age to horrible diseases (cancer and early onset alzheimers) So that put a lot of extra stress on me plus the financial issues of surgery after surgery on myself and my son that has Cerebral palsy. I have had to have laparoscopies, they cut my bowel when I had my twins, a tubal pregnancy that almost killed me, a SVT surgery and 3 incisional hernias and I know that my pain threshold used to be so high and now it is so low and it sucks. I pray that we all get some relief soon. I am taking a new med for me a muscle relaxor but have not taken it yet since I work so much and want to take it when I have shorter hours and a few off days just in case it is not working for me. Take care and I hope you find a great dr to help you.
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