Long term Fibro

Hi Hoofie, and welcome. I've had fibro for around 15 years or so, and a couple of years I was slammed into surgical menopause. You are right, it does feel like a battlefield sometimes. I'm on HRT for the moment, and that helps, but I definitely feel worse "body wide" now than I did before I had surgery (except for the endometriosis, which is better). But I think we sometimes underestimate how hormones affect our entire bodies.

You can tell by my gender that menopause is not an issue for me....however my fibro pain seems to be increasing as my testosterone drops - certainly the stiffness is.

For women and less so for men progesterone is a calming hormone and as we age it drops. In Europe they are using it to treat fibro and anxiety/stress.

Hi, I believe I have a battlefield with hormones and fibro . I've always seen a connection between the too . My fibro symptoms intensify 2 weeks before my cycle(ovulating?).

I'm 36 and have asked my doctors if I am premenopausal , but they say I'm not a candidate. I've also explained to doctors how my fibro is connected with my hormones.

But all the standard testing shows normal except about a year ago my thyroid levels finally dropped low enough to get doc's attention. I'm leaning towards the thinking that you can't go by standard test results with fibro. I can't find a doctor that thinks outside the box.

I'm praying and taking one day at a time. I take Gabapentin for the sizzling nerve pain besides pain meds. I've started drinking a detox of apple cider vinegar with honey( I blessed that I actually like the taste of it). I found out about Gabapentin on here. I'm finding little things here and there that help some. I may not be where you are but I hope you can find some other things to help ease the symptoms .

From reading i have done, there can often be a hormonal imbalance with fibro patients... Some drs work to balance the hormones with fibro patients, others do not..

Since i was well aware i was having hormonal imbalance , i studied it and used a progesterone cream topically to control it..

I do not recommend that of course unless you do the studying.

I did the studying because i am all about natural hormones versus synthetic., and my area does not have blended medicine practices.

Lj

Thanks for all your replys.
I never try to self diagnose. I have had many a trip to the doctor to get another round of normal test results.
Sometimes it is just handy to have a list of symptoms to look at and remind yourself that Fibro has many weird symptoms.
Lately I have been getting burning feelings, like my back is on fire, or my legs or just some random part of my body. It was good to remind myself I have had this before. As you get older you do panic at times thinking it is something terminal, when I was younger I use to go with the flow a bit more.
I am having a massive flare up at the moment.

Recently diagnosed last year right before my 18th birthday with fibromyalgia ,but I had experienced the symptoms since I was around 8 or 9 but since it's so rare for a child to have fibro it was the last thing they checked me for. I have been looking for chat rooms or forums I can post on to I guess not feel so alone and over whelmed it's hard to deal with, and hard to talk to people who can't relate even with people friends I've known for years I don't feel comfortable talking ton them about it because they could never understand or I feel in annoying or I complain to much

Hi music3love. That has to feel like even more of a life rip-off to people who get sick so young. Some of the younger people at another forum I visit were also in on starting up another site that I am pretty sure is called allthebeautifulpeople. It's for people who got chronic illness when they were young. They like having that second social outlet for issues that the rest of us are not experiencing. I can see that for the young it can mean a different life experience than what a lot of others your age will be having. Glad you visited here today.