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Which is worse for you? The fatigue or the pain?

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Fibromyalgia
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Posted 8/25/2016 4:56 PM (GMT 0)
I feel weak and tired ALL the time. I have to push, push, push myself. I walk almost every day but it never gets better. Pain is not my biggest issue. Of course there are the memory problems also. Arghhhh.

I'm interested in seeing how others feel.

Barb
Posted 8/26/2016 12:28 AM (GMT 0)
Hi barb,


I can keep the pain tamped down enough, but would be dysfunctional without d ribose.

My energy is also better when i am eating better.

Lj
Posted 8/26/2016 3:53 AM (GMT 0)
I think the fatigue is worse for me. It's hit me hard this week.
Posted 8/26/2016 6:11 AM (GMT 0)
I will say both.Too much pain and fatigue.

I feel iAm losing so much in my life,as some days I stay in bed whole day.

I push myself and do not take anything for energy .

Planning to get B12 shots monthly might help.

I am taking b12 caps some days .
Posted 8/26/2016 1:24 PM (GMT 0)
I have a high pain tolerance so the fatigue is worse for me. I have been exhausted for a few weeks now. I am thinking weather but not sure. I see the doc next week to go over blood work. I will find out more then, but it is almost as bad as when I first got fibromyalgia.

Cilly, my first two years of this was spent in bed. You can't get that time back. I hope you find something to help.

Hugs to all...

Cilly, Barb, Joy and Lj...

Karen...
Posted 8/26/2016 4:15 PM (GMT 0)
Barb, although I do have pain, most of the time it is at a tolerable level. However, the fatigue that I feel almost everyday can sometimes be overwhelming. It seems I never feel rested when I wake up, and my sleep is always restless. Any sleep aid seems to just make the fatigue worse. Eating a balanced diet, while it makes me feel better otherwise, does not seem to help with the fatigue, nor does exercising. I think I do hurt less with daily exercise. The only thing that does seem to help a little bit is Adderall XR. This stimulant was prescribed to me some 12 or more years ago for adult ADHD. This was back before I ever knew about the fibro. Although it does not totally take the fatigue away, it does take the edge off so that I can function. It does seem to help a bit with the brain fog. Although I don't like to use too much caffeine, I do occasionally use a 5 hour energy drink if I am going to have to drive a distance.

I know the weather does effect me. On stormy days, I feel even more fatigued and hurt more. We had a cold front move through last weekend, and I had the worst flare that I had experienced in years. I hurt in places where I had never hurt before. Fortunately, once the front moved through, most of the pain subsided. Winter storms seem to cause both the pain and fatigue to worsen. Today is a gloomy, rainy day, and although my pain is at a low level, I feel as if I could sleep for a week.
Posted 8/27/2016 1:06 AM (GMT 0)
Cilly - let me know how the B12 shots work.


One doctor told me there are a lot of studies being done because it's very expensive to treat and insurance companies are clamoring for something. It is quite mysterious.

I hate for summer to be waning. I feel a lot worse in colder weather.

Oh Lordy, could be worse I guess.

Barb
Posted 8/27/2016 2:22 AM (GMT 0)
Oh i felt more fatigued also and had bloodwork and my vit d was back at 30... Grrrrrr...

Thats too low for me..i took 6,000 a day over the winter and get into the sun as much as i can and still too low.

Barb do you know your vit d numbers?

Lj
Posted 8/27/2016 2:25 AM (GMT 0)
I've had it checked and I'm on 2,000 mg a day. I haven't had it checked in awhile though. When I was diagnosed it was really low.
I have one of those lights for winter and I feel it works or I want it to work.

Barb
Posted 8/27/2016 2:29 AM (GMT 0)
Cilly - try not to stay in bed all day. My doctor told me to set the alarm for 8:30, get up, and go out for coffee every day. That was good advice. You have to keep moving. It's worse if you give in and believe me I know how hard it is to fight the fatigue. I have a friend whom I meet up with and we walk and then we have coffee. It motivates me to know I've got to get up to meet her.

But with a flare I'm down for the count and I haven't had a bad one since last September knock on wood. As you learn to take care of yourself it gets more tolerable.

So keep moving Cilly. Sometimes it's just a shower but you will feel better.

Barb
Posted 8/29/2016 3:01 PM (GMT 0)
HI everyone. I kits joined today ask was searching the internet for some help! I've had fibromyalgia for 18 years and for the most part it was manageable, but the past year I have gone downhill. Right now my fibro has been bad for 3 weeks. I'm so tired I go to bed super early and when I'm home I take naps. The pain and muscle aches is killing me. This weekend I wanted to scrub the deck down to restrain it and detail my car. I did nothing but sit on the couch and watch dumb tv. Even reading was to much of an effort. I called in sick to work, just like I did 3 weeks ago. My coworkers don't understand and if I'm having a bad day I have to soldier through it. I work FT as a nurse and on the days I work with patients who are getting pain injections and they are talking about their pain it gets hard because many times I have the horrible back pain and satiate a from a auto accident t 20 years ago. I just don't know what to do. Even typing this all out has exhausted me. I take cymbalta 60mg, gabapentin 300mg, do water exercise 2x week and I Aldo do chiropractic, massage and acupuncture on a regular basis. Uurgh.
Posted 8/31/2016 3:44 PM (GMT 0)
It sounds like you are doing a lot for your fibro Rushrivergirl. The trouble with fibro is that you look okay but don't feel okay. So others don't understand.

I can't imagine being a nurse and having to be so active. A guy at church took me by the shoulders to move me into a picture and I thought I would crumble on the floor it hurt so much!

I used Family Leave Act to be able to stay home when I needed to. I'm retired now.

Do you take magnesium malate? How is your vitamin D? I have bad back pain from spinal stenosis. It gets worse when the fibro worsens.

This is a good site to get ideas. I found out about magnesium malate on this site.

Yeah it's hard but you need to keep moving. It could be worse.
Sounds trite but it's true.

I hope you have better days soon. When you are good don't overdo it (like I have).

Barb
Posted 8/31/2016 7:10 PM (GMT 0)
Hi Barb. I'm going on day 5 of a flare, but tomorrow I must go to work; it's a 10 hour day and then Friday I work 8. I've called in for 3 days now. I do end up doing to much when I feel good because I also have a house to take care of. My son is in college, but we have 3 dogs, a husband who travels some (and doesn't do much to help with any housework or home maintenance projects). So when I feel ok I must be getting things done!
I just found out about magnesium malate. I've been doing a lot of googling these past few days. Also read about biofilms and gut health so I'm going to try the Restore 3 program which includes magnesum malate. It also has you following a Paleo like diet. I have a friend who thinks I should do the Whole30 program, but that seems a bit harsh to start off with. I have been reading an anti inflammatory diet is good to follow. Right now I don't follow any specific diet.
Posted 8/31/2016 8:02 PM (GMT 0)
Day 5 of a flare. I'm sorry to hear that.
Sometimes when you know you HAVE to do something from somewhere comes the energy. I hope that happens for you.
My husband is a major help to me. Sometimes he resents it but he does so much for me.
Keep trying things, you'll hit on something. I have a friend who swears by guaifenesin. That's all.
I believe there are different degrees of fibromyalgia. A niece is in college and plays on the volleyball team. Every chance she gets she sleeps. My doctor once told me it seems older patients have difficulty with fatigue and younger ones are affected by the pain more.
Its no fun.
Do you have IBS issues? I don't and I don't get the migraines either thankfully.
Yes, the anti-inflammatory diet is a good one.

Barb
Posted 9/1/2016 5:44 AM (GMT 0)
The fatigue has ruined my life. It's paralyzing sometimes and just plain sh**ty the rest of the time. Even if I could push past the pain the fatigue is always there waiting to steal every bit of my energy. It's like a predator that plays with its prey. It won't kill you but it makes life miserable.

And on that cheery note... thanks for posting such a good question!
Posted 9/1/2016 3:05 PM (GMT 0)
Booklvr
How did they diagnose chronic fatigue? I would have thought they'd pin your fatigue on the fibromyalgia.

Not to mention it makes you feel lazy. That's the thing my husband doesn't understand. He gets the pain part. Sometimes even getting dressed is challenging.

Oh yeah it sucks. Can't entertain anymore. Too exhausting. But I can do more than one thing in a day which is more than I could accomplish 2 years ago. I just have to pace myself.

Be kind to yourself. Keep trying things.

Barb
Posted 9/1/2016 5:21 PM (GMT 0)
They diagnosed the chronic fatigue before the fibro but only a matter of days apart.

I had swollen glands and the back of my throat was bright red. It hurt too. That's a telltale sign of chronic fatigue aside from the actual fatigue itself.

I don't think doctors really know how or if to separate the two illnesses. My symptoms could easily be explained as chronic fatigue without the fibro. The pressure point test has been largely debunked for fibro. It hurt me for sure but they push really hard and the chronic fatigue wI'll react to that too. Plus chronic fatigue also has pain, memory loss/fogginess depression etc.

Do you know of any studies done on how to correctly diagnose between the two illnesses?
Posted 9/1/2016 9:58 PM (GMT 0)
That's an excellent question for this site. Go to "Post New Topic".

I was diagnosed by the pressure points. And they said I filled all the "criteria" history-wise. What do they use now?

The treatment for both is non-existent anyway.

Barb
Posted 9/2/2016 4:21 AM (GMT 0)
Hi everyone ... Sorry if Lymehead throws anyone off as I originally become a member because my brother has lymes) .....I'm not sure if any of this information will be useful but hear goes anyway... Ok so approx 10 yrs ago I felt sickish. Flu like symptoms that would stay a week the vanish till it seemed to never let up. Eventually I was diagnosed with fibromyalgia and since then I have continued to look for a reason for all my symptoms ( I never assumed the doctors were right) ( I had other symptoms but doctors said it went together) ok fast forward 2months ago I came across a forum about cipro toxicity. Funny thing I had been given cipro antibiotics (FQ group of antibiotics there are about 10 I think all related and cause the same symptoms)for UTI over those 10 yrs periodically. So basically bei poisoning over and over. I immediately started searching for a solution to get better and everything pointed to magnesium deficiency. Come to find out the cipro robs your body of magnesium and the ability to absorb magnesium making my body ache horribly. I was mostly bed ridden the last 5 yrs hardly able to get a easy meal together or shower. Sometimes w went for 5 days no shower I just couldn't do it. Anyway I ordered the magnesium an all natural one and started feeling better the following day and have now added and am trying new things as well as a better diet and probiotics ( probiotics have help enormously as well). Not sure of the rules here but I take Kal brand 4 u can get it at most bigger health food stores or Amazon it cheapest. If anyone would like more information feel free to contact me. Again I hope this didn't break any rules or and this gets posted in the correct forum.

Hi, Lymehead, and welcome! I took your email address out of your post. Anyone. Including non-members, can see it and it could cause you problems. So we don't post our contact info here. Thanks in advance for your understanding.

Sherrine

Post Edited By Moderator (Sherrine) : 9/2/2016 3:47:14 PM (GMT-6)

Posted 9/2/2016 8:12 AM (GMT 0)
I need something for my pain flares.This morning was terrible.could not get out from bed .extreme pain whole body.
I need lyrica or Gabapentin,or something for pain.

Tonight my stomach is acting weird.

I need to be careful about my diet.

Sure will keep you updated about shots and when I start them .

Fatigue is like I cannot sleep ,strange but iAm tired.
Posted 9/2/2016 3:26 PM (GMT 0)
Cilly try magnesium at night I take a liquid natural one from the salt lakes. Fix in choc almond milk or juice
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