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Fibromyalgia pain goes and comes back, after 2 years!

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Fibromyalgia
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Posted 10/2/2016 7:50 PM (GMT 0)
Hi there everyone, I'm very sorry that we are suffering from this crappy debilitating disease, it's horrible and I hate it, I know we all do. I am only 44 and I was diagnosed with fibromyalgia 2 years ago. I went on a fully raw vegan diet for 30 days and on day 16, I was off all my medications and free of pain. After the diet, I went back to eating glorious human food again, but now (2 years later) I've been diagnosed once more with fibromyalgia. Currently I'm on a type of morphine patch called Norspan 15. I change this patch every week on the Friday and when Friday comes, I notice I need the patch change, as I start to feel that horrible pain again, and the sense of just feeling very unwell (you all know what I mean). I just want to curl up in bed, not move and not feel this horrible sensation. I feel completely weak, vulnerable and impotent too because I just don't know what to do. I want ME back!! I used to be really active, always working on some new project, played with my daughter all the time, and now it's like, "I'm just waiting to feel a bit better babe". I can't, I can't do anything. I've read many of your posts and there are girls here that are in their early 30's that have fibromyalgia, this is NOT RIGHT! We need to find the remedy, the cure, whatever, we can't continue to feel this way. It's eating up our lives! I can't just accept the fact that I have this, I can't, I have to get my life back! I want to be healthy, play tennis, work hard, and I want it now!! Now that I'm young and I still should have all the strength in the world to do everything I want. So, today I've decided to try the raw vegan diet again. Last time it worked wonders for me, let's see what happens this time. So, I'll keep you posted. I'm currently building a website where I will write down, on a daily basis, everything I eat and drink and how I'm feeling. I haven't launched it yet, but will do it this week. I will also try to post some videos on Youtube with my progress. By the way, are any of you on morphine patches to relieve the pain? Do you know if morphine affects hair loss? I'm asking because I used to have a head full of thick beautiful hair, and now I'm down to minimum and it's completely thinned out too. I'm not sure if I'm allowed to post a website link here, so I'll just go over the forum rules and if I can, I'll let you know where you can find me online and Youtube. Keep healthy everyone!! SMILE even though everyday is a huge effort, just to get out of bed, keep your smile :-) :-)
Posted 10/3/2016 12:11 AM (GMT 0)
Welcome!!

I hope your plan works for you. At this point, doctors do not feel that diet has an impact on fibromyalgia. If this diet affected your pain--then the pain was likely not fibromyalgia. Of course, a lot isn't clear about our condition. IMO--healthy eating makes the body more healthy and so changes our perception of pain.

But, hey, whatever works!! Each person has to find their own way of managing. I exercise, use mindfulness, and eat disgustingly healthy. I also journal food--WW and it helps mebe more responsible. I take tramadol, a muscle-relaxer, and ambien. I have been diagnosed since 2004.

As an FYI--the board's moderators request that food and diet postings keep to a specific thread. A while back, we had a situation where every single post was becoming about diet. Many newbies got frustrated as their posts were taken over--and they felt criticized. I will bump the thread up for you.

Some folks do morphine--so I am sure they will respond. I have thinning hair--and take biotin and use a strengthening shampoo. I feel it is linked to arriving in middle age--I am 47. I first noticed it when I was trying to grow out my hair longer. Since then, I keep it shorter and have less of an issue. I am sure hair thinning could be a side effect. A good way to find out is to ask your pharmacist.

Keep checking in and letting us know what is happening with you. Be well, new friend.
Posted 10/3/2016 1:35 AM (GMT 0)
I have been diagnosed with fibromyalgia by multiple docs, a few of which believe that food can, and does have an effect on pain levels attributed to fibromyalgia. Good for you taking action on making yourself feel better! I know I feel a lot better when following a diet that works best for my body.
Posted 10/3/2016 2:07 AM (GMT 0)
Hi, and welcome! Have you been checked for food sensitivities? Food generally isn't the cause of fibromyalgia pain but sensitivities and allergies can play into that. They believe fibromyalgia is a neurological problem.

Here is a good link all about fibromyalgia.

umm.edu/health/medical/reports/articles/fibromyalgia

You will have to change your user name if this will be the link to your new blog. Links to blogs can only be put in your signature or your profile...not in posts or as your user name. Thanks!

I'm looking forward to getting to know you better. Don't hesitate to ask questions because we are here to help you. Hope to hear more from you soon.

Sherrine
Posted 10/3/2016 1:26 PM (GMT 0)
I want to read posts but when they are just one long paragraph my fibro brain wants to scream.


Yes, please use paragraphs. It's so easy to get lost when it is one long paragraph. I put two spaces between paragraphs too. All of this makes things easier to read and many members won't read a post if it is one long paragraph. Thanks for understanding!

Sherrine

Post Edited By Moderator (Sherrine) : 10/3/2016 10:09:43 AM (GMT-6)

Posted 10/4/2016 8:46 AM (GMT 0)
Thank you so much for your encouraging words countingstarsx : ) I did it once, so I'll do it again!! At least I'll give it a good try : ) If you feel better when you change your diet, then you too should go for it and change your diet. Living with pain is NOT RIGHT, our lives are too short to be curled up in bed suffering. I wish you all the strength in the world to recover from this, don't settle for less than 100% health. GO FOR IT!!! Much love from here XXOO

Thanks for the info Myself09. I've seen 2 doctors and 1 rheumatologist in the city where I live, they could be confused or even wrong, but they have all concluded that the pain I suffer, and suffered in the past, was due to fibromyalgia.

about the food issue, if this is a forum to talk about fibromyalgia, I would expect everybody to share their own experiences, including what they're eating. I think this is about helping yourself whilst helping others at the same time, hopefully. I DO want to help others that are suffering like myself.

I think I'll just ignore the screaming post by AndreM, as it's not positive or helpful to our condition in any way.

Hi Sherrine, Yes I have been tested in two occasions for food sensitivities and the results were negative to any sensitivities or allergies, which was great. Thanks for re-confirming that food has nothing to do with fibromyalgia and thank you for teaching me how to write in the forum too, it will be extremely helpful for anyone suffering from fibromyalgia yeah

Post Edited By Moderator (Sherrine) : 10/5/2016 2:21:11 PM (GMT-6)

Posted 10/4/2016 12:18 PM (GMT 0)
We keep all food discussions in one thread. I had to do this because this became a food forum instead of a fibro forum and it was getting totally out of hand.

I will bump up the Diet and Food Discussions thread and you can go through it. This works well since you don't have to search for food threads throughout the forum. So please put your food posts in the Diet and Food Discussions thread. Thanks!

Sherrine
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