Why do I feel like I'm dying :(

Sorry if this post is inappropriate. I'm just sick of feeling the way I do and having doctors telling me it's normal. I do have an appointment in Feb with a rheumatologist but for the past days I've been having so many symptoms.

Tired muscles with pain.
Having this skin feeling like I'm losing sensibility.
Vibrating body.
Twitches are back.
Headaches.
Vision issues, like all the lights are too bright.
Heart palpitations.

Idk it's just too much right now :(

Doctors, not the rheumy, but the others, didn't find what was wrong with me and I don't know, it's like I have something happening to me, like a rare disease and I will die.

Is this normal? Every day for the past 6 months, symptoms are adding to the pile and I feel like 1 day, soon, I'll have a heart attack or pass out and won't wake up.

I hear your cry. All those symptoms sounds like fibro for sure. It's good to get it all checked out, but don't be to discourage if they tell you it's all normal in there eyes. Sometimes a balance of meds helps those symptoms. My vision is horrible at times and just by taking thick moisture drops made a huge difference. My muscle cramps are better because of the magnesium and calcium supplements. My heart races real often, so I take med for that plus relaxation excercise. I also take a depression and anxiety class. You might already do all these things maybe it will help someone. I learned all this from this site. What a difference in my life all these changes has made. I had to actually bring it all up with my Dr. first. I hope you can get a better balance. We are so different in how we react to treatment.

Anna,  did you ever go to Fibro 101 and check out the link called Symptoms?  All that you are describing are symptoms of fibro.

 

You just need a doctor that knows about fibro.  No, feeling like this isn't normal for the average person but it can be "normal" for people with fibromyalgia.  I have back, shoulder, ankle, and hip pains, vision problems that come and go, hot and cold issues, feelings like bugs or water are running down my leg, buzzing, heart palpitations...I could go on further but this is how fibro hits me.  Now, everyone is different.  We don't have ALL of the symptoms but we usually have quite a few.

 

Once you get the help you need, you will see that you can have a full and enjoyable life in spite of fibro.  I know I sure have.  Just arm yourself with knowledge of this illness and that not only helps you but also helps you be your own advocate with this illness.  You won't feel like you are going crazy, either.  So, please read Fibro 101.  I put that together and send everyone to that thread when they first come on the forum because it's packed with good information.

 

Sherrine

I was feeling like that (despondent) yesterday, and I don't even have all the problems you're having. So cut yourself some slack...you are allowed to complain about feeling bad. I too have the fear that maybe they are missing something...that's why I am often researching. Hugs

Hi,
Im also new to this forum but Im happy I joined.
My symptoms started about five years ago: limbs numbness, fatigue, depression at first but they have progressed to extreme feet tingling 24/7, night sweats, headaches, sore throat, just an overall feeling that im dying.
I've gone to every specialist I could think of and have had countless tests including brain MRI, various radiology testings of spine, EMG, hundreds of lab tests, even colonoscopy and endoscopy (Im only 34), and every single test would always come back normal.
The feeling of being that sick without having any reasonable explanation is excruciating and depressing.
I started drinking wine almost every night (which makes me feel even worse), gained 40 pounds and cry every other day even at work.
My PCP had finally recommended me to start Savella for fibromialgia. I haven't started yet but was hoping someone could share their experience with this medication.
Thank you in advance

Hi, Bobsgirlz, and welcome! Has your muscle pain been worse since starting Lexapro? Lexapro can cause muscular and joint pain so try to think back when your pain started to be worse. There are other medications that might work better for you if you are having a reaction to Lexapro.

I use ibuprofen with food, Tylenol, magnesium malate, vitamin D3, and a muscle relaxer called Robaxin that has made a significant difference in my pain. I also pace myself when doing things and walk daily as a gentle form of exercise. If we sit or lay too long we will be stiff as a board and have more pain.

Be sure to read Fibro 101...the first thread on the forum. There are good links about fibro and you will learn a lot there.

I am looking forward to getting to know you better. Don't hesitate to ask questions because we are here to help you. Hope to hear more from you soon.

Sherrine

thanks for the quick reply! Yes I have been on Lexapro for about 8/10 months, it was working a bit at 1st , I had gone on it after a break from all meds except ibuprofen.

In jan of 2016 I had a bout of esophagitis and wound up at the ER where i was referred back to my gastroenterologist for follow up after the ER treatment. so no more NSAIDS for me now.

Then i had a scope to make sure no ulcers etc , everything clear.

My GP prescribed the Lexapro ( I had formally taken Cymbalta and after increasing the dosage over a year or so I felt like a slug so i weaned myself off of it. Which was where i was left with just advil 800 mg every day before work.

I work in skilled Nursing as a Physical Therapist Assistant which means I perform exercise with my geriatric patients all day and assist them back on their feet and hopefully return home to live. So my job is by no means sedentary , just on my job alone I clock 5 miles on my fitbit. My GP tells me I need to exercise , which is great as i know i could use a cardio work out as all my mileage is stop and go all day and bending and lifting and squatting, BUT i am terrible pain usually after lunch and i still have three hours left of work never mind afternoon chores and errands.

I simply CANNOT exercise additionally after work as you see I am also about 80 lbs overweight. Some of this may be med related over time but i have also had a very stressful last 5 years which has led to more weight gain.

Today i came home and slept for two hours and then went to my weight watchers meeting , where i lost 4.2 lbs so I am trying to move in the right direction , i know weight off will be beneficial to me but I also know when i was 140 I was still suffering with pain i just took advil 800 mg daily for 10 years to combat it and i was 10 years younger .

I believe I have had fibro for 20 plus years but was diagnosed about 3 years ago with a Rheumatologist who bounced me back to my former GP to manage with meds . No real assistance given there and no big advice, the day i met with the Rheumatologist was supposed to be a class for a few of us to have a little seminar and of course it was a big snowstorm so no one but me showed up so there was no class.

I just want to feel better and I starting my search over again, its so frustrating as my new doc ( had to change due to insurance change) has limited hours and long wait times which break into my work day ( and i need to get paid so we can pay the bills) so i get frustrated because she always wants a follow up, so i feel like i am getting very little help very slowly.

I also have MIGRAINES and just got off a 30 day migraine , after two weeks I referred myself to a headache clinic in Boston and had an appt there last week. The neurologist put me on elavil , so now i am on lexapro, elavil and omeprazole.

Im just a mess ! migraine has been better though ( sumatriptan for migraine as needed)

thanks for listening

steph

Fibromyalgia really sucks the life right out of you! Ive been using a fibro app lately... might be called my fibro team or just fibro team. I guess it is kinda like this, but in app form too.

Ive had Fibromyalgia really since 1998, but of course they didn't acknowledge that Fibro existed, and treated me like I was nuts.

Ive been on Methadone and Percocet now for years!! Ive tried to switch out and try new medications, but nothing seems to keep the pain tolerable like methadone, which is a long term pain management medication. It builds up in your system and unlike Percocet, it lasts a long time with no ups and downs in the pain.

I honestly wish I could get off of it, because I have been on it since 2001. I am thinking of trying CBD oil. But cannabis is not legal here in PA. I'm not sure but one company said CBD is legal in all states. I'm not sure.. I have to check on that one.

Hi all. I have Lupus and fibro. Headaches were one of my first syptoms and still my most frequent. I was taking tylenol and Ibprofen but recently had to stop with the Ibprofen since I am now taking methotrexate for the lupus. Without the Ibprofen the headaches were becoming to much. I looked online and found a site that said to put a little of vicks vapor rub on your forehead and temples. It works!!!! Atleast for me. I feel relief in seconds. My head looks shinny and I smell weird but so much better than being in pain. It is also great for some muscles and joints. Hope this helps someone else, take care guys and feel better!!!

I was recently diagnosed, and I often just feel like I'm dying. Since I'm new to this, I can't really give much advice, but I wanted to let you know that you are not alone!

Anna and others,

Do any of you use, topical pain relievers?

There are many good ones, and since i can only take limited meds, they truly help!!!

There are so many ways to help yourself..my dr. Helps 50 per cent and self help the same...

I still have many symptoms, worse with bad weather, but can function so much better with help...so never give up

Make sure everyone is watching their vit d levels 😊

Lj

I was finally diagnosed this year, took nearly 30 years of my complaints being dismissed. I’m sure everyone had blood tests with nothing remarkable 🤯. I recognize this beginning around age of 14 after having Ross River virus. I’m also asthmatic and have had countless courses of antibiotics from young age. I would say my gut is not in good shape.

I’m currently taking Gabapentin and ADHD meds. I struggle to get out of bed, even after taking the amphetamines, I never feel rested. I exercise as much as possible, mainly walking, I go to the gym 1-2 times a week, I do core and back strengthening exercises quite religiously at home.

I mostly follow ketovore diet...
A few months back came across articles talking about oxalate. This you will need to google but most plants contain these natural insect repellents. The theory goes that if you have leaky gut and have had course of antibiotics, oxalate will be absorbed and deposited in our tissue and bones. What do we all have in common... pain and stiffness and exhaustion.

You get to a point where u will try anything. I’ve been following low oxalate / ketovore for around 3 months. One of the side effects of being low oxalate is that urine will be cloudy and smelly as your body dumps oxalate, this I experience frequently.

I have noticed that I do not get as stiff after a gym session, my muscles are full of trigger points. They recommend following the diet for at least 6 months to see the real improvement, but will take years to rid your body of this lifelong buildup.

Has anyone else tried a low oxalate diet and had dramatic improvements?

Google Sally Norton and Susan Owens if you want to know more about oxalate.