Feeling forgotten

I believe I posted on here before trying to find answers as to why I'm loosing it. My pcp tells me anxiety is causing all this. I have been to Neuro 2x. It started while pregnant with my son I suddenly had part of my mouth go numb and three fingers on my left hand. It returned but after until my son was 6 weeks tongue/lips and feet tingled. Then was the array of crazy symptoms. Now 8 months later my whole body feels like it's burning. Legs, arms, tongue and lips. My legs feel like they're vibrating/pulsating. I get muscle twitches. Both feet tingle. I've been told this is anxiety but my mom has fibromyalgia and shares all these symptoms as well. I've had brain MRI and numerous blood work. Everything normal. I don't really have muscular pain but more just the burning pain/numbness and tingling. Sometimes my body will be overcome with goosebumps or my head gets random tingles. It's all widespread and random feelings. I'm just feeling like I can't parent my two babies well with the fear something really scary is happening.

Turtle, we do care on this forum! You don't usually post here so you may not be aware.

I'll be back, Casweeney, to respond when I get a chance. I've been very busy and have an appointment this morning. But, yes, we really do care about you.

Sherrine

I'm sorry you are having a hard time. I started having symptoms similar to yours not long after I had my first baby. I didn't go to a doctor about it until about 4 years later when I started losing feeling in my feet and legs. I woke up one morning and could barely walk because I had lost the feeling in the left side of my body, I decided to seek medical care at that point. I'm a bit stubborn like that. My favorite saying has been "it will get better, I don't need to go." Ha! That doesn't usually work.

It took about 8 years and an array of different doctors to get a diagnosis of fibro and possible RA. But what it really took was a great rheumatologist. I was officially diagnosed just a few months ago when I went to a new rheumatologist.

I know it's scary when you have small children and you feel that you may not be able to care for them. Stress does make fibro worse, so finding a way to decompress each day is truly helpful. Having a strong support system is essential to managing fibro. I have two very active kids, work a full time government job, and numerous pets to care for but I also have a wonderful supportive husband, understanding children, and a mother I couldn't make it without.

Check into seeing a rheumatologist if you haven't yet but do research before deciding on one. I had one for a few years that did nothing. Just know that other people have been where you are, so you aren't alone in this!

I so am a firm believer in the power of prayer! I constantly am being reminded to not give into the fear or anxiety that overcomes me. Its just so hard when I get all these random sensations. I Dr. Googled and diagnosed myself with MS based on all my symptoms. Which all came on suddenly right before delivering my son. My mom keeps saying this is fibro but I don't have the crazy deep muscle pain that she does. I have muscles that are sore but not super painful. Its the neuro symptoms that get me and scare me. They all are random and migratory. I posted I felt alone because I keep seeing dr's and they say it's anxiety nothing is wrong with me follow up in 6 months or whatever and then i'm left scared theyre missing something big that could cause my life. I want for it to be fibro because I have seen my mom live a successful life and find ways to manage the pain. I just don't know if it truly is though without the chronic muscle pain but more the skin burning, random tingling and odd sensations.