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Common Misconceptions About Fibromyalgia..Mayo Clinic

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Posted 12/7/2016 1:54 PM (GMT 0)
This is a good thread from Mayo Clinic. It actually reinforces what I just wrote on another thread. I hope this helps people.

www.mayoclinic.org/diseases-conditions/fibromyalgia/in-depth/fibromyalgia/art-20048097?pg=1

Sherrine
Posted 12/8/2016 2:02 AM (GMT 0)
Thank you for sharing that thread Sherrine.

My one daughter doesn't believe in it. She thinks I might have Chronic Fatigue Syndrome but that's it. She sees me as a hypochondriac. She's not supportive of my needing to rest and chides me about it. She'll be here at Christmas for 5 days.

I went to buy Curamin today at the Vitamin Shoppe and was directed to Curcumin 95. They are both brand names but the Curamin seems to have more in it, is that right? I think next time I'll order the Curamin. The guy said he sells a lot of the Curcumin but I have a feeling the things that are added to the Curamin are needed for absorption.

A niece was diagnosed and went to Mayo for 2 weeks for their intense program. She is an engineer and serious with a guy. Her mother asked me if I thought she'd be able to work and be a mother with the fibromyalgia. Do you think there are fibromites who are successful at that? I can't imagine it. She's having a very hard time. She gets all of the symptoms like the IBS and migraines. She got off a flight after 4 hours and had to have a wheelchair. She's only 25. She was then in a wedding and had to stand a lot and had to be calmed down as she was literally shaking in pain.

I remember being grateful this wasn't MS but man it is no PICNIC.

Barb
Posted 12/8/2016 5:46 AM (GMT 0)
Thanks Sherrine. I went online and found what I think is the same article. Two things caught my eye.

Difficulty in learning to relax! I could write a book on that. I never really relax. Probably never did. Perfectionist number 1!

I was surprised with the statement that most people with fibro have a weight problem. I have always been average weight. It helped that I learned early on that I felt better if I was active. Very active in fact.

It is sad that we all don't get the support that we need. I know personally that not everyone thinks we have a real physical problem but it certainly is a real problem. For the younger people facing this-try to stay positive and physically active. It really helps.

I follow suggestions in Fibro 101 and it has really helped me. I went through so many medical tests starting when I was in my 20's. It wasn't until several years ago that I was finally dx'd. Now I am 71 and my arthritis is worse than my fibro!
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Posted 12/10/2016 5:10 PM (GMT 0)
Hallahan,
I am a mother who works nearly full time taking care of disabled individuals and goes to school full time. Some days its hard, but there is hope!
Posted 12/13/2016 6:58 PM (GMT 0)
@Puppylover,

I always had a hard time relaxing. I learned meditation. In that I learned how to relax my muscles.

Start at the top of your head (hair and scalp) and relax all of your muscles from head to toe. It takes some concentrating and a lot of focus, but by doing this you relax mentally too. Keep practicing. You will be so happy once you master this. I use this to sleep. IF you are laying down, you can fall asleep. I guess sitting with your legs crossed is best especially in the beginning. I hope that this helps you.

I hope you are having a good day. Snow here...

Hugs, Karen...
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