Severe upper thigh trigger points

Hello and wishing all a Merry (and hopefully painfree!) Christmastime.

I'm sure many are familiar with painful trigger points, but does anyone experience severe upper thigh pain that actually radiates into the groin and abdomen? I have had this for several years, so I'm fairly sure it is not anything intra-abdominal, but it gets so severe at times that it is worrisome. I know we tend to blame everything on just being a fibro symptom, but would just like some assurance that others have had this (although I wish you didn't!) It tends to come in flare-ups, which would be expected, and when the severe thigh pain abates, so does the abdominal pain. Also, if you do get this, do you notice a sudden severe cramp-like pain in the thigh on trying to move it, such as when turning in bed? This is sharp and scary to the point that I have to wonder about a blood clot or something else causing it, but there is no warmth or swelling, so again attribute it to the fibro trigger points in that area. Thanks so much.

Thank you, Lj. I know, I do need to get a trigger point book, as I have them in multiple areas and I'm sure it would help. I use a lot of external pain cream, which after a while and using so much, I'm sure is not good. Take care -

Thanks Lj. I didn't even think about catching it on YouTube. I think it's easier to comprehend when you actually see it visually. Merry Christmas!

Hi Sherrine,
Thanks so much. I unfortunately should not take NSAID's due to ulcerative colitis history. Also I have dysautonomia. i have never actually seen a rheumatologist and diagnosed with fibro, but have had the pain for many years and believe that to be the case. I know I need to get a definitive diagnosis, but my neurologist said that some people are diagnosed with fibro who have dysautonomia, but the pain is actually nerve pain from the autonomic nervous system dysfunction. I think the two conditions are very often found together, as is chronic fatigue syndrome, etc, unfortunately. That is what interested me when you said yours was nerve pain. I also was diagnosed with neuropathy in the legs by EMG, so that may play into it. Very confusing picture. Unfortunately, I don't think I could take muscle relaxants either because I am really sensitive to medications and everything makes me dizzy. Would usually rather have the pain than be even more dizzy, although some days I wonder! I notice in your signature line it says you have autoimmune inner ear disease, and was wondering how you were effected by this. Has it menifested as hearing loss, or do you have dizziness also? Was wondering how you tolerated the muscle relaxants in this regard? It is amazing that your description of the pain sounds very similar to mine. Was just wondering if your pain goes from the groin also into the pelvic area, and if it radiates down the inner aspect of the leg to your calf or on the outside of the leg? I actually have pain in all areas of the thigh, though. Was yours extremely sore to touch? Thanks for your help, and Merry Christmas!

Sherrine, Thank you so much for sharing this info. I'm so sorry, it sounds like you have and are dealing with a lot of conditions, and bravely, I'm sure. I'm glad you can take the NSAID's as long as you take the protective medication, as you certainly need it. It is hard when you need medication for one thing, but taking it will cause something else. I guess it boils down to what you said, that it became a quality of life issue. Wow, the sacroiiitis and SA alone could cause that kind of leg pain - probably a combination of it all. Good advice about getting a diagnosis, I know. It is all so confusing, as so many of these conditions overlap, and one neuro I saw actually diagnosed fibro just by history. I think it's just easier than evaluating the patient thoroughly when they have different complaints. The pain you had sounds similar to what I am experiencing - can't roll the leg over in bed, etc.

I am glad, though, that you don't have dizziness with the ear disease, but so sorry about the hearing loss. I have done some research on the different vestibular disorders. trying to figure out the cause of my dizziness, and I remember reading that the autoimmune causes the hearing loss. Interesting that you have the autoimmune ear and also Crohn's - probably all autoimmune issues. I think someday they will find that fibro is autoimmune also. Can I ask you just one question on your ankylosing spondylitis? I have had spinal arthritis since my teenage years, and an orthopedic doctor years ago thought it could be AS, but another doctor said no because I was female and also had a negative HLA-27. Was yours positive, if you had that lab test done? How did they diagnose it? I think maybe if I had treated it as AS years ago, I might not have ended up with the severe kyphosis that I have today. Thank you for mentioning the Fibro 101 - will definitely read that.

Sherrine, Thank you for providing the Robaxin name. I will definitely suggest that one, should a medication be suggested in the future. I prefer medicines that have been around for a long time and have a profen "safety" record! That research into the stem cells sounds so promising. I certainly hope that it comes to fruition and that you will be a candidate for it. I can understand your hesitancy on having the implant. So kind of you to be so active on the forum and trying to help others when you are dealing with all these things, but I know that trying to help others takes the focus off our own suffering - that along with faith, for sure! Good luck to you and all on the forum!