Severe groin and upper thigh pain flare

I can get something similar in the top front of thigh..

It would just about cripple me..i used to have to bet therapy to get it worked out ..

I studied the trigger pain workbook..and am more able to get it to release on my own now..

You can also google trigger points in particular areas and there are you tube videos telling you how to do releases..

Good luck and let us know how you do

Lj

Thank you, Lj and Sherrine. I will definitely check out the videos on trigger release. I tend to just suffer through everything rather than get the PT evaluation and treatment that is needed. So glad both of you were helped. Sherrine, I know, I tend to blame everything on the fibro, but sometimes it is something else going on which needs evaluation. At 58, I should check for problems elsewhere such as the back or hip, especially since I have spinal problems and osteoporosis of the hip also. Thanks for raising that possibility; probably best to check it out before assuming it is fibro. The confusing part is that it seems to come and go in flares; if it were hip or sacroiliac, for instance, it would be more constant? (oh my, don't even say it, right?). Interesting that I was reading that pelvic floor dysfunction, which can give rise to these problems, can be due to "central sensitization; i.e. fibromyalgia?? All these problems are surely interconnected. I also get proctalgia fugax, or rectal spasm, which is unbelievably painful, if you've never had that (certainly hope not), so it's probably related. Appreciate your thoughts!

Thank you, Sherrine for sharing your story and for the good advice. You are right, of course. So sorry that you were diagnosed with AS, in addition to all the other conditions you are dealing with. It seems once you have arthritis and rheumatic issues, you tend to have other conditions such as fibro as well. Maybe someday they will figure out the links. I actually was evaluated for AS years ago, but doctors disagreed whether I had it; I was seen at the top-rated Cleveland Clinic even. Interested to know at what age (if you don't mind sharing!) and how they diagnosed your AS. I was told it was unlikely because of being female and my HLA-27 was negative. However, now many years later, I am left with a severe stiffness and kyphosis in my spine, which might have been helped if it had been diagnosed and treated. I also deal, however, with cervical stenosis and chronic dizziness/mild dysautonomia issues, so am trying to figure out how all that relates. It is so confusing, but you are so right, finding a good doctor who understands and is willing to piece things together is of the utmost importance. I saw so many doctors in my earlier years that I became discouraged, but I am now encouraged to try to evaluate it further! Take care -

Thanks, Sherrine, for sharing both your knowledge and experience. I'm sure it will help other members too, to encourage us to check things out. I'm so sorry you have gone through so much. As you noted, your HLA-27 was elevated, which is diagnostic I know for AS. You were in so much pain that it's not surprising your markers were so high. So weird how it all started initially, though; sometimes I think viruses or illnesses do set things in motion, or maybe even the pred, as you mentioned. I'm glad you could continue taking the ibuprofen after they added the other med; that was the first thing I thought of as I was reading your post, your poor stomach! You are right, though, it does become a matter of quality of life versus risk sometimes, doesn't it? Keep the faith; you have certainly been through the fire!