Sinus

Despite the fact that you have not answered my question in one of your recent posts, I am going to shed some light on health problems you are having right now.

Fibromyalgia is not a condition that comes from nowhere. It is a body condition that develops through the life, pretty slowly but steadily. It counts to dysautonomias (look under Dysautonomia International) meaning to disorders in functioning of autonomous nervous system. This area is relatively little known and the research work is underway in this past years. For now, there is not known medicament that can cure you, but there may be the change in the coming years. If you ask me, my estimation is that the cure may be at our disposal sooner than expected. I hope to have encouraged you a little bit and that the waiting will be easier for you...

Kodaska

Thanks so much for sharing.
I have been explaining allot in the short time I have been here.
I am humbled at not only your inclusion but your generosity to listen to it all and compassion to share what you already know to
help little old me to feel better. You guys are awesome.

I want you to know that although it is true I have allot going on, like many of you, that I also know it’s normal for this kind of illness.
I have dealt with other facets of it for years and years.
I have always been accepting and had the attitude “why not me?”, and “I’d better get up and get going because tomorrow could be worse”. Also that I know how lucky I am, there is always someone who is dealing with things that are so much worse. In fact often what has made me feel better on not great days is to offer help to those same folks.

I guess this last year with the ITP and the learning curve about the problem, the proticols and treatments, along with the high dose prednisone which is so very difficult. And the chemo I guess.
The deconditioning of my muscles from the pred and the subsequent
muscle injuries and inflammatory flares all ending in this whopper of a fibro flare.....so more learning....has me wanting to sprint to
a well informed finish instead of the slow steady day to day learning curve and trial and error.

That’s me everytime....let’s fix this I’ve got tulips to plant!🙂
I suspect too that this kind of idealism is also a protective mode of thinking as if I sit to long studying all this stuff no matter how important, dwelling one might say...it would scare the biggebers out of me!

Two weeks ago I walked into my emergency room asking for pain relief, big time. I never do that. Things were very bad and that made me so confused.
Tonight I write to you from a hotel room 4 hours from the familiar safety of my own bed. Visiting our sister. Yea, I hurt some and I will be tried maybe for a bit but have had a great time with my three sisters nephew and our fellas. Good wine, good food, good
times. I am so proud of myself and feel so lucky.

I find it harder and harder though to want to deal with the research and the learning curve. Oh what it must be like to never have to consider one’s health as a variable in everything I do.
It’s tiring on it’s own isn’t it?

But you kind folks have helped me just as you have done making it much easier and then I’ll know fibro too....
Have a great nights sleep and a beautiful morning.
Tuffymason