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Fibromyalgia
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Posted 3/14/2018 1:29 AM (GMT 0)
My son and I share many of the same health issues but, as I've mentioned before, the docs call mine fibromyalgia and his just migraines and seem very reluctant to make the link between the two of us (I get the 'crazy mom' look when I bring it up). We're both extremely weather sensitive. So today in the car we traveled 2 1/2 hours. I suddenly felt incredible fatigue followed quickly by that full body fever-like aching. I turned to my son and asked how he was feeling. 'So awful. I hurt everywhere.' 'Did it start just now?' 'Yeah'. Sigh.

Anyone as sensitive to weather as this? Often when I travel, I keep my tens going on my shoulder to keep migraines and nausea at bay and that helps somewhat, but even a one hour drive will invariably cause a headache, because we pass through a different weather zone.
Posted 3/14/2018 1:49 PM (GMT 0)
Pressure changes definitely kill me. Weather changes, altitude changes.

For spring break we go on a 12 hour drive to visit relatives - through a mountain pass. This year I am flying down to meet the family. I can drive an hour or two but once we hit that pass I'm done and am just a passenger. I have very creative ways to hold a steering wheel but I always lose, close to tears. The pain is incredible. Knees, elbows, wrists, hands, etc.

I have tried a variety of things but have come to the conclusion that the only way I can do that drive is if someone knocks me out !

Rain is bad, high winds affect pressure I am sure. Right now we keep going up & down around freezing and I think that affects me badly as well. Ugh.
Posted 3/14/2018 1:57 PM (GMT 0)
That's it exactly! We live in a small town in Southern Ontario. We often drive an hour into the closest city. We pass through a distinct weather system about halfway there (I guess currents from the great lakes) and another close to the city. I can never do that drive without motrin. Living near the lakes means daily weather changes and constant pain and migraines, with the weather moving from sunny to cloudy to sunny. I keep threatening to move ... Arizona, Hawaii... somewhere that has more stable weather patterns. Unfortunately we love our home and I'd likely have to live in a shack to afford to live somewhere comfortable. lol. I could manage it if it where just me, but hard to watch my son struggle with it as well and then not have docs believe me. ugh.
Posted 3/14/2018 10:51 PM (GMT 0)
I have what is considered a genetic form of fibro, my mom, an older sister and one of my two daughters has it..

I also believe an older brother , but he is not formally diagnosed..

Since a child, had unexplained pain issues..and always reacted bad to weather changes..this year our weather has been a roller coaster and i go in and out of flares with it.l

about 20 per cent are males, i believe DR Tietlebaum is a dr, who has it and writes about it..not positive i am thinking of the correct dr.
Posted 3/14/2018 11:19 PM (GMT 0)
Do either of you have any diagnosis other than fibro?
Posted 3/15/2018 1:16 AM (GMT 0)
Most of us with fibro have other conditions, of some sort..i also have multiple chemical sensitivities..
Posted 3/15/2018 7:35 PM (GMT 0)
Yes, I react to weather changes too. I've often wondered what it does to us to go in and out of a heated house in winter, and in and out of air conditioning in summer.

A few years ago I had some knee surgery, and followed up with physical therapy. The therapist was good, but I could tell she didn't believe in fibro......or didn't think it was an excuse for anything. I did my exercises at home like I was supposed to. One day it rained when I had a PT appointment. I was exhausted. I couldn't do much. She got irritated with me. (I got irritated with her, for not understanding). But I knew my fatigue and weakness that day was all due to the rain.

There are also a lot of people with migraines that happen with fronts coming in too. I think it's pretty natural for a human to react to weather. It's just unfortunate for us that it can cause so many negative things, and make our problems worse than they are on really nice days!
Posted 3/17/2018 4:00 PM (GMT 0)
Fronts don't bother me but my body doesn't adjust temps in general. I handle cold but if I get cold my whole body seems to lock up. I stay cold longer than most and wear sweaters until it hits the upper 70's or so. I am miserable inside restaurants in the summer, shaking and shivering like crazy.

Once my body decides it's not cold anymore I slowly start wearing lighter clothing. But, when I get hot my muscles get very, very weak. I went outside on a 60* morning to plant some flowers in my garden. I'm talking small plants and digging a small hole for each. I ended up getting hot and literally had to crawl up the steps to my front porch. I don't go much of anywhere during the summer because of it and my pretty flowers die because I can't water them.

Oh, and yes I have different diseases besides fibro.

Riding in the car very far always wears me out and makes me hurt. The hurt isn't awful, just normal like with a flair but the fatigue and weakness that comes over me is awful. If it's hot out and I'm hurting I turn the AC down then turn my heated seats on.

My father-in-law had fibro but that doesn't really mean anything to me, of course. No one else in my family has it. I have read that autoimmune diseases can run in family's. For instance, I have one cousin who has sarcoidosis and another who's body(forgot the name, Otosclerosis maybe.) has attacked her ears and my son has psoriasis.
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