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Fibromyalgia
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Posted 12/1/2018 9:28 PM (GMT 0)
Hi everyone.

I have been on the chronic pain forum for years now but recently told by my doc i have Fibro caused by surgeries. He has mentioned this on and off for years. I have been trying to read up on it as much as time allows. I have the widespread pain, insomnia and Fibro fog. Fatigue most days and trigger points that are tender. I work a full time, high stress job. Trying to get finances under control so maybe i can come home soon. Anyway this is the life right now and it’s no fun as you all know but it could be worse.
Posted 12/1/2018 10:12 PM (GMT 0)
Hi, Bigcase, and welcome! You seem to have the hallmarks for fibro but I sure would want to have tests run to rule out lupus, Lyme and other illnesses that have many of the same symptoms as fibro. A good board certified rheumatologist can do that for you.

You can help with your trigger points by using trigger point therapy. What you do is when you find a tender trigger point, press on it as hard as you can stand and then massage the area. Repeat and then go on to the next trigger point, etc. Several hours later, go back and repeat with the trigger points you found. They shouldn’t be as tended and, within a few days, those trigger points should be a lot better. They are like little knots and can be causing pain in parts of your body. I fixed a frozen shoulder using this technique. The trigger points were found in my chest wall going from the sternum to the shoulder, then there were some on top and behind my shoulder and lastly some were along my neck vertically. Once I calmed down those trigger points, my shoulder got better!

You probably are wondering how I knew what to do. My massage therapist has studied this, along with studying how to massage clients with fibro and myofacial pain syndrome. Then I found the Trigger Point Therapy Workbook on Amazon and bought that. If you are having pain in an area, you can look it up in the book and it shows diagrams of the body and where to look for trigger points that can be causing you the pain. It does work!

Be sure to read Fibro 101...the first thread on the forum. There are links to good info about fibro and you will learn a lot there. It’s nice to have it all in one place.

I’m looking forward to getting to know you better. Don’t hesitate to ask questions because we are here to help you. Hope to hear more from you soon.

Sherrine
Posted 12/1/2018 11:02 PM (GMT 0)
Failed to mention this has been going on for about 8 years. I have been to so many different docs and had tons of tests and scans. My doc recently did some extra bloodwork to rule out some of those you mentioned. That's when I finally realized he may be right. This must be fibro. I may go to a rheumatologist to make sure I am on the right path though. Thanks so much for all the useful tips.
Posted 12/2/2018 12:38 AM (GMT 0)
Our tests make us look like the picture of health! It’s confusing...for sure. But when everything else is ruled out, then fibro is diagnosed. There is not a good test for fibro.

But you will find things to help you. I’ve had fibro for 31 years and have had a full and enjoyable life in spite of this illness. Unfortunately, what works for one with fibro doesn’t necessarily work for another so it’s a trial and error type thing until you find what helps you the most. For me I take ibuprofen with food, Tylenol, magnesium malate, vitamin D3 and a prescription muscle relaxer called Robaxin (methocarbamol) which has made a significant difference in my pain. I walk daily as a gentle form of exercise and I pace myself when doing things. Gentle massages help me but I have a massage therapist who has been trained in how to massage fibro and myofacial pain syndrome clients. Lastly, I am a positive thinker and that has helped me almost as much as things I take! Focusing on illness just makes you feel miserable so I focus on enjoying my life the best that I can.

It does sound like you have fibro so join in. We do know what you are going through!

Sherrine
Posted 12/4/2018 10:50 AM (GMT 0)
Sherrie,

Do you have pain in your feet? I have it in my toes and foot. Ankles some mornings. My toes have been aching so bad for about three months now. Like i just want to numb them for a day to get relief. I know that sounds crazy but i want a break from it.
Posted 12/5/2018 3:13 AM (GMT 0)
Oh yes. Two of my toes got so bad they became hammer toes but now they are better and are straightening back again. I also had plantar fasciitis very badly but cured that by wearing Birkenstock shoes. Quite a few members have problems with their feet.

Sherrine
Posted 12/5/2018 10:54 AM (GMT 0)
Ok. Not glad to hear you have this problem but glad i can relate it to Fibro. I took slippers to work to wear most of the day and it seems to help. I have been exercising the last two weeks and some nights i am sleeping better. Still lots of pain in neck and shoulders.
Posted 12/5/2018 1:28 PM (GMT 0)
Check for trigger points in the neck. I had two trigger points at the base of my skull on each side of the spinal column. They were the size of marbles. I did the pressing and massaging and the knots got smaller and then went away. I could now turn my head! But feel along the back and sides of your neck for the knotty trigger points.

Sherrine
Posted 12/6/2018 6:30 AM (GMT 0)
I know how you feel,feel free to post here.

Try to get same job PT as it will help with fog and stress.

I am looking for part-time job as well.

My fatigue is severe.
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