Gastroparesis and now Fibromylgia

I'm thinking your gastroparesis is from your Fibromyalgia.

thank you CathyA and Sherrine,
My is idiopathic so maybe the fibro came first. I'm going to have to try smoothies/protein shakes. i think ugh that's a lot of liquid but if i do it thru out the day that might work. i think i am definitely laking in nutrition again. would essential oils help? I use then for migraines and sinusitis. i'm sure there are some for inflimation. thank you so much for the help. still feeling over weal med.
Mammapanda6

Hi CathyA,
i will have to look into the SIBO, I have gastroparesis, gerd, Eosinophilic Esophagitis, IBS c&d, fibro. my body has never done well processing any nutrition even as a baby. i have come to realize i've had a lot of issues since i was born but in the 80's nobody new anything about what i was going thru and could not help me i was labeled failure to thrive.... anyway. i was throwing up over 30 times a day and my doctor told me ether a feed tube or we could try something that is just being developed at that time he had only done about 1,000 stemulater surgury's. he put in a temporary one and i had little to no vomiting, nausa, i was actually able to eat a little. it was in for a week. i went in got it taken out .....a 2 minute procedure. my husband and i barely made it to the parking lot and i was already throwing up. took me 5 minutes to stop . called the dr. in the car on the way home and told him i wanted the surgery.
there is a battery pack and its maybe an inch by inch just below my right rib. there are 4 leads or lines that go from there to the outside of my stomach. and the device has different settings like low med high. once it is in I go to the dr. he puts a device over the battery pack and it gives him all the info he need and he can adjust the pulse as needed. it makes my stomach contract at intervals since my stomach doesn't know how to do that anymore. it can last 3-5 years depending on how high the setting is. my first one lasted 6 years. and it only had to be replaced because one of the leads broke. the battery was still going dr. said it could have lasted a lot longer. but becuse he was in there he just replaced everything. that was 2 years ago. i would not be doing as well as i am with out it. i still have nausea and vomiting about 1 every few months and on few occasions here and there. when i start throwing up and neausa consistently i know something is wrong and i eather need to have the dr. change my setting or the battery/divice need looked at.

here is the link for information on the stimulator
https://www.medtronic.com/us-en/patients/treatments-therapies/neurostimulator-gastroparesis/what-is-it.html

CathyA,
I am 42 I had a hysterectomy about 2 years ago. my dr. said it may have been the fibro that was making my periods so bad from the beginning of puberty, we just didn't know it. my dr. has tried different replacement hormone therapy's. non have worked well and the weird thing is my testosterone has been very high. as far as testing i really haven't been tested for anything. i do get my prolactin level tested every 6 months but that is because i had a protactinoma removed in 09. i would say medical help in my area is very sparse. it took my husband almost 1.5 years to get in to a rheumatologist because we have such few doctors. he just had his first dr. apt. in september.

CathyA,
through the ringer is so true, when i tell people they think i am making all this up because nobody could have this many issues. so i usually don't share anything
I have had stomach emptying test,a spinal tap (that was to rule out other things before a migraine diagnosis), bone density test, several EDG's. i think that's about it. I have my primary care doctor, and my surgeon for my gastric pacer. I've just been trying to make it. i was talking to my mom i told her i think i have had all these issues since i was born but nobody know what was going on. I have always had medical issues. but the big problem is i don't know my family medical history and i cant get access to it.

Hi CathyA,
My joints usually hurt. I use to walk around 5 miles a day but i can barely make it around the block anymore. My hair is definitely thinning and i am losing a lot all the time when i brush it. nails are somewhat brittle. I have had no allergy testing i don't know if my insurance would cover it. I have not had ct since 2015 i think. I can't do mri because of my simulator the magnet would rip it out. My bio mother did drugs and drank while pregnant with me. i was born with fetal alcohol syndrome. thankfully i don't have the facial deformity or body deformity that some people do with fasd. but my mom worked really hard to get me moving and talking. I am adopted so i don't know any family history. but i think the damage from my bio moms habit really messed me up more then my adopted parents realized. I have always had medical issues from the day i was born.