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So where is the Lyrica sleep?

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Posted 7/29/2008 4:12 PM (GMT 0)
I was getting such good sleep these past few months after going on the Lyrica,barring bad pain nights but the last week has been rough.  Even when I finally got my bed just right still no sleep!!  I am still getting the pain relief that the Lyrica was origionaly takin for which was that relentless burning leg and ice cold foot pain I had for months but it seems like most of the other pain that the Lyrica took care of at first is not working any longer.  WhenI first started the Lyrica I got almost complete pain relief head to toe.  I am talking most of the muscle and joint pain as well as the leg pain and it was wonderful!!

 

Looks like that party is over now as I have had even more muscle and joint pain these last few weeks then ever before.  I pray that the leg and foot pain doesnt return as well because that was the what I called the "last straw pain".  It was pain that put me over the edge sanity wise because no matter how much pain meds I took it was uneffected and it hurt so terribly bad.  Its funny how with some pains you think that is the worst it can get and if you can just get through the day or night it is happening that things will get better.  Then a new pain comes along and rears its ugly head and this time it doesnt go away completey and you know the signs of it and that it is going to be there like clockwork every single afternoon and night and the thought that this

could be for the rest of your life makes the thought of each coming day unbareable.  That was the leg and foot pain I had.  So ya,I'm afraid right now. 

 

I guess all I can do is pray for the best outcome and that it will stay gone,cause as much as I have overdone it and thrown myself into flares repeatedly at least I knew that was my fault and it was something I could control by slowing down.  I couldnt control the other pain and that makes you feel so darn helpless and terrified.  I sure do miss the sleep though lol I am getting downright loopy lately.specially when I have things to do for the day like today.  I am meeting with my daughter and grandkids for the day and I am soooooo tired right now.  It's like coffee don't fail me now =O  there is that darn wierd font again!!!  I dont know what it is I do but I must hit something then all the sudden the font changes.  At least I know it's not just me.  I have seen it happen to several other members as well.  OK got to go get in the shower.  Everyone have a great day with little pain and high spirits!!

 

Soft Hug's,

Karen

Posted 7/29/2008 4:34 PM (GMT 0)
Karen, this time of year is the worst for me.  I don't know where you live but I find the humidity and rain is a killer for me.  Even though I'm taking malic acid, I still can get miserable at times...for no reason execept the weather.  (But I'm better than I used to be before the malic acid.)  I know that when fall comes, I will be much better again.  So, I bet you only have a couple of months before you start to feel better again.  I  hope so!

 

Sherrine

Posted 7/29/2008 4:50 PM (GMT 0)
Karen, I'm glad your feeling better.  I was really worried about you there for a while.  I'm so glad you've got all these wonderful sharing and caring people out there in Fibroland being there for you in the bad times. I don't know what I would have done without them in those couple of weeks that we thought my dh had lung cancer.  They are all awesome!

 

Maybe if you pace yourself, you won't have such bad flare ups.  Take care of yourself.  You are in my prayers.

 

God Bless!

Shannon

Posted 7/29/2008 5:11 PM (GMT 0)

Karen,

I will be praying for you.  Praying that your unbearable pain does not come back!

I hope the coffee does the trick today and you can enjoy your day with your daughter and grandkids.  I rely on coffee everyday to get me moving; gotta love the strong coffee.

All the best!

Meggie

Posted 7/29/2008 5:23 PM (GMT 0)

Karen, may I ask how long you've been on Lyrica and what dosage?

I've been on since Sept of 07, was on 450 mg, but backed down to 300mg since it made me toooo sleep during day. Also, some of my pain is coming back too and I'm not sleeping as sound as in the beginning. These are issues I will talk to the new rheumy I go too in Aug. Meanwhile, I'm having the burning toes and leg pain to deal with also.

I hope we find some solutions. Take care!

kaymac

Posted 1/18/2012 11:17 PM (GMT 0)
I will say I was on lyrica 75mcg x2 a day at night.  It to made me very sleepy durning the day.  When I first took it I thought this is great something that not only helps with the pain, but definately helps with the sleep.  That was really all it was good for when I took it.  I was on it for almost two years.  I had a lot of side effects from it and it wasn't helping with the pain as much as I wanted it too. Now I'm back to daily pain and back to my strange sleep habits/routine.  I don't think there really is a cure for this.  I wish there were a cure.  I wanted Lyrica to be the answer but all it gave me was swelling, blurry vision, weight gain, and shortness of breath.  Since I stopped most of that has gotten back to normal except my weight.  I"m going to have to work on that one.  Maybe one of these days they will be able to find a cure for FM.  I just can't see how they aren't able to do that. 
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