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Fibromyalgia
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Posted 11/25/2008 9:32 PM (GMT 0)
Hi-- I am 25 and have been suffering w/ FM symptoms since I was 16, at 19 they hit hard and I had a hard time convincing Drs that they were real. I was finally diagnosed this past year, they tried treating me w/ Ultram, which I am allergic to. Then Darvocet which doesnt help at all! And now I am taking Soma 4 times a day, and am prescribed darvocet 4 times a day too, but I only take it at bed time w/ the Soma to help me sleep.

You name a FM symptom and I probably have it, the biggest things I am dealing w/ at the moment are pain/stiffness/acheiness, forgetfulness, moodiness which I think is due to my biggest issue, which is sleeping.. the meds help me fall asleep which I couldnt do before, but I wake up a lot and wake up feeling like I havent slept at all, and in alot of pain. Then b/c of that Im short tempered. I have called my Dr, whos nurse suggest I also take tylenol PM at bed time, that seems like a lot of meds.

I try and walk every day, I eat very healthy, I take warm baths before bed and hubby is great about massages, warm blankets... I need more ideas. I have a 19mth old and a 4 yr old, and I hate not being the mother I want to be to them.

My drs office says these are all symptoms of FM, that I need to get used to, but there has to be a better way to deal with them.. I cant imagine being grumpy and in pain every day for the rest of my life, never feeling rested.

I need help, please :)
Posted 11/25/2008 9:55 PM (GMT 0)

Welcome!

So sorry you are having such pain and with little one's to take care of. Everyone here is great and I'm sure you will get some good advice soon.

Try reading the Fibro 101 thread. (2nd from top) It has alot of information and things you can try to help. I don't know why your doctor's office would tell you to get used to it! They sound like they are telling you to give up and there are things that will help.

I went through the waking up all night, still do sometimes, but I did find out I had severe sleep apnea. Getting treatment for that has helped alot. I always try and take a hot shower or bath in the evening.(which I see you already do) It seems to help me relax.

Another thing that has helped me is the stretching exercise mentioned in Fibro 101. I hope you can find more that helps and I would also let the doctor know that you are not getting rest at night. If he won't help, maybe it is time to get a new doctor who is familiar with Fibro and can help you.

Good luck & others will be along to give you good advice.

Hugs!!   Margie

Posted 11/25/2008 10:18 PM (GMT 0)
Hi, thank you! I read the 101 and I think I may try the supplements.. maybe they will help some.. the Dr. I see is suppose to be the best in the area! He was really nice.. maybe its his office staff that are the problem. I dont know if its worth making an actual appointment with him.. he wrote a letter to my pcp and said that he should be able to handle my treatment, but my pcp did not feel comfortable doing so.. so Ive been playing phone tag w/ the Rhum. Drs nurse--- I feel like she thinks Im some kind of drug addict but all I really want is something that will help me!

I am currently looking for info online to share w/ my hubby.. he understands a little, but not fully... like today the house is a mess, but thats bc I used all my energy taking my daughter to a from school, and taking my little one to get an xray by the time I got home, I was soo tierd and stiff, its even very hard to type..

Im very happy Ive found this site :)
Posted 11/25/2008 10:44 PM (GMT 0)

My doctor's office staff is that way too. They make you feel as if you are asking for too much. I hate that!

Have you read "the letter from Fibromyalgia"? It is posted on here. I think it is a really good piece to show to family or friends to help them understand. I also like going to Webmd online. It has some good information about Fibro and printable sheets too.

Hugs!!   Margie

 

Posted 11/25/2008 10:49 PM (GMT 0)
Ill check out the letter thanks :)
Posted 11/25/2008 11:56 PM (GMT 0)
Hi Mouse7R:When i was first diagnosed in 1994, the only treatment being offered was Amyltriptilene, at bedtime. It will certainly get you sleeping and helps with the pain also. Some people give up on it fairly quickly, because it causes dry mouth, a kind of hang-over feeling in the morning, and sometimes you feel like you're in a daze for most of the morning. However, if they start you on a very low dose, and slowly titrate up, as well: you should take it at least two hours before bedtime, it might help. I managed with that and OTC tylenol 1, for eight years.best of luck, to you.

Posted 11/26/2008 2:31 AM (GMT 0)
Hi Mouse7R,

Welcome to the fibromyalgia forum. I can see that you have already gotten some good advice. I am glad that you read fibro101.

I am currently taking the malic acid/magnesium supplement and it has worked wonders. I hope that you try it and that it works for you too. I also take norco (strong vicodin) and soma. Ambien for sleep and adderall to stay awake and functioning during the day. I take antidepressants and other medications for other things. But the ones I take for fibro do help.

I hope that you can find what is right for you.

Hugs, Karen
Posted 11/26/2008 5:31 AM (GMT 0)
This is my first time in here so please bear with me as I try to explain my situation. I have awful muscle spasms in the stomach and then severe pain in the back and rib areas. My dr told me that I had Fm but from I have heard from different ones is that Fm is mostly in your legs. Does anyone kn ow how to relieve these pains? They are at a 10 most of the time and there are times I just sit as stiff as a board. Are these true systoms of Fm? Please help me. I want my life back. I never feel like doing housework or even going to the store. I am almost 63 and don't want to even think of suffering like this the rest of my life. Thank you.

Posted 11/26/2008 6:43 AM (GMT 0)
Hi and welcome!!

First of all...Mouse, you might consider a referral to a pain clinic. They can help put together a plan that includes all kids of help, not just meds. There are so many things to try to make your life easier. If at any time you aren't getting the care and respect you deserve don't hesitate to find a medical team who will treat you properly. Good luck!

Hi sanbak...and welcome! Fibro pain is not restricted to the leg, nor most common there. It's actually most common in the neck/shoulder area...from what I've read. To have a diagnosis of fibro technically you should have pain in all 4 quadrants of your body...top half, bottom half, left and right sides. But good doctors know fibro when they see it and aren't as particular as others in counting Tender Points, etc.

There are lots of tips on relieving pain depending on who you ask. For me I need to hit the recliner and add heat to my legs. If I am on my feet too long the pain lingers for hours and sometimes days. Pace yourself. Also, some people like very gentle massage to relieve pain. Just make sure they aren't too vigorous. Someone who doesn't have a good knowledge of fibro can do damage. The stiffness is also part of fibro but you can work it out most days. Don't just sit all the time...keep moving. Doesn't have to be fast or far ... just keep moving. Pace yourself, ask for help with chores, and in general pamper your body. Easy to say, not easy to do.

Please ask whenever you have questions and hopefully someone will be able to respond with a helpful answer.
Chutz
Posted 11/26/2008 1:51 PM (GMT 0)
Hi Mouse and Sanbak and welcome. Sanbak I do not have that much pain in my legs mine is mostly waist and up. Moist heat of any kind. I hope you both get relief soon.

 

luv and hugs

Marlee

Posted Yesterday 3:15 AM (GMT 0)
get a sleep study done, I have had fm since I was 17. I am 21 now. I just had a sleep study done, and have severe sleep apnea as well. They gave me ambien to sleep, which makes me feel a little funny but I sleep soundly and don't wake up as if I NEVER slept at all, and I wake up pain free (because my muscles actually get to SLEEP, not just a "rest")
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