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I can't stay awake!

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Posted 1/8/2009 6:03 PM (GMT 0)

I have been having a really bad 2 weeks. My feet are swelled and look like baloons. My pain in the neck and shoulder area is worse and causing me to have headaches. I also have been falling asleep alot.

 

I have picked up a glass to get a drink and fallen asleep before I get the glass to my mouth. (that has happened 4-5 times) I pick up a cigarette and fall asleep before I  get it to my mouth? My desk has about 20 burn marks & so does a few of my pajama tops. I am starting to get scared. I have always had a problem with fatigue, but it seems to be getting worse!

 

I tried to get in sooner to see my Rheumatologist, but have to wait until next week. I guess I just wandered if anyone has had it that bad. I'm even getting afraid to drive because I fight to keep my eyes open when I do. The fatigue is all the time. Even after I first get up in the morning.

 

I've always had problems with both of these symptoms, but not like this. Thanks for listening to me ramble. I guess it is bothering me & since I can't talk to my doctor yet, it feels good to just talk about it with anyone!

 

Hugs!!    Margie

Posted 1/8/2009 6:10 PM (GMT 0)
Hi Margie,

I use to have that problem also. But I started taking adderall. That is something that you might want to consider. Adderall is a dextroamphetamine. It really helps a lot. Otherwise I would be sleeping all day and night. There are other types of stimulants too that you could try such as ritalin and provigil. Talk to your doctor. It is dangerous driving when you are full of fatigue. I fell asleep and took out the passenger side mirror of my vehicle.

Best wishes for a wonderful energetic day.

Hugs, Karen
Posted 1/8/2009 6:26 PM (GMT 0)
Karen,

Do the stimulants interfer with how any pain meds work? I notice if I drink too much coffee that I dont get nearly the pain relief from my meds that I would otherwise.
Karen
Posted 1/8/2009 10:54 PM (GMT 0)
Hi Margie,

Yes, I have battled very vad fatigue, I actually have avoided driving also because of it from almost falling asleep at the wheel a few times.

But I've had a bad 2 weeks or so also!! But I've been having the opposite: I'm slightly manic from my bipolar disorder(and I say slightly because I am on meds for my manic side, so it isn't as bad as I once was), so I've been having horrible insomnia!!! I have bags under my eyes sad But it's also frustrating because when you're manic you want to run,run,run, but in my case, I've been in so much pain, I'm even limiting my walking because of my heel pain... So I'm manic with such restlessness and energy that my body can't take to do anything about it!!

Sorry now I am rambling lol

I would definately talk to your doctor about your fatigue!! And limit your driving as much as you can!! It's better to be safe than sorry!

Take care! Keep us posted on how you're feeling!

xoxo

________________________________________________________________

21 years old

Fibromyalgia, Bipolar Disorder, OCD, Irrational fears

Posted 1/8/2009 11:01 PM (GMT 0)
Hi Margie,

I was having such a problem with staying away, partly because of the pain meds. So I asked doc about trying Provigil and he was glad to give it a try. It does work very well for me and doesn't interfere with my pain meds at all. I do have to be careful not to take it too late in the day or I'll be awake into the night. It does seem to be dose sensitive. At 50 mg it helped a bit but at 100 I'm just about where I'd like to be....awake and not feeling medicated. Would prefer to be a little more awake but sure don't want to 'buzz' or stay awake all night.

Hope this helps,
Chutz
Posted 1/8/2009 11:04 PM (GMT 0)
Karen,

My doctor told me that the stimulate would cause more pain. But whether it has or not, I can't tell, because I am always in pain. But it is worth it to be able to function during the day. It is worth a try.

I hope that you have the opportunity to try them.

Hugs, Karen
Posted 1/9/2009 12:55 AM (GMT 0)

Thanks everyone for the advice. I will definately talk to my Rheumatologist next week and see if I can get something to help stay awake.

It's either that or burn my house down and I also need to drive!

JCgurl: I also have terrible heel pain, sometimes I can't even touch them because they hurt so much.

Hugs!!!  Margie

Posted 1/9/2009 3:41 AM (GMT 0)
I have been spending so much time feeling either disoriented or so tired or memory so bad that I have been trying a combination of stuff that is actualy working quite well. I am clearer, more balanced, not tired and I think over time my memory will improve. Its a little better now with the improved clarity, but I think the memory is probably the slowest thing to come back. I am not sure, but I think some of it has to do with circulation to the brain. I took some of it from Sarah Myhill's idea's and some of my own and changed the dosages around to what I wanted. I still don't know whats doing what, but its working for me. I even get out of bed clearer. Oh, and coffee doesn't work for me. It actualy makes me feel even more disoriented, which is why I think this is brain circulation and maybe cellular energy.

I am taking this in the morning.

3 grams - Vitamin C as ascorbic acid
300 milligrams COQ10
500 milligrams Niacinimide
1000 milligrams L-Carnetine
1000 milligrams Acetyl L-Carnetine
600 milligrams Magnesium Citrate
6000 milligrams D-Ribose

4 hours after the first dose I repeat it minus the Niacinimide.

Its working for me so far and doesn't seem to interfer with the pain killing effect of the meds, but it does seem to conteract the the drugged out feeling, and it mostly wears off by night time so I can sleep. This seems to take several days before it really starts to work well. Wish I knew and could tell you what the most important parts of this are, since most of these are expensive supplements, especialy at these dosage levels.
Posted 1/9/2009 4:30 AM (GMT 0)
I know it is hard tobelieve but exercise improves my energy levels. When I was stuck in the house for over a week due to snow during the holidays, I must have taken 3 naps a day and I never felt like I had energy.

My daily exercise does more for me than any supplement has. However, I never tried Provigil. I have sleep apnea and it is recommended for that. I wish I had known about it years agao.

Sore heels?

A reputable running shoe store or department can help. Running shoes really help all types of foot problems.

Donnaeil
Posted 1/9/2009 8:48 AM (GMT 0)
I to fall asleep all the time, I have dropped countless cups of tea into my lap, my family treats me as if I dont exist and it is becoming a major problem.    sue2z confused confused
Posted 1/9/2009 2:58 PM (GMT 0)
Donnaeil, I seen something about all the flooding in the northeast and was wondering if you got to the pool or was doing your swimming in your back yard. devil

 

I have not had the problem of falling asleep all the time but it sounds quite dangerous. I was envious of those that could lay down and sleep anytime or anywhere but now I'm not.

 

Be careful Margie til you get to the doc.

 

luv and hugs

Marlee

Posted 1/9/2009 3:18 PM (GMT 0)

Hi Margie-

Be careful till you see the Dr. - Yikes! I don't know if you live in the northern states, but the winter has been BAD and lately all I have wanted to do is sleep. My coffee in the morning has not even been helping me. I wanted to get to the Mall and walk this week but had a root canal done and have not felt well. Should feel better next week so will start then.The cold has made my pain much worse also.

Hope the Dr. can come up with something for you soon, let us know what he says-

GamJill 

Posted 1/9/2009 3:51 PM (GMT 0)

Margie..

Please be careful till you get to the doc.

I'm like Marlee... always envied those who could just dose off.  If I take a nap its a major deal.. it takes me forever to fall asleep, so it's usually a 2 hour deal.  But I've been exceptionally tired this winter. 

We're in for another 8-10 inches of snow between now and tomorrow afternoon..so I have a good excuse for snuggling in for a "long winter's nap", today... like right now.. LOL!! ZZzzZZzz

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