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Posted 3/26/2009 11:50 AM (GMT 0)
I just need to write........have had a flare going for 3 months since my brother died, and was getting over it pretty much about a week ago. Went back to the hospital volunteering, was getting out every day, doing normal stuff.  Wasnt without pain, but I managed and paced myself.

Yesterday the flare came back  full force.  I could hardly move off the couch, had a headache (never get headaches), hardly ate anything.  Went to bed and slept for only two hours because the pain was so bad.  Nothing has happened that would bring this on.  Only thing I can think of is the weather. The humidity was 100% for the past few days, went from the

20's to the 40's and rain, rain and more rain.  My husband was out of town yesterday, and I played on the computer, and watched TV.  That is just not me!!  I am so frustrated and am still hurting as I write.  I am actually starting to believe the weather plays a big part with this fibro.

Just needed to vent.

Hugs

Sue

Posted 3/26/2009 12:06 PM (GMT 0)

Awwww.. (gentle hugs, Sue)

I think flares and weather go hand and hand.  It does for me, atleast.  When its too cold.. Flare, when its too hot, Flare.  When its been raining for days on end..ANOTHER FLARE.  And sometimes, there's just no reason at all.  The other day I was hurting A LOT, my husband said "what did you do to bring on this pain??"  My reply was, "just breathing.  I didn't do anything.. it just happens."

Sorry you're having a rough time.. just wanted to give you a supportive hug and let you know, I'm here if you need me. 

Oh and I also wanted to give you a huge pat on the back for volunteering at the  hospital.  The country needs more volunteers, thanks for pitching in and sharing yourself with those in need.

Warm fuzzy hugs,

Posted 3/26/2009 1:20 PM (GMT 0)
It may actually be that the barometric pressure changes and we fibromites are hyper sensitive to everything. I know a weather change seriously hurts me.
Posted 3/26/2009 1:48 PM (GMT 0)
I'm sorry Sue (((HUG))) I know the weather plays a big part in the way I feel. I looked at the forecast and it's either going to be raining or cold for the next week. sad Both are depressing to me.

 

No matter what is causing it I hope it ends soon. Keep the heat on you and treat yourself to some nice warm baths.

 

luv and hugs

Marlee

Posted 3/26/2009 2:14 PM (GMT 0)

Thanks ladies.  I actually went back to bed after I posted, and I NEVER do that.  Probably because my husband and son are out of town, and I dont feel guilty.  I decided I wont let this flare get to me. I took a hot bath with epsom salts, used the Fibro towelettes(Patsie, yep, still working), put on my best jeans, a nice warm sweater, put on full makeup and did my hair really nice.  And know what?  It made me feel better.  Sometimes I think I have to just stop fighting this and go with the flow.  I know there will be pain, some days more than others, but the stress of not knowing when a flare will hit or how long it will last, really plays havoc with my mental being.   So, I WILL make the best of the day, despite the dreary Michigan weather.  I wont over do, but I will get out of this house and head to Starbucks.  Next Wed my husband and son are going to Florida for six days,  so maybe that will let me relax a bit.

Patti, thanks for the kudos for volunteering.  I work with a gal who is only 45 and I am 59 and we have a ton of fun.  We run the front desk of the hospital, answer phones, deliver cards and flowers, and believe me, it sure helps the mindset.

Marlee, your a sweetheart.  You already know I think the world of you.

Ok, I am going to make it the best day I can.  I may end up back home in an hour, and take a nap, but I have to fight this!!!

Hugs to you all

Sue

Posted 3/26/2009 2:16 PM (GMT 0)
{{{{{{Sue}}}}}}

I definitely think weather plays a part. I am just now feeling like I'm coming back to life after our horrible harsh winter.

I am glad to hear you're feeling a bit better today. I agree that sometimes you've just got to fix yourself up and get out and do something-anything!-just to keep yourself from falling into too bad of a funk. I hope you enjoy your outing, no matter how long it lasts :-)
Posted 3/26/2009 3:10 PM (GMT 0)

Jeez Sue, I am learning real fast that weather plays a part in how I feel. Winter/the cold just about did me in! Most of this week cloudy and rainy here too so more pain! shocked

Like you said when "the guys" head to Florida for six days, take advantage of lots of do what ever you want to do time! HEY- why are you not going to sunny, and warm Florida with them????? cool

GamJill

Posted 3/26/2009 4:22 PM (GMT 0)
Yes I have noticed a corrolation between the weather and my fibro. I definitely feel worse when it's damp and/or raining. I live in California where we have two seasons - wet and dry. The winter (rainy season) is torture, but summers (dry season) are relatively decent.
Posted 3/26/2009 4:33 PM (GMT 0)
Hi Sue,

I'm so glad you got up and got out. I think the weather has a big impact on us. My recent trip North proved that!!!!

This morning I forced myself to my piano lesson and was so glad I did. I thought about canceling but thank goodness I didn't. Used my towelette before I went. Also breezed in to Starbucks!!!!

We have the volunteering and home keeping in common. I have always done some volunteer work and am trying so hard to train my new pup to be a nursing home visitor. He is a bit young and still "mouthy" but I think he will be great. My last standard poodle volunteered for years. When he was 11 I retired him. As I was loading him in my car he looked up as if to say "not one more old person can rub my head". I got it and cheered him for the years he devoted. He lived to 15 1/2, a full great life.

Got off on a tangent.

Take care friend, Patsie
Posted 3/26/2009 10:26 PM (GMT 0)

Thanks for all your posts ladies.  I did go out today for about 2 hours, but came home exhausted. Tried to nap, but the pain was so bad. I knew my husband had some 800mg of motrin prescribed by our dr, so I was desperate and took one.  Ohh my, what a difference.  I could actually feel the pain start to melt away, especially in my lower back. So I called my dr and asked him for a script.  He just called and he WILL NOT let me take them.  I was SHOCKED.  I told him I needed something for pain and over the counter drugs dont even touch the pain.  I do not have any medical condition that would stop me from taking this ONCE in awhile.  He said continue with your vitamins and heat treatments.  Yeah, easy for him to say.  Now what????  I am so mad at him, I feel like switching drs, but have been going to him for nearly 20 years.  I just dont get it...........

sorry for the ramble

Sue

Posted 3/26/2009 10:49 PM (GMT 0)
Hi Sue,

I was once told by my Dr. that there is no difference between taking 3-4 regular ibuprophen tablets and one motrin 600/800. She said it was fine for me to take them that way when needed.

Not sure why the Dr. won't let you take the Motrin's. Do you have high blood pressure? My dad was told by his Dr. to stop taking ibuprophen because it raises blood pressure. Did you as your Dr. why he won't let you take them? Seems a bit odd to me, especially if you have no health concerns other than fibro.
Posted 3/26/2009 10:54 PM (GMT 0)
Daniele, no I have no blood pressure issues, actually it is only 107/75. He said it was too harsh on the stomach. Its not like I am going to take it every day. Just when the pain is unbearable. I have taken motrin over the counter, sometimes 6 a day, and it doesnt work. I just had complete physical in Dec and all my blood work was just fine. I just dont know
Posted 3/27/2009 5:18 AM (GMT 0)
These doctor's/ I wish that when they said no to something they will offer something else. Grrrr

I hope you are able to relax and begin feeling better. Sometimes the weather puts me under.

Donnaeil
Posted 3/27/2009 10:35 AM (GMT 0)
Hi Sue,

That is just ridiculous. He has to know your history and knows you won't abuse it.

Get this, my son wants me to check for Lymes disease b/c I have the NH home and spend so much time in the woods and gardens. Plus I have many symptoms that are confusing, mainly the fasciculations in my calves. Well, I had the one blood test that was negative which I now understand is common. Long story short called my internist yesterday to repeat and do the newer antigen test and he dismissed me with a chuckle that it was totally ridiculous that I could have Lymes and he would not do it. Why on this Earth would you not be willing to redo a test!!! Talk about furious. My son nearly came through the phone. He said this doctor better not be wrong!!!!

Now I have to try to find a doc that will take this seriously.

Oh don't get me going about doctors.

Take care and do feel better,

Patsie
Posted 3/27/2009 11:53 AM (GMT 0)

GEEEEEEEEEEEZ Patsie!!!!

What the h-e-double toothpicks is wrong with your doctor?????  That's insane!!!!  (BTW, did you get my reply on your email?)  Can you go to a "Doc in the Box" aka Urgent Care clinic and just ask for the test???  I just can't believe your doctor won't do the test!?!?  What a nim-rod!!  I'm sure you spend plenty of money at that doctor's office, I can't imagine why you would be refused on a request for a test.  Is Lyme unheard of in Florida??  I would think with all of the snowbirds they would deal with Lyme a lot!!!

WOW!!! shocked

Posted 3/27/2009 12:42 PM (GMT 0)
Wow Patsie, sounds like you need to go talk to him or go elsewhere. Dont understand the big deal in re-running a test??? Does not make sense at all.
Some of these drs......arghhhhhhhh!!!!

When my husband came home last night I told him I took an 800 motrin. He said I looked much better, so he gave me the bottle. I just called my pharmacist, and she told me to cut them in half, so I will be getting 400 at a time, take with milk and I should be fine. Then take the other half before bedtime with milk.

Sometimes when drs call on the phone they make you feel like we are bothering them, and that just isnt fair.

Patsie, I dont blame your son for being upset, and that Dr BETTER BE WRONG!!!

Take care my friend

Sue
Posted 3/27/2009 1:13 PM (GMT 0)
Hi Gals,

Lyme is very very rare in FLA but I told the numb skull that I have a home in NH and spend almost all summer there. He said oh no, that wouldn't make a difference. He said you have classic Fibro and that's all you have. Well it must be nice to be GOD!!!

Yes, Patti I got the mail and was still fuming when I read it. Thank you.

I have researched the Lymes and did not know, per Wikepedia, that it can be months or years before symptoms show. My point is I was much older that the average person with the onset of Fibro. Now that is not definitive of course but nonetheless a factor.

Well I have to find someone to do the test and will check that idea.

Thanks and hope you are feeling much better, Sue.

Patsie
Posted 3/27/2009 1:20 PM (GMT 0)

Sorry to hog up your thread - Sue.

YOU GO Patsie, GIRL.  Get someone else to do it.  Next time I'm in Fla. (which probably not be for like 100 years).... I'm gonna go kick that doctor in the butt!!!!  I'm fuming, too, Girlfriend.. that's almost unethical!!!

Hugs for now!!!

Posted 3/27/2009 1:28 PM (GMT 0)

Patti (aka Maria LOL), your not hogging my thread!!!

Patsie, I had to laugh when you called him a numbskull!!!  It sounds just like something I would say (have said worse, but wont go there).

I also thought I was a little old to get Fibro, I was 58, BUT, I have had symptoms for years, but the dr said it was just anxiety...DUH, they do hand and hand.

I wish I could write a book about drs.........when I went to see mine in Dec, three weeks after my brother passed, he said "so, whats new?" I said I am having a very hard time dealing with my brothers death.  He said "What?"  Well the NUMBSKULL had just called me in a script for Ambien the week before (which never worked), and I guess he didnt write it on the chart. I think he was veryyyy embarrassed. I wasnt looking for sympathy, just could not believe he would not chart something like that.

Hugs to you all

Posted 3/27/2009 2:49 PM (GMT 0)
Sue,

I was sitting here thinking about this precious waitress at a little coffee shop I like. She knows more and cares more about me than my doctor. There is really something wrong with this picture in our country.

One more point, don't you just love the phrase "check with your doctor before......." they don't even know who the hell we are.

I have been going to my smuck for over 10 years and have rarely asked him for anything extra.

Think I will meditate now. Patsie
Posted 3/27/2009 2:55 PM (GMT 0)
Patsie
Drs take on toooooooo many patients. I walk in his office, and there are hardly enough chairs. I dont have to wait long, there are 4 other drs, BUT, once I am in there, I am usually out in 15 minutes for a 6 month cholesterol check, and my complete physical is less than 40 minutes. He hardly will answer my questions, and runs to the next waiting patient. I guess thats good, because if there was something wrong, it would take longer, BUT, geeeez, I have questions for him.
He tells me "let me worry about that". I had to beg him to tell me what my BP
was last time. Its always low, but I still want to KNOW. Its my dang body and I have that right. Ok, enough of my rant. Whewwwww, that felt good!!
Posted 3/27/2009 3:00 PM (GMT 0)
Sue,

Welcome to a society where insurance companies run our medical lives. The doctors are only allowed 15 minutes per patient regardless!!! They triple book to make the money!!

Patsie
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