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Normal MRIs, bloodwork

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Fibromyalgia
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Posted 5/8/2009 2:21 PM (GMT 0)
Hi all,

I posted a thread a while back (https://www.healingwell.com/community/default.aspx?f=24&m=1427795&g=1429047#m1429047) before I got my results, wondering if I had fibro.  I am still not sure.  I'm a 29-year-old male.  MRIs of brain, spine, and shoulder (first symptoms appeared in shoulder) all came back normal.  All my bloodwork came back normal.  Auto-immune, liver function, etc...

Symptoms began at the begining of March.  I've had aches and pains from head to toe at this point.  They are mild.  This is why I'm not sure what is going on, as most of the people who have fibro seem to be in pretty horrible pain all the time.  My shoulder was the first part of my body to have pain, and that actually was pretty bad...preventing me from sleeping and doing much of anything.  In time, my shoulder got better.  I experience a lot of muscle twitching.  I do have pains in my arms, elbows, knees, pretty much everywhere, but they are very fleeting.  Some may only last for 5 minutes.  A lot of times, I can find a tender area close to the pain.  I haven't been back to the gym yet, I'm a bit scared to go back, because last time I was there was when the symptoms started.  I tried to jog a mile not long ago, and it was rough.  My legs started hurting pretty bad.  However, I was able to do landscaping without issue.  I am mowing and edging the yard without any problem.  Just curious, if anyone has a mild case, or if any of you have periods of time where you are not in much pain.  I have a very clean diet, so maybe that is helping me out here.  I have not been diagnosed with fibro, and have not suggested this to my neuro.  I don't want to suggest anything yet, for fear of them agreeing with me, thus not testing further.  This forum has been a great resource for me.  Thanks for any input.

Posted 5/8/2009 2:35 PM (GMT 0)
Hi Rob,

Welcome if I have not greeted you.

I am a person that suffers very bad aching with fibro. I do not have much pain but this throbbing ache is my chief problem. I display all the tender points and it moves around in me like a rocket. This has always amazed the dickens out of me. I am negative on all bloodwork and neuro testing. Now another anomaly with me I do not suffer from fibro fog. As a matter of fact I was going to do a post on this as I am not at all sure what it is. I assume forgetfulness on a regular basis. All of us in life forget things such as a movie title so not sure what it really is??? Another thing I do not have is extreme fatigue, I sleep like a rock most nights for 9 hours. When I am restless something else is going on in life. My point to you is the very unusual nature of how this strikes people.

Hope I shed some light, Patsie
Posted 5/8/2009 3:08 PM (GMT 0)
Thanks, Patsie.  I don't seem to be fatigued as long as I stay consistent with my schedule.  I don't like taking my zanaflex (prescribed to me for muscle spasms in my neck and back) very much anymore, though.  It makes me much more tired than it used to.  I used to take a half of one before bed, but I just can't anymore, or the next day I will be like a zombie.  This never used to happen.  But, if I stay consistent, and don't take the muscle relaxers, my energy levels seem normal, and no fog for me either.  Interesting.  Sorry about all the pain you are experiencing :( 
Posted 5/8/2009 3:24 PM (GMT 0)
Hi, Rob!  I have constant pain but I am able to keep it under control so I continue to function well.  I work in the yard, take care of my home, cook, travel, etc.  But I will have times when I'm in a flare and can't do all that I can when I'm not in a flare.  My back, shoulders and neck are what bothers me the most too.  Then I'll have times where my hips will hurt, or my knees, or my elbows, feet, hands.  This might hang around for an hour or for months!  I think you've got the picture.  Fibro loves to travel around your body.

 

All of my testing is normal, also. 

 

Sherrine

Posted 5/8/2009 4:28 PM (GMT 0)
Rob,
Not diagnosing here but the fatigue after running is really telling. Many of us have problems with glucose to energy production in the mitochondria of the cells. This is why we often feel fatigue relief from taking malic acid. It helps our cells complete the krebs cycle and convert glucose to ATP and energy. When you don't have enough malic acid there is a slow down in energy production and a bigger build up of lactic acid... the one that makes your muscles hurt.

It would make sense that your lawn work wouldn't be so fatiguing because there are mini rest periods for the muscles between each chore. Continuous running will deplete the available energy and cause pain. Not sure if I'm making myself clear here, but do you get it?

Also, perhaps try 1/4 zanaflex at bedtime? This might be just the correct amount for your pain/sleep issues. Worth a try?
Posted 5/8/2009 6:45 PM (GMT 0)
Hi Rob and welcome if I haven't welcomed you. My pain was light in the beginning and fatigue was the biggest problem. Sadly I can't take the malic acid cause of tummy problems. I found out recently my vit D is way too low and have been taking supplements which has helped a little with energy and motivation. But over the past 5 or 6 years the pain that started more in the back, neck and shoulder blades has spread all over my body and has gotten so bad I'm going to have to consider pain meds cause tylenol isn't helping at all anymore. They say fibro is not progessive but you couldn't prove it by me. Yes, I am getting older with some osteoarthritis but I can the difference between that and fibro.

 

I hope you get a dx soon. It really is better to know what your fighting.

 

luv and hugs

Marlee

Posted 5/8/2009 8:25 PM (GMT 0)
Thanks so much to all of you. I can relate to many of you. The glucose to energy issue is interesting. That's something I haven't come across yet. Thank you, and I hope you all have many pain-free days ahead.
Posted 5/8/2009 8:54 PM (GMT 0)
Hi Rob, I got Fibro when I was 28, nearly 26 years ago. It was fairly mild pain for quite a while and I was functioning fine. Over the years the pain and fatigue have just gradually gotten worse. Now I don't function too well because of the combination of pain and fatigue. I have taken almost every pain medication ever invented, including narcotics, and none have every worked. I am sure fibro is progressive, although it doesn't kill you. Diane
Posted 5/9/2009 4:03 AM (GMT 0)
Diane,
Don't we have a member that says, "Fibro is not a death sentence, it's a life sentence." ? That really sums it up!
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