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Posted 6/17/2009 6:44 PM (GMT 0)
idea  i Fibromites,

I am new to this site and this is my first post.  Just a bit of information about me.

After taking prednisone on/off for about 3 years I developed Avascular Necrosis(dead bones).  I had to have both of my hips replaced, one in 2005 the other in 2007.  Needless to say my fibromyalgia has made it a slow recovery.  I still use a cane today, and I am declared permanently disabled my my Orthepedic Surgeon.

I am on my third round of Botox injections, 13 shots to some of my triger points and both hips.  At first I didn't think they worked, but after about 3 months when they have worn off, I really notice the difference.  It takes the edge off but my pain does not totally go away.  I still need oxycodone, vicodin, and flexeril if I want to do anything like grocery shopping or light gardening.

In addition I have an overactive thyroid, depression, anxiety, ulcerative colitis, etc...  With all of this I have gained about 30 pounds and can't get rid of it due to all my medications.  Anyway, to late to make a long story short, and what I was wondering is this:

Has anyone had similar problems with prednisone, and has anyone tried the botox injections?

Thanks for listening,

Posted 6/17/2009 8:17 PM (GMT 0)
Noklu,

Welcome,welcome,welcome. You have chosen a forum with a lot of wonderful people who all have various experience and a ton of caring.

As for myself, I have had fibro for nearly 30 years and the past ten have darn near done me in, I tell ya. I am familiar with avascular necrosis, because I am a retired RN, but do not have the condition like you do. You poor thing. You must have had your share of severe pain. I really feel for you.

I have not taken the botox, not the steroids either, so I cannot give you any advice there, but all I can do is sympathize. I do however, have the weight gain problem from inactivity and medication. The Lyrica alone, has put 30 pounds on me just this last year and I really really feel it. The depression and anxiety I can relate to as well. I take antidepressants as well and try to keep a balanced level. The stress sometimes affects the fibro and off I go into a flare. I am also on disability.

Well, enough about me. This is your thread and I just wanted to be among the first to welcome you. I hope you continue to post so we can get to know you and you can get to know us.

God bless and gentle hugs.

Lindaloo
Posted 6/17/2009 10:50 PM (GMT 0)
Noklu,
Welcome to our forum! After you have been here a short while, you will be calling it "My forum" also!!lol
Everyone here is great.
I don't know anything about what you asked about, but I wanted to say hello, and welcome.
Posted 6/18/2009 2:00 AM (GMT 0)
Thank you Linda and Vickie,

I look forward to this and know I have a lot to learn.
Posted 6/18/2009 4:06 AM (GMT 0)
Hi Noklu and welcome to our FaMily! You will get lots of support from this forum -- we really do care!
Can't help you with your questions, but wanted you to know this was a great place to ask/talk/vent/whatever......
Have you looked at Fibromyalgia 101? It's at the top of this site, second thread from the top, and it's a must read for newbies -- at least I think so -- it was useful for me...
(((hugs)))
Shash
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