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Posted 6/26/2009 10:04 AM (GMT 0)
Im more than aching- its like all my muscles have been beaten black and blue and my joints are on fire. My mother offered me a massage but my skin is too sore to be touched. The fog is strong right now, i have to keep re-typing this and edit my spelling mistakes. i hurt from head to toe, like my arms have been wrenched from their sockets and jammed back in. Couldnt lift my arm at work today to write on the blackboard (im a high school teacher)- the kids kept noticing i was in obvious pain trying to get through a basic lesson. im so sore, i also kept forgetting how to spell as i marked their essays (not good!).

But its the way i cant bear to be touched that concerns me the most. i feel pummeled and beaten and broken and swollen. and foggy.

Sorry- needed to vent.

Maz XX

Posted 6/26/2009 11:46 AM (GMT 0)

Hi Maz...I just want to tell you how impressed and astounded I am that you are able to teach when I look at all the disorders you are suffering from. (I know...never end a sentence with a preposition!)  You are an inspiration to all of us who don't know how we are going to get through the day.  I am sorry you are in so much pain and if I could offer you more than sympathy and positive thoughts, I would.  Fibro plus anxiety can equal agony...I hope this flare passes quickly for you.

I wonder what the feeling swollen thing is all about?  I feel like the flesh uner my arms (arm flab) weighs about five pounds but it looks the same.  Don't know.

feel better...

huggies

Donna

Posted 6/26/2009 11:50 AM (GMT 0)
Dear Maz,

Wow, it sounds like you have been through the wringer. I know! I got my arm caught in a washing machine wringer when I was young.

Seriously though, I have felt like you with this DD. It is hard to take sometimes. I congratulate you that you can still teach school. I have been reduced to a recliner mostly and taking pain pills every four hours.

I know that feeling of being black and blue and beaten up all over and the skin so sensitive to touch. My husband sits next to me in the TV room in his matching recliner and he likes to stroke my hand or arm and sometimes I just have to pull away from the pain of him rubbing my skin gently. He understands that I am in pain, but it sure hurts me that I have to do that from his loving touch.

Are you on any anti inflammatories?? Anything for pain?? I hope so, you can't go on suffering like this. Some medication may help you through this pain.

God's blessings and gentle gentle hugs.

Lindaloo
Posted 6/26/2009 1:44 PM (GMT 0)
I would say pat yourself on the back for working with the pain but it would hurt you too much. I really don't know how some of you get up and go to work when your feeling like that. I don't know what your weather is like in Australia right now but we are having a heat wave that is affecting me, at least I think that is what is doing it.

 

I hope you get better soon it's hard when every inch of your body is sore.

 

I'm glad I'm not the only one that has trouble forming a proper sentence Donna.

 

luv and hugs

Marlee

Posted 6/26/2009 2:06 PM (GMT 0)
I am always amazed when I read stories like this, because I couldn't imagine getting up for work much less going there and trying to accomplish something. I know about the bruising feeling, I'm going thru that right now also. Give yourself a hug for all that you do. I am very impressed.

Don't they make t-shirts with all the trigger points on them? That way people could see where not to touch.
Posted 6/26/2009 2:14 PM (GMT 0)
Oh Maz! Sounds like you need to start showing some films in your classes! LOL Thats what I used to do when I was tired! hehehe Really, I have to echo what the others said. It is amazing that you are still working! I wish that I could still teach, but the kids in Philadelphia will eat you alive if you are having a bad day and they can even catch a glimpse of it! Not like somewhere where the kids are still sweet and innocent out in the suburbs.
Keep holding your head up. You are a warrior! Get a stool or sit on your desk so you dont have to stand so much. Maybe the blackboard is getting too hard to use right now--do you have access to an overhead projector? Writing on that might be easier for you. Or even consider using more handouts and less of the board or ask for "volunteers" to be your writer (kids love to write on the blackboard). The novelty might make them pay better attention!
I hope the ideas help. I just remember before I stopped working, I tried to find ways to not only hide my DD but also to use it to my advantage--make myself teach in a new way that the kids found exciting. Perhaps you can too...
Hope you are beginning to feel better! We are praying for you!
Posted 6/26/2009 2:52 PM (GMT 0)

Maz, so sorry you are having so much pain. I went thru the fog yesterday, everything I wrote here had to be corrected, most I caught, some I didn't catch. I even wrote a post, only to hit the wrong button and lose it somewhere in time. I just didn't have the energy or 'brain' left to redo.

I had the same problem w/ my arms, couldn't hold them up too long, my shoulders would burn. I also used the idea 'lost' mentioned, have the children come up to the board and write out what is necessary. The overhead projector is an excellent idea, also.

I also get that bruised and beaten feeling all over my body. There are times I have to ask my DH not to touch my arms or head, the sensation is unbearable. Normally, I love it, he has such a gentle touch. He understands, but I still hate saying, Don't Touch.

Maggi, I love the idea of the T-shirt w/ trigger points, but I think we may need full body suits to keep ppl away from all our sore spots.

Donna, I used to worry about grammar, now I try to spend most of my time OCDing on spelling. Some days I am just happy if someone understands what I'm trying to say, cause I get lost in my thoughts or lack of them. Look out, brain on fire. smhair

God bless.  Alice. 

Posted 6/26/2009 8:57 PM (GMT 0)

Wow, you guys are awesome! Thankyou all fore kind words and advice! smilewinkgrin

Yes I am a high school teacher, and its not your average school- its a welfare "last stop before juvenile detention" school with many angry and emotionally agressive teens. its like walking a tight rope. They can be very hostile, but i have formed good relationships with the majority as I have been there for 4 years and know the teens and their problems well. I sit as much as possible, its freezing cold winter here but I have a heater next to my desk which helps. My kids know a bit about Fibro (the seniors) and they help me out wherever possible. they lift boxes of books, tidy up the room etc- they are great like that. I promise to never ever judge your spelling, grammar or punctuation! Even though Im an english teacher, im a sloppy typer and make many mistakes myself. You can be sure your posts are safe with me! lol. Actually the students are curious as to why a 29yr old suffers from something that they consider to be like arthritis- then again, they are curious to talk about anything that will stop them having to learn! Also someone asked about meds? Im on prescription painkillers and anti inflammatories and I get steroidal injections. To be honest, all that barely takes the edge off the pain.

Thankyou ALL. I only work by the grace of God. I get home and I totally collapse. Weekends are my only real reprieve.

Maz XX

Philly- i have been using the OHP like a crazed woman. that way i save my strength and the kids can still take notes.

Posted 6/26/2009 10:25 PM (GMT 0)
Maybe your pain meds aren't strong enough, Maz. What are you on?

I hate to be boring, but are you eating properly through the school day, and are you managing to include any exercise in your day? Toggling these lifestyle factors *might* give you some improvement in symptoms. It's good that you're at work - being around people and doing such useful work must help the feelings of depression etc that come with fibro.
Posted 6/27/2009 10:20 AM (GMT 0)
Maz, I am feeling exactly like you this week. Three cheers for making it to the weekend!
Posted 6/27/2009 2:37 PM (GMT 0)
Hi Maz,

I understand how you feel. I am working a job now, and I go through the same thing. Though I do remember there was a time that I couldn't lift my arms to wash my hair. Those were some rough days. I am glad that is behind me, at least at this moment. Though this morning I feel like I have been hit by a truck.

Have you tried the malic acid and magnesium supplements? They have really helped me.

Best wishes to you.

Hugs, Karen
Posted 6/27/2009 9:48 PM (GMT 0)

getting by said...
Hi Maz,
Though I do remember there was a time that I couldn't lift my arms to wash my hair. Those were some rough days.

Funny you should say that Karen- (well not funny "ha ha" lol) at the moment, i sit in the big corner spa in my parents ensuite bathroom and have a good, deep soak. THEN my mum (who is a nurse) comes in when im ready and washes my hair for me... it goes in cycles, sometimes i can do it myself, but right now i cant even stand in the shower long enough, so baths it is with help from mum. My arms are killing me. I will look into those supplements you mentioned, asap!

Maz XX

Posted 6/28/2009 3:19 PM (GMT 0)
My husband and I both have fibro. Some times when we both are flaring, we both get to the point where we can't lift our arms long enough to shower and wash our hair. In fact, some days, just thinking how much work it is to bathe is too tiring. (btw, don't stand too close in the heat sometimes. LOL)

I can not imagine having the patience to deal with the students during a painful flare!

God bless your mother for being so sweet to help you with your hair. That warms my heart to hear of such a sweet selfless gesture.

God bless and rest when you can. You might want to ask your dr. if you could do a lidocaine pain patch to put on the worst area while you are at school. This way you will not have to deal with the 'drugged' feeling with the pain relievers.
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