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Posted 7/13/2009 10:35 PM (GMT 0)
I have fibro and I need to know id confusion, anger, and worry is part of it, Ive had a bad day and when ever things dont go right I start to get confused and angry and I cant think straight confused Is this part of it and what is it called and what do I tell my doctor next monday confused I now have a headake.

I better go. By for know I will be back online later about 8 pm oregon time..

Thanks and please email me at my address thats in the info page, Im not sure if I can put it on here, let me know Chutz?

or sharrie

and God Bless

sad Ed
Posted 7/13/2009 10:44 PM (GMT 0)
Hello,

I haven't been officially diagnosed with fibro yet, although I have many of the symptoms, but I'm pretty sure that all you've said are part of the fibro. The confusion, as well as forgetfulness, are called "fibro fog". I also have Asperger's Syndrome, a high-functioning form of autism, so the confusion comes not only from the AS, but, if I do have fibro, it comes from that, too.
I hope I've given you some help today.
Posted 7/13/2009 10:46 PM (GMT 0)
Thank you Andrea that did help with some of it I hope to here more from other members.
Ed
Posted 7/13/2009 10:58 PM (GMT 0)
HI Ed,
I know you've been having a difficult time of late and i wish to extend a good cyber vibe all the way from Ireland.
The anger and worry you're experiencing is comman when you are just learning to accept and cope with this often debilatating syndrome. As you said, you are having a bad day and it's days like that, that test you to your limits. You think, 'why me' 'what's wrong' and 'how can i get better'

So yes, it is normal and part of FM. The confusion is indeed 'fibro fog'. It's a contant state of forgetfulness, confusion and if you're walking around like that you will of course be angry at yourself. I have only come to terms with it in the last few months, mainly by the help and support i've gotten here too, and that's only since i joined in the last few weeks.

I feel for you, but you need to find a way that helps you. I understand where you're coming from and i know working on your boats must be harder if you're confused and muddled.

I am seeing someone to rule cognitive/comprehension problems as it has gotten so bad, and i do find it puts my mind at ease if i know it's just the fibro and nothing else.



Take care, boo.
Posted 7/14/2009 12:27 AM (GMT 0)
Ed, I find I'm more confused or in a fog when the pain is worse.  It all seem so interconnected.  And, pain causes depression and that can cause anger.  We all wish we didn't have this illness and could do all the things we want, but that's not how it is for us.  Acceptance does help a lot but still we can get angry or irritated when we can't do the things that used to be so simple for us.  It can be maddening.  So, you definitely are not alone.

 

Yes, put your email in your profile.  I delete email addresses that are put on a post because anybody throughout the world can see it and that can spell problems for you.  But, only HealingWell members can read your profile.  So, that makes it far safer to do that. 

 

Sherrine

Posted 7/14/2009 6:49 AM (GMT 0)
thank you so much for your support, Im going to be up all night again it will be the 4th night.

My friend from chruch told me that prayer helps but it hasent, I just hope I can go to work tomorrow or its going to get harder to make ends meet.
My wife Penny is being stronger then me and thats great.

 Ed, I deleted your comment out of your post so no one else reads it and is offended by it. We are here to help each other with fibro and it really doesn't matter what is said on other forums.

 

Post Edited By Moderator (Marlee2) : 7/14/2009 1:23:05 PM (GMT-6)

Posted 7/14/2009 9:52 AM (GMT 0)
Hi Ed,

Sorry you are having a tough time right now. Missing sleep is not a good thing. I have sleep apnea, and now get a pretty good night's sleep with my c-pap machine - but perhaps yours is more pain related. And I understand that too, as I have my nights as well.

Fibro fog is very real. I have it too. It's one of the reasons that I can't work anymore. I used to practically run the ER when I worked there doing 12hr shifts....now, I could barely make it an hour or two. It's very discouraging, and I'm so sorry it's hard for you to work. Have you thought about trying for disability? Maybe you are and I haven't seen your post - but it might be something to think about if things are so bad for you. I'm in the process of getting it myself.

Glad Penny is there for you. A supporting spouse is so important. Keep praying, and never give up.
Posted 7/14/2009 9:55 AM (GMT 0)
I just don't like the way a large percentage of the American tourists act ... has nothing to do with the crash. I'm also not German and I don't have a problem with the government.
Posted 7/14/2009 4:44 PM (GMT 0)
Painter, I took out the email in your post.  I just got done telling you that I will delete it in the post.  I do see that you have it in your profile so members can go there and get it to email you.

 

Also, please lets not get political here.  We all have opinions and there is a lot of controversy and we could end up in a food fight!  LOL  Lets just stick to fibro and helping each other with pain.  Thanks!

 

Sherrine

Posted 7/14/2009 6:56 PM (GMT 0)
I just don't want Painter59 to think I speak for a group I'm not even part of or ascribe to certain opinins I never remember mentioning :D
Posted 7/14/2009 9:42 PM (GMT 0)
Painter,

You're not he only one that gets easily agitated when you're hurting. I've discovered a long time ago that more pain = less patience. The more that I hurt the more that the DBF goes out for walks and such without me. Hee Hee.

I think it's perfectly common that if you're not feeling at your best, or even decent, that we tend to be more sensitive emotionally as well as physically.

And if you don't mind my asking....what part of Oregon, I'm in Portland. Even though this is 'home' to me I'm going to be moving pretty soon here. By the end of summer I will finally have traveled past the Rockies and will be living in the SE part of the states.
Posted 7/14/2009 10:20 PM (GMT 0)
I live in the Salem area and I would like to move back to eastern oregon, as for today I tried to go to work but told my boss that I hadnt slept in 4 days and he told me to go back home because I would be a danger to myself and everyone ells, I wish I could sleep for just an hour, Im geting very wore out, my brain seems to have these little jolts now and then.
My wife gets home in an hour and I dont think Im going to be able to cook dinner I Have Had No Coffee today and yes I would love a cup but Im going to waite tell tomorrow morning.
Im going off line and do some reading I will be back tomorrow after work at 3:00pm so all of you have a great evening and thank you for the notes Please see my profile and feel free to send me an email anytime.
God Bless

Ed
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