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MCTD dx confirmed today

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Posted 9/8/2009 9:43 PM (GMT 0)
 

   Hi, turn

  I have been following all the posts and ready to jump back in there again!

 Today I went and saw my rheumy. He confirmed what I guess I already knew.

 I have Mixed Connective Tissue Disease. My overlap is Scleroderma, Lupus and RA.

 Scleroderma is my dominant disease in the overlap. My meds are staying the same

 with the exception of my blood pressure medication Lisinopril is changed to dilatiazem,

  which is a calcium channel blocker, which will help with the Raynauds. The Methotrexate

  I take is an immunosuppressant that is supposed to slow down disease activity.

  I had a skin biopsy August  2008 that had confirmed the scleroderma, and I

  have noticable skin changes. My lupus is real simular to my Fibro but I can tell the

  flares apart, because I generally get the rashes with the Lupus. I do not have the

  typical malar rash across my cheeks. I get rashes on my chest and neck. I have a

  erythma patch on my forehead, it looks like a bike tire patch, thank goodness I

  wear bangs!

  I do have some wonderful news to share. The Savella finally kicked in and have not

  had the burning achiness for a week now. I am still very fatigued, but that will pass.

  I am glad to be back posting. I don't know how many posts I will get in a day, it

  is getting harder for me to type because of my arm.  

  Have a wonderful day turn

  Robin

Posted 9/8/2009 9:45 PM (GMT 0)
So glad you got some answers. I hope relief is soon to follow.
Posted 9/8/2009 9:59 PM (GMT 0)
Robin, I'm so sorry you are having all of these problems but it is good that you finally know for sure what is going on.  Now, I'm sure there will be a better plan of action for you.

 

I'm so glad the Savella has kicked in for you.  It couldn't have come at a better time!  I hope you get things under control and start to feel better.  I'm praying for your arm.

 

Sherrine

Posted 9/8/2009 10:06 PM (GMT 0)
Robin...you are such an inspirtation...really.  I cannot fathom having to deal with so many painful disorders at once, and with such a fabulous, positive attitude.  I am so happy you now know what you are dealing with and that you get the relief you need and deserve.

Many, many hugs to you, my friend.

Donna

Posted 9/9/2009 1:06 AM (GMT 0)
Thank You for your sweet replies. This forum provides such a great opportunity to vent,
share iinformation, ask questions and help others. Being here I do not feel I am alone.


I am blessed to have found this forum

Robin
Posted 9/9/2009 10:52 AM (GMT 0)
Thank you for being such an inspiration. I hope you get relief from everything soon. Good thing about the savella.
Posted 9/9/2009 2:36 PM (GMT 0)
Robin,

I am sorry you have so much going on with your health . at least now you do have a DX . and that alone helps... as its so frustrating knowing there is somerthing else going on but not knowing what..

I am gald you have found a Good Doc also... they are so hard to find. I hope nd pray that you start feeling somewhat better Soon .

You always are very caring in your responce to every body . and have much insite

 

Thanks for all you give to us... Take care of yourself first ,stay strong.

 

Huggles.

Posted 9/9/2009 6:58 PM (GMT 0)

Robin,

Glad you finally know for sure what is going on. I am so glad the Savella is working for you!! yeah

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