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Posted 10/8/2009 1:50 AM (GMT 0)
I saw my rheumatologist yesterday, went fine though i could do without the constant pushing on my tender points (that hurt last time, what makes them think it'll be different this time?) oh well I guess. Told her that I've been in agony since the weather changed and that the Lyrica pretty much stopped working. So she gave me a two week trial of Savella. I've had two so far and it gives me this strange heart racey I wanna move feeling, and not just I need to get up and walk it's the kind where I'm just jittery and tappy, I do not like this feeling, this is why I take medication for ADHD, so I don't do this. But I saw my primary doctor today (I live at my dr's office, they all know me by name) and she said to not take it twice a day like it's in the trial pack, to try taking it just in the mornings and see if I adjust to it. So I'm going to do that, I figure that the worst that can happen is I'm annoyingly jittery for a while and it doesn't work, or i adjust and it does work. I'm willing to try.

Meanwhile I'm still in pain. I'm trying to look for a job, I finished a course for Pharmacy Technician in May and FINALLY found out that I was licensed in early September (though i don't have a hard copy yet) so i can get a job now. But with it being a struggle to move around and such I haven't been able to do much looking. Thankfully alot of places do everything online now so I can do some.

I'm frustrated, this is starting to wear on me. My hands hurt and are numb half the time, it hurts to move, and it just seems like nothing is working. I think what bothers me the most is that I'm so young, 22 and I can barely move sometimes. I'm an active person at heart, so being in so much pain all the time combined with the almost constant fatigue irritates me.

And of course to add to my frustration I've had a low grade fever for over two months now, my doctor has run every test she can think of and they all come back normal, so now I'm being sent to another specialist, to see if there's something else going on, like I need to add to the list.

I honestly feel like I'm complaining, I don't like to complain, there's so many people with worse medical problems than me, but I'm really starting to reach a breaking point.
Posted 10/8/2009 4:51 AM (GMT 0)
Hi AkinChan!

Gosh, I'm sorry that you're still having problems with medication. I'm with you though...try most anything that's reasonable so at least you know you gave it your best. I doubt I need to tell you anything about Savella cause with your training you likely know way more than what I researched. But for those reading who haven't heard of it it's in the same class as Cymbalta (SNRI). These two are under the umbrella of antidepressants and Lyrica is a medication for nerve pain.

A couple of ideas/suggestions that may help..... If I were you and had been diagnosed with all of these problems with more tests to come, I'd be freaking out! Talk about high stress and making you depressed all in the same second. But, as silly as this sounds, work on relaxing. Tension, especially your muscles, only makes your fibro much, much worse. Splurge on some nice bubble bath and use it! Wonderfully warm water, a soothing aroma, light a candle or two! You certainly deserve it. And the part about the doc pushing on your tender points...I've been at this for many years and each month when I go in for my checkup he pokes the most tender ones all over again...lol But it's NOT funny cause it hurts! Sometimes I feel like poking them back. One specialist doc sent me to had me in tears before he was even done with his exam to see why I was hurting. Well DUH! I was send with fibro in hopes he could help with pain management. He was outta my life in no time!

And the complaining thing...you are not complaining, at least not in our eyes. You are miserable and we all understand the pain. I'm way, way older than you are but I have been pushing myself way beyond what I should and my pain level is over the top right now so I need to start taking my own advice...you'd think I would have figured that out by now...lol

If the jittery feeling doesn't ease up in about 48 hours, I would call the doc back and at least report in. Also your favorite pharmacist can give you an opinion how long you should have to tolerate the medication. I got to a point when I tried new medications that if they made me feel worse than I did before I tried them that they were out! One good flush and they didn't bother me any more. This is my body. I pay the doc for advice and sometimes a prescription. But when it comes to me and that glass of water it's my choice to take it or not.

Be good to yourself and feel free to email me if you just want to talk..OK? To email just click the little envelope that's lit up under my name over there <------
Chutzie
Posted 10/8/2009 4:36 PM (GMT 0)
Don't worry about complaining. Yes, it could be worse, but it's BAD ENOUGH!
Posted 10/8/2009 5:19 PM (GMT 0)
Hi, So sorry you are aching. Chutzie gave you great advice!

I am taking Savella, been on it for three months and found some relief after week seven.
The change in the weather has caused me to flare. I just took 10mg of Flexeril and a couple
of excedrin. I have already soaked in a hot bath this morning and have done some gentle
stretching. It has helped some, but I know today is going to be a day of R&R, I hurt too
much to do anything else.

This forum is wonderful because we can connect with others who know the challenges of
living with chronic pain and truly understand because they feel it too. I see the rheumy
every 6-8 weeks and a hematologist, dermatologist, neurologist, and pcp throughout
the year too. I do understand what it feels like to be at the doctors all the time.

It is theraputic to vent once in awhile, just like it feels good to have a good cry. I had one
earlier this morning and it felt great!

Hoping we all feel better today

Hugs

Robin
Posted 10/8/2009 5:57 PM (GMT 0)
I'm certainly special this week....I just realized this morning that I misspelled my own display name, and I've used it since high school. yep I there goes my brain lol.

Yeah medication and I don't really seem to mix sometimes, there's several types of medication that I just can't take. But I'm willing to try and see if it will work or not. Bettter than never knowing.

I try to not freak out about more doctors and more tests, sometimes I do get worried though, because I just don't want to add to my list of issues, I mean really can't my body be nice to me just once. Yeah I'm dreaming there lol. I'm doing my best to stay relaxed, I think I will try a warm bath later when my parents are home so I'm not either wondering where my puppy is or having to try and keep him from getting in the tub with me, labs and their attraction to water lol.

I'm with you Chutz, am I allowed to poke back, that would be amusing. Doubt it though.

Thankfully I like all the doctors I see, and I've even stopped seeing a couple because what I would see them for is better now, was doing physical therapy for my left knee cap that wasn't tracking and seeing and orthopedic doctor for it, thankfully it's back in the groove it belongs in even though both knee caps are still up too high, oh well at least they're tracking.

Feeling better today, so far, so we'll see how the day goes. So I'm off to feed my puppy who's sitting here next to me whining and trying to climb into my lap. turn
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