Having fibro isn't all that bad.

I know I can hear you all saying, "what does she mean having fibro isn't all that bad"???  I know we hurt 24/7, I think it has been 7 yrs now since I was dxd and the pain is a part of my LIFE. Sometimes it is so bad I want to scream or cry, I think the head aches are the worse. The fatigue is so frustrating for me, I get done in a week what I use to get done in a day. Then there are all the many other symptoms that goes along with fibro that we have to LIVE with. I have to arrange my LIFE to do things that have to be done during my peak hours. It can all get depressing cause we aren't LIVING a normal LIFE.

 

So what do I mean about fibro isn't so bad??? I got a call yesterday morning that my 57 yr old cousin is quickly losing her battle with cancer. She has done everything she can over the last year and a half to buy more time but that time is about up. She has lost the ability to speak from the brain cancer and I can't imagine Teri not being able to voice her feelings. She has a mass so big behind her ribs that is cracking some of her ribs and it is now in her spine. I know Teri and she will hang onto LIFE til her last breath.

 

She has a 21 yr old daughter who's mother won't be there when she graduates college, gets married and has children. I lost my dad before I was 23 so I know what it is like not having a parent there for the good and bad times in your life.

 

As hard as it can be at times to LIVE with fibro we are still LIVING and that is the key word. We aren't going to die from fibro. No one is promised tomorrow but fibro isn't a death sentence. We can make plans for the up coming holidays even if we have to make them simpler than we would like to. I did that years ago and my grandchildren love our Christmas with Santa coming and ordering pizza, yes pizza, it saves me a lot of stress and energy and they love it.

 

I know it does not seem fair that we have this thing called fibro but try to remember that there are many out there that would trade their illnesses for fibro in a heart beat.

 

Okay, I'm done being all sappy this morning.

 

luv and hugs

Marlee

 

 

Marlee, I am so sorry about your cousin.  She is so young.  I do thank God that all I have is fibro.  I can live with this.  I can be with my friends and family and do most of the things that I use to do, just slower. 

I agree with you Marlee ... I'm always saying that I don't have it that bad.

I'm so sorry. That is so painful to go through. It brought tears to my eyes just reading.

Thank u for using this as a positive reminder. I myself am struggling with what seems to be a year long flare so reminders help me tremendously.

That being said, my mother & her siblings have 1 surviving aunt. She has had 8 brain tumors removed. My mother has already had breast cancer. My grandmother died at 43 from breast & lung cancer & her brothers sisters all passed from cancer at a similar age.
So although we as a family haven't fought the battle in a while, it always looms over us. My aunts never ever see a dr, and they are both obviously sick. I can empathize with you to some degree, but I often take for granted the days that I have.

Thanks for sharing...

 

I am sorry to learn about your cousin and her battle with cancer., This is such a hard disease , and is so cruel.. Like you said now can no longer get the words out..my dear brother went through that also.

 

. I know just how hard this is... as I lost my big brother to cancer. in 2004 on veterans day .he died of a brain tumor. cancer.. this was I think his third battle with it. and he could not beat it this time.. He went home to be with God. and he had said he was ready to go home.

 

My heart goes out to you and your family .. you will be in my prayers.

 

Take care.

Thanks for the prayers and kind words. I just pray she doesn't suffer.

 

Teri is 18 mos younger than me and I guess I'm still half way in a state of disbelief. As long as the chemo was keeping the cancer in check we all had hope that she could buy a couple of more years.

 

I know we have had a lot of people in flares and I know when your hurting and feel down right sick it's hard to see the positive but the flares do pass and we do get better.

 

I just want everyone to remember that we can LIVE with fibro even as frustrating and depressing as it can be at times.

 

luv and hugs

Marlee

 

 

 

 

Right sassy! And thanks again Marlee, I really needed this reminder.