Fibro questions

I have been having issues for several months....yes, been to several doctors.  First, I was found to have microscopic blood in my urine....it's decreasing so the doctors aren't worried about it.

Secondly, after all the blood test it showed I had a very low vit D.  Doctor put me on 50,000 units a week.  The sed rate and esr all was normal.

Thirdly, doctor said I was depressed and put me on lexapro.....I refused to take it.  I am not depressed, I laugh, cut jokes and just an all around goofy person.  I like to have fun in life and enjoy my family.   I do get frustrated because my body isn't the same as it use to be.

August of last year my normal periods began to become intense, painfully.

I started to loose weight, got that undercontrol now.  I got sick in Dec. with diarrah, I was knocked on my butt tired all the time, sleeping alot and that is when the muscle pain started. The pain isn't chronic just in different locations. 

Right now I do get tried at times but then in a few hours I am back to normal. Not everyday though I have some really good days.  I no longer nap in the day but am tired at night.

I do have muscle cramps, tingling/pins in fingers and leg, just odd aches.  Anywhere below my neck is fair game.  The twinges of pain may last a few seconds and it's gone.  The cramps last a bit longer. 

Also a times my my jeans may give me a weird sensation in one location on my skin.  Just for a few seconds it's gone. 

I do have hot flashes now,   on top of everything.

I can tell you the pain isn't chronic just annoying.  I can't pinpoint the pain because its not one location.  The pain doesn't wake me up at night so I know it isn't serious.

I do have stomach pain off and on to, different locations.

I also noticed stress, weather and my periods is when there is more aches.

I do have daily issues with aches, yesterday was not a good day.  My legs ached like having the flu,  my hands off and on.  I did get my period today so I can link that together.

I was wondering with Fibro, how does it began?

Can it came up later in life?

What is is like to have it.......

I can live with this no biggie.......my thoughts if it gets worse I'll tell the doctor but really not wanting to because I am tired of seeking medical advice and paying bills.  Plus when I saw my doctor this week I busted up laughing after telling him the same thing again,,, I said, ok I realize this sounds like depression but that isn't the case here.

My dh, I love him tells me I'm getting older this is normal.....not buying it.

I am sorry this is so long but I'm frustrated, I don't think this is normal.

Hi Kellie and welcome!  It's hard for me to pinpoint when my fibro 'started' but I am sure I have probably had it since I was a teenager...I am now 64.  I had horrific menstration problems that included heavy bleeding, intense pain plus the cycle would last about ten days to two weeks and I became very anemic.  After one D&C after another I finally had a hysterectomy at 23 years old because of bleeding ovarian cysts.  I think that was the beginning of future fibro symptoms...some tingling and numbness sensations in my legs led the way to further testing and then the pain started.  I was tested for all the obvious...MS, Lupus RA and other autoimmune disorders.  But I guess to answer your question, after the hysterectomy the pain subsided, other strange skin sensations took over....burning, tingling, pulling tight, and feeling uncomfortable wearing certain fabrics, and of course bouts of fatigue.  I was not offically dx'd with fibro until the mid ninties as the disease hadn't been clearly defined until then.  I was always just treated for chronic pain.

I was prescribed Lexapro by my Rhuemy three years ago and took it for two years...it did nothing but make me a unemotional drone and I went off it...which was a nightmare and still is.  Withdrawal from SSRI's are nasty and lingering and I wish I had never gone on it.  My doctor's response was that these drugs are a 'lifetime committment' and I should have not gone off it.  I know they have helped many people but it was not for me.

This is a wonderful, supportive, informative forum and I know others will give you their advice!

Donna

Hi Kellie,

I am 39 and my husband says the same thing...age+weight.  I am not buying it also.  He doesn't believe there is something wrong with me.  Just stress and taking care of the three kids.  I do have pain and it moves around.  I am also in the process of being diagnosed.  I like it here and I think you will too!

Lisa

Ok I looked at fibro 101 I have more than I realized.  I'm not crazy,  things kept happening and I was wondering if I was going through pre-menopause.........

Oh being a woman isn't easy......

Post Edited (KellieJo) : 4/7/2010 1:16:11 PM (GMT-6)

No, you won't drive us crazy!  You know how misery loves company?  (Or at least someone to make us realize WE aren't crazy!)  Sometimes it seems like every random symptom I've had in the last 20 years (and there are a LOT of them) can be attributed to fibromyalgia, my most faithful of friends...the one who is always there for me   Welcome!