HealingWell
Search Close Search
☰

ESR-sedimentation rate

Support Forums
>
Fibromyalgia
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 5/10/2010 11:01 PM (GMT 0)
I have been in a lot of pain for the past few years and don't know what to do. My doctor stated my sed rate was 219 and he thought I had rheumatiod arthritis. But, my rheumatologist stated it was not RA but fibromyalgia.  But I don't understand why my sed rate is so high, Fibromyalgia is not diagnosed by sed rate.  

Anyone know why my sed rate would be so high?

Posted 5/10/2010 11:49 PM (GMT 0)
If it is that high, you need to run to a different dr NOW. Inflammation is dangerous for your heart and other organs if left that high for long. Do not wait, or get another dr to give you some prednisone to get it lower quick. There are many inflammatory dx's, it would depend on your other symptoms......
Posted 5/11/2010 4:48 PM (GMT 0)
I have Crohns and my sed rate has never been that high.
Posted 5/11/2010 5:00 PM (GMT 0)
I don't put too much credibility on a sed rate. My sed rate is always in the normal range
even with obvious inflamation of my joints and a autoimmune connective connective
tissue disease. Sometimes a high sed rate goes with a viral infection.

Hugs, Robin
Posted 5/12/2010 6:22 PM (GMT 0)
My two and half year old daughter's sed rate came back yesterday (tested a week ago) at 80. She had been battling virus after virus with a pretty steady fever for the past 4 to 6 weeks (she'd get better for a couple days then catch something new and be sick again). All other tests that the doctor looked at (urinalysis, blood work) came back normal. We just got a chest xray done today and that came back normal. She's been feeling 110% for the past week now -- no fever, no other cold or flu-like symptoms -- but still worried sick. My husband's grandmother has chrones and M.S.. His younger brother (same mother, different father) was diagnosed with mild JRA five years ago (and has since pretty much fully recovered). Now we play the waiting game. I guess I'm just posting on here for some feedback or some support. Worried sick, but she seems like she's feeling the best she's ever felt!! Was the sed rate just an indication of the viruses? We're getting the sed rate retested this friday, hopefully it will have gone down.

P.S. I just happened upon this site today. If I should repost this in a non-fibromyalgia forum please suggest where. I had never even heard of a sed rate until yesterday when we heard it was high... just feeling a bit lost and needing some encouragement. Thanks!
Posted 5/12/2010 7:50 PM (GMT 0)
Alwaysick, my MCTD diagnosis came from clinical symptoms, as well as repeated antibody
testing that showed I was positive to RNP. I had a skin biopsy that confirmed scleroderma,
rashes, inflamation, swollen joints and Raynauds. MCTD is confirmed having positive
RNP plus the clinical symptoms. It took a long time. At first I was diagnosed as UCTD...
Undifferentiated Connective Tissue Disease. MCTD is the only ctd that can be confirmed
by just having positive RNP. I am not the typical patient, I have pseudothrombocytopenia
and my bloodwork has to be collected in a citrate tube. My platelets clot if it is collected in the standard purple top tubes, after 2 bone marrow biopsys it was discovered that in the
course of diagnosis my platelets started reacting to the chemical EDTA in the test tube. It
is quite rare, so I do no consider myself at all typical. I am glad that I do have a diagnosis
and getting treatment.

Hugs, Robin
Posted 5/12/2010 7:59 PM (GMT 0)
Hi Mommy921,

I would like to welcome you to the fibromyalgia forum, I will start a thread with your questions and concerns in it and see who can help you to direct you to the proper forum.

Hugs, Karen
Posted 5/13/2010 2:28 AM (GMT 0)
there is another test for inflammation called CRP.

the tests just tell you there is inflammation, not where it is or why.
mommy 921
a virus for 4-6 weeks sounds too long for a normal virus. Flu like symptoms this timf of year makes me think Lyme disease. Has she been tested?
✚ New Topic ✚ Reply