Supplement Question

Hi fellow fibromites, just a question about supplements. I have started to take magnesium. I have been looking at B12, D-Ribose, Q 10 and L Carnitine. Are there any dangers to adding so many supplements and does anyone have any adivce on what to take tohelp< i notice many of you are taking magnesium. I am very fatigued and need to try recover. I also been looking at Mitochondria dysfunction and I dont know whats right or wrong in the theories of CFS/FIBRO anymore. Real lack of specialists here in Scotland and I feel sort of left to my own fate in trying to help myself except for the prescription of pharmaceutical medications.

Gentle hugs all around

(I added a Subject line to your post so more people would read/answer it)
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Fibromyalgia/CFS, Hypermobility Syndrome, Post Traumatic Stress Disorder,Anxiety,Depression,
Somatization Disorder, Sciatica, Carpal Tunnel Syndrome

Sodium Valproate, Diazepam, Thyroxine, Citalopram

Post Edited By Moderator (Chutz) : 5/28/2010 10:22:04 PM (GMT-6)

Hi!

And we're happy you've joined in here! I did add a subject line to your post. That way people who take supplements will notice it and will give you some help. I've tried magnesium/malic acid. After about 6 weeks I hadn't seen any improvement. But I'm going to give it another try once I get a couple of other things settled down inside this body. ;-)

On the question about taking too many supplements...Yes, you can take to many and they can also be in conflict with prescription medications you may take. Always tell your prescribing doctor about anything you buy over the counter (non-prescription) and take. Plus, there are some supplements that can build up in your system and have an adverse effect. I'm no expert but I know enough that I would ask a lot of questions before I started to take anything.

Next time you see your doctor tell him about the fatigue and ask if there's anything he can recommend or prescribe for it. I take something called Provigil that helps but most of my fatigue and sleepiness comes from taking pain medications. There are other medications that can help with fatigue plus some of the B vitamin complex. Some people even get B12 injections that help.

One thing I often suggest to people who are having trouble finding good medical care is to try a university/teaching hospital. The physicians there are out on the cutting edge of technology and research. They take on new patients and often they are ones who are having problems getting help. I found 3 of these institutes in Edinburgh. Here's the list...

Edinburgh

* Royal Infirmary of Edinburgh - University of Edinburgh Medical School, University of Edinburgh
* Western General Hospital - University of Edinburgh Medical School, University of Edinburgh
* St John's Hospital, Livingston - University of Edinburgh Medical School, University of Edinburgh

This list came from our Fibro 101 post at the top of the column. In there is this link. There might be a facility closer to you than these but it should would be worth a call if you don't have many doctors in your area who are knowledgeable about fibro.

en.wikipedia.org/wiki/List_of_university_hospitals#Edinburgh


Keep us posted and I hope you find some answers...
Chutz

ps...thanks for that gentle hug! I really needed one today ;-)

I can only tell you what I take and what seems to work for me but that doesn't mean it will work for you. I started taking magnesium/malic acid first, I found that it helped with muscle cramps and got rid of the burning all over pain I had in my muscles. Next I started vitamin D3 that I found really improved my mood, I was having some bouts of depression and I haven't felt that way since I started taking it. Next suppliment I added was omega 3 and I found that just helped all around to help me feel better, I take O3mega +joy as it was recommended in a book on fibro that I read. Lastly I've added D-ribose, I've only been taking it for about a month so I can't say for sure it's the D-ribose or just a stretch of good luck but I feel great! I feel almost normal with very little pain and next to no fatigue and I have been able to do so much stuff in the last week and still feel ok after. I washed the siding down on the house one day, did a bunch of gardening and putting down mulch the next day, then I went out to my dad's and piled firewood for him and today I went out in the boat fishing all day. I still have to pace myself somewhat and I still have pain when I sit for too long but so far so good :) I really hope it lasts and I hope if you try it that it works as well for you.

One ood multi-vitamin daily plus two 1200mg Fish Oil capsules daily (if you don't eat fish three times a week at least) --- oh, the THYROPLEX (New Zealand) is good for everyone over 40 yrs age. Find a Bowen Therapist in your area and expect 18 monthly visits to reach best affect. WALK at least 30 minutes four times a week. Good luck :)