I need to V-E-N-T

 

So I just got off the phone with hubby, who was telling me his cousin has been having all this pain (she has her own cleaning business) and she has been to a few doctors and ..you guessed it, she was diagnosed with fibro.

But she is NOT going to accept this and it has to be something else, there is no way she can slow down, she refuses to let this get her...yada, yada, yada....

 

I took a deep breath and said..."I'm sorry to hear that". I was getting pretty heated in that if felt like "she wasn't going to take it" so what did he think I did? Sit down, pulled up a chair and said "hello fibro...nice to meet you..." I'm like wth?

 

I told him that I have had fibro for a while and when I first got diagnosed with it I was able to do much more than I can do now and for me its seems to be a progressive disease.

With the type of work she does, I know she must be terrified of the thought of not being able to do her job. I also told him that different people seem to have different stages or levels of Fibro.

 

I feel bad for her, but I'm like...I don't want this crappy thing either....

Just know that different people handle it differently and we all have different levels of pain. Maybe she doesn't have as much pain and fatigue as you or I do. So she may be able to do more. But I am sure that she will have flares and not be able to do as much as she is able to now.

Try not to feel bad about it. That doesn't help you any, in fact it may make you anxious and anxiety effects us like stress does.

My friend went on Savella and went off her pain meds and adderall. I am happy for her, she seems to be doing well. But I am afraid to change what I have as it has been helping me. Though I still have pain and fatigue. And I don't want to add another medication to the mix. I am on nine different ones now, not to mention my supplements.

Know that we all do understand here and that we all support you. Keep your chin up and keep on keeping on.

Hugs, Karen

Hi hope just wanted you to know that I do understand how you are feeling. I too believe this disease is progressive. When I was first diagnosed I continued working for another 9 years. Even though the pain was bad I learned to deal with it. Another problem I had was the fatigue and up until last year I dealt with that but all of a sudden it got so bad that I was barely managing to get to work on time. I am home now and I am still able to get some things done around the house, but I am also able to take breaks when I need them, which is alot more often than what I got at work. I hope your sister-in-law is able to work for a long time but dont let that get you down. We are all different in how our body reacts to this disease. You know what you are able to do and what you cant. Dont beat yourself up over what others are doing. Just know that we are here for you.
Shirley