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Got an attitude adjustment from fibro!

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Fibromyalgia
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Posted 6/26/2010 4:22 PM (GMT 0)
Ok, I have a question for everyone. Is it possible to say have mini-flares? Or would you just consider those bad days? The reason I am asking is because I guess part of me must of thought that I had this whole fibro thing under control until last night and this morning.

Let me back up a step here. I have pain all the time, although it is manageable now with my pain meds. I have had some days the last few months that I assumed were flares because the pain would become alot harder to manage and new aches and pains erupted at times too. But for the most part I was doing pretty well and had begun to finally be ok with my diagnosis. Well as ok as we can be. Let's just say that most of my fear had started to subside.

As some of you know my sister (Antbuggey) was just diagnosed with RA. She was in a really bad flare and was in alot of pain. I felt so bad for her and was really worried, so maybe part of it was distraction. Not that I focus on having fibro 24/7 but, well you all know. Anyway, last night I started feeling pretty bad and was pretty convinced I was getting the flu or something. Took my meds and went to bed.

Fast forward to 4:30 this morning, woke up and got out of bed and as soon as my feet hit the floor I almost did too! I hurt soooo bad! Everything and everywhere and I could barely walk. All of a sudden it all came flooding back to me, This is what had brought me to the doctor's in the first place! This was the pain I was having months ago almost all the time. So my question is What the heck happened? I am assuming that I am in a bad flare, so what was it all the other times? I mean the pain got worse then, but not like now.

Do any of you experience this? Is it normal?  Does an actual flare kick you in the teeth like it did me? Are they all considered flares and some just worse then others? I am just trying to figure this all out, so I know what to expect. I really didn't do anything to cause it, like over do something. The times that I did over do something is when I got the mini flares (well I thought they were regular flares) I have no idea what caused this, so I guess I'm just scared now that for some reason my flares are all going to be horrible now. I kind of feel like mentally I am back to square one. I am sorry for the long, whiney post. I am just pretty freaked out now!

I hope everyone is enjoying their weekend and having low pain days. Any responses will be much appreciated...Take care.

 

Posted 6/26/2010 4:48 PM (GMT 0)
Yes, this does happen to me.  I'll be doing really well and then, wham!  I've gone to bed feeling pretty good and wake up in the middle of the night and can barely walk to the bathroom while using a cane. 

 

Stress, weather patterns, things like that affect me.  Many times I don't have a clue what caused the flare.  Sometimes I'll over do and really expect a flare and nothing happens.  Other times I pace myself and get hit with a flare!  There is no rhyme nor reason for this illness.  What you need to do is use techniques that help you get the pain back under control.  If you freak out over it, that will just make things worse.

 

I'm having a lot of problems with my back right now.  This started last week so I started taking more ibuprofen and Tylenol, using a back vibrating cushion I have, and doing more stretching exercises.  It is settling down now.  I don't even try to figure out what caused this because nine times out of ten I can't!  So, I just accept this, help myself the best I can by doing what has helped me in the past, and just keep on moving.

 

I hope you get the pain under control in a hurry.  Feel better soon!

 

Sherrine

Posted 6/26/2010 6:24 PM (GMT 0)
Hi Shannon, just wanted you to know that when I first got fibro I was same way you are started out in alot of pain and then would hurt but was still tolerable. I found that when it would hit a new area of my body was when it would seem so much worse. I would then have to get used to it in that area and then all of a sudden it would come back in a different area. I can remember crying thinking what is the use. I just start tolerating it in one area and then it hits another. I havent had a major flare in a long time due to the fact that I think it has pretty much covered all areas of my body now.(keeping fingers crossed) My meds right now are keeping it pretty much stabalized unless I really overdo it.

just take one day at a time and I will be praying that you get relief soon
Gentle Hugs
Shirley
Posted 6/27/2010 3:04 AM (GMT 0)
Hi Shannon,

I too go through what you just described...I call it "Hitting the Wall". I can be absolutely fine (or as fine as one gets with this awful condition) for days on end and then WHAM!! It's like I've run into a brick wall at top speed. Those are the days when even my hair hurts...where there is so much pain, you can't even pick out individual issues because your whole body is in agony.

I find these happen to me when I'm super stressed or super tired. For awhile there, I was plagued by severe insomnia...at one point, I managed 2 broken hours of sleep over a 3 day period. Every single part of me hurt...deep, unrelenting aching that felt like it had penetrated every fibre of my body. The only "cure" for it for me was to increase my pain meds for a couple of days (with permission from my doctor) and lots and lots of rest.

I'm sorry you've been experiencing this. Do you think the stress of worrying about your family members and their health issues was too much for you? It's good to be worried or concerned for them, but not at the expense of your own health.

Make sure when these flares happen that you take time out to care for yourself. I hope you're able to get these under control...try some relaxation or meditation CD's if you can...they can be wonderful.

hugs,
Pam
Posted 6/27/2010 2:02 PM (GMT 0)
Sherrine, Shirley and Pam,

Thank you so much for your replies. Once again I can breathe a little easier knowing it is normal to experience this. I was a little scared that I was getting something else. I do believe stress plays a major part in how I feel. I know it does with the headaches and obviously with fibro too.

So, I guess on bad days I just need to keep in mind that eventually things will ease up. I also need to learn to not "wait" for the flare now. Be happy with the good days and quit over thinking things. When it happens, it happens...period.

Thanks again ladies. Take care.
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