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Posted 7/23/2010 7:58 PM (GMT 0)
I was just wondering if any of you are always cold?  I do live in Minnesota so the winters are brutal.  I wear long johns from October through May, indoors and out.  But I am always cold, and cold to the bone, as some would say.  I used to love summers because I would be quite comfortable, but now it drains me of all of my energy.  If the temp is not in the upper 70's to low 80's I'm freezing! 
Posted 7/23/2010 8:19 PM (GMT 0)
Ntish, i'm pretty much the same way. I'm originally from Wisconsin and now live
in Arkansas. It is near 100 degrees where I live and our air conditioning is set at
76. There are nights where I'm wearing a sweatshirt in the house.

I do have Raynauds and that affects the blood vessels to spasm in my hands and
feet. Taking a med that helps dialate my vessels helps, I'm prescribed Diltiazem.

There are days when I'm wearing sandals outside and my feet are a purplish blue.

I tend to bring a sweater or wear long sleeves if we are eating out. Some of the
places are way too cold. Many fibromites share this problem.

Hugs, Robin
Posted 7/23/2010 8:30 PM (GMT 0)
I'm in the cold upper midwest, too. In late summer, early fall, I'll start wearing thick wool hiking socks day and night, and a wool shawl, until summer starts again. In winter, I have been known to wear fingerless gloves so I can type on the computer, and long underwear inside the house. You're not alone.
Posted 7/23/2010 8:39 PM (GMT 0)
Hi Ntish, Welcome to the family!!

I'm a Jersey Girl and we also have brutal winters (this past one was horrible). I am usually dressed in layers all winter, my DD wears shorts and a t-shirt in the house and I shiver just looking at her. My whole family is very comfortable and I'm freezing. I usually wear sweats to bed in the winter.

I also bring a jacket when I got out during the summer, just in case. lol I can't wear sandals for walking outside aymore, I used to LIVE in flip flops. My balance is off and my ankles are not 'co-operating', so I wear sneakers w/ socks all the time. In the winter that is fine, but in the summer heat, I feel like I'm suffocating.

I use flannel sheets on the bed yr round. I also have a blanket and a light quilt on the bed now - have a heavier one for winter. I can be sweating all day, but for some reason, at night I need the blanket. I don't understand it, either.

We have had over 30 days w/ temps over 90, w/ a few over 100, so far this summer. It has been miserable. Tomorrow should be about 100. 'can't wait'. shakehead  

It appears the thermostat is busted in ppl w/ FMS and much of the US.

God bless.  Alice. 

 

Posted 7/23/2010 9:21 PM (GMT 0)
Hi Ntish. I am always cold. I live in a very hot climate. 117 last week. We keep our air conditioner at 82. Any lower and I'm cold. I also take a jacket EVERYWHERE. I was in a Trader Joe's yesterday and I was freezing. I also have Raynauds so my hands and feet turn purplish in air conditioning. Just another fun thing that seems to go with fibro. blush
Posted 7/23/2010 9:48 PM (GMT 0)
Hi Ntish, I have the same problem with cold but along with the cold I get hot flashes so around here it is put my coat on 10 minutes later take my coat off 10 minutes later put the coat back on all day long. lol
I absolutely hate winters in North Dakota, but all my family is here and my husband has Multiple Sclerosis so there is no way he could live in a hot state. What we put up with for those we love lol but really I love everything here but the winters so cant imagine being anywhere else.
Gentle Hugs
Shirley
Posted 7/24/2010 12:53 AM (GMT 0)
From fall to spring, I wear turtle necks and hoodies, gloves in the house many days and occasionally I get so cold to the bone, I can't warm up.
I must keep socks & slippers on during this time too.

We are just freaks like that but you know what.....I get a kick when I put my ice cold feet on my husbands warm legs at night....I just love his reaction. Gotta have something to cheer me up on those cold nights, rofl.
Posted 7/24/2010 2:34 AM (GMT 0)
I don't know if it's the fibro or not but I've always been a cold natured person year round and my feet are always colder than the rest of me. :D
Posted 7/25/2010 1:42 AM (GMT 0)
I too am always cold, I'm from Texas where hot it hot and was always cold there, now I'm in Wisconsin and I never knew cold until I got here. It's in the mid 70's and I'm still sleeping with socks and a down comforter. Winter's on the way and I will be in long johns by the time September hits. Not sure it's part of the fibro. I can be freezing, my thighs cold to the touch my hands like a ice berg and then my hand all of the sudden will be hot while the rest of my body is frozen solid. I really tense up in the cold too and tend to hold my breath and the pain. I am getting ready to move back to Texas soon, so I will miss the winter this year and I am so happy for that.

Steph
Posted 7/25/2010 2:19 AM (GMT 0)

MinnyMouse said...
I too am always cold, I'm from Texas where hot it hot and was always cold there, now I'm in Wisconsin and I never knew cold until I got here. It's in the mid 70's and I'm still sleeping with socks and a down comforter. Winter's on the way and I will be in long johns by the time September hits. Not sure it's part of the fibro. I can be freezing, my thighs cold to the touch my hands like a ice berg and then my hand all of the sudden will be hot while the rest of my body is frozen solid. I really tense up in the cold too and tend to hold my breath and the pain. I am getting ready to move back to Texas soon, so I will miss the winter this year and I am so happy for that.

Steph

I'm like you, I grew up in the south, Tulsa, and I am now in Minnesota.  It took me many years to get over the shock of the cold weather.  I finally learned to dress for the cold.  I actually love to snowmobile because I know how to stay warm outside.  Still, I have to be very carefull because once it's "in the bones" I'm done for!

My job requires me to do inventory once a week, in where I am in a cooler or freezer for about 3 hours that day.  I used to wear all of my snowmobile gear, but I got so much grief from everyone, I stopped wearing it.  I can only be in those units for about 5 minutes at a time.  Inventory day is now all day long!

I wish you luck in the heat again!  I used to think I would love that, but I hate anything that is extreme, and we both know that Texas is extreme!  hahaha

Posted 7/25/2010 2:45 AM (GMT 0)
I feel the same way. Cold all the time. I have raynauds and I think that has a lot to do with me being so cold. Often I step outside in the 90 degree weather to get warm cause the a/c is freezing me.
Posted 7/25/2010 12:50 PM (GMT 0)
Who diagnoses you with raynauds? pcp or rhymmy? All of this sounds like me! I am always cold and you should see me in the winter. I am all bundled up sleeping with two blankets with socks on my feet and my hubby is next to me with shorts and a t shirt on. Hands and feet are always cold from late sept through April.
Hugs,
Lisa
Posted 7/25/2010 2:19 PM (GMT 0)
Lisa, to be diagnosed with Raynauds, you have to be more than just feeling cold
all the time. Your hands and feet, go through color changes, sometimes white...
it looks like all the blood was drained out of you fingers, then a dark dusky looking
blue...to a purplish red color. It happens because the blood vessels spasm. Cold
or stress can cause it. My PCP witnessed it happening in her office and my rheumy
has seen it happen too. The doc's office is so cold at times, it presents a good
opportunity to happen. If you do get diagnosed you doc will probably put you on
a calcium channel blocker to help.

Hugs, Robin
Posted 7/25/2010 2:44 PM (GMT 0)
Robin, Do you know if this sort of cold sensitivity progresses to Raynauds? I'm hoping not. Sorry that you have it.
Posted 7/25/2010 2:50 PM (GMT 0)
How is your blood pressure?  I had a friend in Ohio that had low blood pressure and I never saw her without a turtleneck sweater on.....even in the summer.  Her hands were like ice, too.  The doctor said it was because of her low blood pressure.  Just a thought.....

 

Sherrine

Posted 7/25/2010 3:12 PM (GMT 0)
I am on the low side of average when they take my blood pressure usually 68/120??? Maybe I am a person who is just cold all the time, especially in the winter. But I have always been like this. As a teen, I used to fight with the dog to sit in front of the coal burning stove. I would literally be inches from the stove. It is probably the way I am :)
Posted 7/25/2010 4:38 PM (GMT 0)
I have hypertension, high blood pressure. There are two types of Raynauds,
primary is the most common and it is not associated with any disease or underlying
medical problem other than blood vessels narrowing and spasming. Cold or stress can set it off. My mom and sisters always feel cold and they don't have it. It's
just one of those stange occurances.

My Raynauds is secondary or Raynaud's Phenomenon tends to come later in
life and can be associated with autoimmune disease or certain drugs. My raynauds
preceded my autoimmune disease a couple years. Cold, stress or whatever I have
going on sets mine off.

Hugs, Robin
Posted 7/25/2010 7:16 PM (GMT 0)
Thanks, Robin. That helps me understand more.

FYI - I usually have low blood pressure - all my life so far.
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