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Posted 9/19/2010 7:46 PM (GMT 0)
Intense pain throughout my body. Can't get up. Fall out of bed. Crawling on the floor. Can't get on the toilet during the episode. Screaming "it hurts and help me". Fluctuating temp. sweating through my clothes. Panting like I can't breath. Paralyzed from the pain at times. Happens every other week. Daily pain I live with. I live with daily fatigue. Plus Myofacia pain syndrome. I'm 31 yrs old. I guess my fibro is getting worse not better. My Dr.'s told me that one day I won't be able to drive. I have to stop every 30 mins to stretch when driving. I don't even have a handicapped placard. I can't go up and down stairs anymore. I use a cane to walk. I exercise for 1 hr a day walking.
Posted 9/19/2010 9:15 PM (GMT 0)
rebel, sounds like quite a nightmare. I sure hope something happens to break this bad cycle you're in! I have heard that fibro tends to get worse with time, not better - I know mind has. What else do you have going on?

Debbie
Posted 9/19/2010 10:33 PM (GMT 0)
Wow rebel sounds like you are really going through a terrible time. Hopefully the drs. can come up with something to help you deal with all this. I will keep you in my prayers.
Gentle Hugs
Shirley
Posted 9/20/2010 2:34 AM (GMT 0)
Rebel, I'm sorry for your pain. You would qualify for a handicapped placard if
that is what you wanted...you just need to mention it to your doc.

I'm not sure if I like your doc...telling you won't be able to drive one day...is
he a fortune teller?

Try not to think of yourself as getting worse, some days are definately worse than
others because of flaring but flares do end. Do everything you can to stay positive.
Your outlook on things does have some influence on how you feel.

I do understand that it is very difficult at times dealing with overwhelming pain. It
is wonderful that you are exercising, it helps. Heat makes me feel better, so I
soak in a hot bath and use several heating pads(bedbuddies) while I'm relaxing.
Saying a prayer for you and hope you find pain relief soon. Don't give up:)

Hugs, Robin
Posted 9/20/2010 4:09 PM (GMT 0)
I think I'd go to a rheumatologist...a really good one....for a second opinion.  You are describing things I haven't heard of with fibro, like falling out of bed, paralyzed with pain.  And, the fact that your doctor knows you are in this much pain, says you might not be able to drive soon....but hasn't suggested a handicap placard.  Nope.  I'd sure look for another doctor.  You should be receiving more help than you are.  Something else might be going on.

 

Sherrine

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