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I'm Down and Tired, Too!

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Fibromyalgia
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Posted 9/30/2010 3:46 AM (GMT 0)
shakehead   I am my own worst enemy I think, feeling bad fibro getting me down so I jump on the sweet wagon! Chocolate to give me a little feel good moment and then the pay back in more pain. I work full-time for 36 yrs now,I'm 58, but barely making it now. I don't think my husband gets how bad it has gotten. I also have cardiomyopathy, they say a virus attacked my heart at sometime and took away 25 to 50% use. On meds it could get better or stay the same, will know this Dec. My husband retired from his job 5 yrs ago, the plan was he would get another job and with the 3 incomes I could retire soon also. He works 3 nights a week and makes very good money but I don't here much about me retiring anymore. I carry the insurance and I'm the one who is sick so what do I do? I don't enjoy much anymore because of the fatigue from my job. I try not to resent him being home but it is hard. He works out, he bikes, ect. but he also does all the houswork. Am I just an ungrateful winer? KCLUES2

Post Edited By Moderator (Sherrine) : 9/30/2010 12:15:13 PM (GMT-6)

Posted 9/30/2010 10:11 AM (GMT 0)
No, you are not a whiner. You are just facing the truth - that it's too hard for you anymore. I am fortunate, and my husband "gets it." I took him to an appoinment with my rhuemetologist about 6 months after I got fibro. The doctor explained things to him, and I quit my job about 6 months after that. My husband now works 2 jobs and never complains about our situation. I would say to take your husband along to the doctor with you and, in front of the doctor and hubby, tell them all your symptoms (write them down so you don't forget). 

My hubby and I share the housework. Mostly, he takes care of the floors - vacuuming and mopping. I pretty much do the rest. If you did not work, you would probably have more strength to do housework. That may take the pressure off of your husband in that area. I hope he hears you soon. But you need to make it known to him just how bad off you are. Take care.

Posted 9/30/2010 11:50 AM (GMT 0)
turn  thanks for taking the time to answer me, it/s just so nice to talk to people who can relate, although I would not wish this on anyone! Also how do u get a header to show up in the subject on this forum? U sound like u have a great hubby, mine is too but does not get how bad it can be and too afraid to let me quit. I want to so bad but afraid also, what if I cannot afford my meds? kcblues2
Posted 9/30/2010 1:10 PM (GMT 0)
I definitely don't think you are a whiner. Many people with fibro find it difficult to continue doing all of the things they did before. Add other health problems to the mix, and just getting through the day can be tough. Have you ever applied for disability? Especially with the cardiomyopathy, it seems like it may be something to investigate.

Would your husband be willing to read info about fibro or go to a doctor's appt. with you to learn more about it? When my husband got more info, he was much more understanding. You can find information in the Fibro 101 thread on this forum or do a Google search and find lots of good info.

As far as getting something in the subject line, when you hit the "Post topic" button to start a new thread, you should see a space for a "Subject" line at the top. I use Firefox, and it comes up right under the "post icon" section. I'm not sure what it looks like in Internet Explorer, but there still should be a space somewhere at the top called "Subject" or something similar with a space to type in your subject.

Hugs - Austen
Posted 9/30/2010 6:14 PM (GMT 0)
KC, I can see where you don't think this is fair.  You are the one that is sick but you also are the one that has to work while he is home.  There is something wrong with that picture.  I'm glad he cleans for you.  That's wonderful and I'm sure you thank him, too.  But, he really needs to know what is going on in your body.  There are some good links in Fibro 101...the first thread on the forum....that might help.  They are called The Spoon Theory and Doctors Respond to New York Times Article.  You can print these out and ask your hubby to read these.  He does have the time, you know!  devil

 

Also, like others have suggested, have him go with you to the doctor's appointment.  That could help.  Maybe the doctor could talk to him, too.  It would be so good if he would work more hours so you don't have to work.  Of course, I'm not telling you something you don't already know!  I hope this works out for you.

 

Now.  This is how to put in a subject line.  When you click on Post New Topic, you sill see some icons along the top of the page.  Right below that you will see the word "Subject" and then you type your subject in the box.  Then post as you have been doing.  I did put a title for you on this thread.

 

Be sure to let us know what happens here.  We really do care about you!

 

Sherrine

Posted 9/30/2010 11:38 PM (GMT 0)
thanks everyone, its nice to talk to people that know what it's like, wishing you all a pain free night!
Posted 10/1/2010 12:38 AM (GMT 0)
Hi kc, I know what you are going through, I thought my husband would be so mad at me if I quit my job, but when I finally got up the courage to ask him about it he supported me 100%. I dont know if you have talked to your husband about it but if you haven't its worth a try.
Gentle Hugs
Shirley
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