No chemo today

Thank you so much my friends for all the well wishes, I cant tell you how much the support you have all shown means to me. As far as the test results my friends the cat scan showed that both of the tumors have decreased in size. Yahoo!!   I don't know yet if they will be able to cut the amount down to 4 rather than six but Im just happy knowing it has gotten smaller. However they could not do chemo today because my blood platelettes were only 41,000 and normal is 150,000 so they didnt want to do the chemo with them being so low so we will be going back next Wednesday and hopefully they will be able to do the treatment then.

My daughter dropped us off at 8:00 and we were done at about 9:30 and she had school till noon. Charles had taken his scooter along so we decided to walk home. It was a nice walk until we got a couple blocks from home then my back said ok thats about enough of this and so that last couple blocks was the little engine that could again. Boy I got home hit the chair and couldnt move for about an hour or so. I would have posted sooner but my daughter came and I was visiting her then my son came with grandson and son was on computer while I got to spend time with grandson. They just left so I finally get my computer back. lol I miss my little goober though he can be so much fun, but I know that he is coming down again tomorrow.

All of the other blood tests came back good. the liver enzymes were up a bit but not alot and I asked if it would hurt to wait a week for the chemo and she said it should be ok. I didn't see the dr. today it was the nurse practitioner but she talked to my dr. and he was the one who decided to hold off for the week. They will also be reducing the amount of chemo that they have been giving me. Im a little nervous about all of this but I am holding onto my positive thoughts and my faith that God is with me no matter what happens.

Once again Thanks so much for all your support and your prayers. You really have been part of my family and I love you all.

Gentle Hugs

Shirley

Have they checked your platelets for clumpimg. I have a rare condition called

psuedothrombocytopenia due to a chemical EDTA inside test tubes.

In the past I always had normal platelet counts. Then they dropped as low

as 14,000. The doctor assumed it was due to a chemo drug I was on. The

fact was really due to my platelets started reacting with the chemical inside

the test tube and started clumping.

Now when my bloodwork is done the standard EDTA purple top tube is used

and a citrate blue top tube without the EDTA is used for platelet counts,

This is an example of my platelet count done recently....standard EDTA tube

that was always used in the past..platelet results 55,000. The platelet test

results using the blue top citrate top 195,000. Normal count 140,000-440,00

This condition affects 1 out of 10,000 people and many people have undergone

uneccessary treatment because doctors don't figure it out. I had 2 bone

marrow biopsies and a spleen ultrasound because they didn't check for this

condition.  It was my own research that led to me questioning an oncologist

hematoligist about the condition.

I'm sorry if I'm rambling, but I just wanted you to be aware that something

as simple as a test tube can cause false reading.

Shirley, I will continue to pray for you my friend and hope that your platelets

bounce back.

Hugs, Robin

Post Edited (crazykitty) : 9/30/2010 7:40:47 PM (GMT-6)

What great news about the tumors shrinking! Hopefully, that will continue till they don't exist at all.

I never heard of the reaction to the test tubes that Robin mentioned. That is fascinating and frightening. I am so glad Robin shared that info ( just sorry she had to find out 1st hand about it!) I hope that is the reason for the results and and you can get back to getting healthy.

I'm so glad you and Charles have each other, you are both an inspiration, and he doesn't even 'know' us. I will keep both of you in my prayers.

God bless.  Alice.