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Posted 11/5/2010 12:20 PM (GMT 0)
Has anyone ever had maybe a 4 day stretch of minimal fibro? Sleeping well, hardly any pain, no anxiety ect, then start to think hmmm... maybe its gone? Then you wake up one morning and the pain starts. In my left gland it hurts and no its raidiating down my neck arm and back. So much for that, lol. I am truely grateful for those quiet days. First time I have had that in months

Cricket

Posted 11/5/2010 12:45 PM (GMT 0)
Glad you had a nice, comfortable few days. Hope you get more of them! :-)

Sorry to hear you are not feeling well now, though. Sure, that has happened with me a lot. Most days the pain is really bad, and recently my emotions are running wild. I have had small stretches where it seemed as if there was improvement, only to be blindsided within a couple of days. I've been recently diagnosed with fibro, and your post has been helpful. Thank you.
Posted 11/5/2010 12:55 PM (GMT 0)
Awww Free Im sorry to hear but your in good company here. I used to feel so alone and now when things start hurting I come here. Im new too only diagnosed in june. The emotions running is a nightmare. Took me a while to realize it was the fibro because I am not always like that. Anytime you need help or just a hug we are here for you:)
Posted 11/5/2010 1:21 PM (GMT 0)
For sure many of us have days like this...I just did last w/end, even stopped taking my meds (still in denial a bit here) only to severely pay for it earlier this week. I had such a great weekend but now I'm depressed about how I'm feeling. Trying to stay positive, and looking forward to great days ahead! Just wish I knew when, so I could plan a little better! :)
Posted 11/5/2010 1:25 PM (GMT 0)
I know how you feel. There is no planning for me. My family knows everything is a maybe. Its just funny how I woke up painfree today and now as I sit here I feel the pain spreading. I understand your depression too. It comes over me like a cloud from no where. Just remember your not alone and it will pass. Use these times to be good to yourself:)
Posted 11/5/2010 2:06 PM (GMT 0)
I am so happy you managed to enjoy some relatively "pain free" days Lordsdaughter!! What a blessing to your body.

I hope you see more and more of those types of days in your future...I'll be praying about it!

hugs,
Pam
Posted 11/5/2010 2:10 PM (GMT 0)
Cricket, I just have to say that I'm so glad I found someone else that has the radiating pain from the glands. Not that I want anyone else in this kind of pain, but reassuring to know I'm not crazy or the only one. This is a fairly new pain for me, within the last few months and today it has decided to start up again terribly. Causing spasms down my left side of my neck and into my back and arm.

When I read your post it's as if I could have written it! I find that I can stretch it out but it's a really strange angle and I have to move my mouth in strange positions to get the stretch just right.

It's been 4 years since my dx and I guess I just try to enjoy the pain free days, I think I'm past the point of thinking that the Fibro could be gone completely and just trying to enjoy the days where it's less/close to gone :)
Posted 11/5/2010 2:16 PM (GMT 0)
Thank you Pam (hugs)

Frankey

Thats exactly what happens at times. Almost like all the pain today started from those pain twinges in my gland. I know feel myself going into a flare. I have spots now on that side that when I touch them its ouch. Even my face is burning. I think I have accepted this pretty well now and my only goal is to try to help others through this. My faith keeps me strong and I look for the small blessings in my life. Use your painfree days as rest for your soul. And know no matter what someone here is always with you!
Posted 11/5/2010 2:53 PM (GMT 0)
Hi Criket, I am glad you had some good days and Im sorry that you are going into a flare now. In your last post you showed the kind of inner strength we all need to get through this. Always remind yourself how special you are and that the pain isnt always going to be so bad it helps us to keep going.
Gentle Hugs
Shirley
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