Bone Crushing Leg Pain - Help!?

Has anyone else ever had this kind of pain?  I also have lupus so I have intense hip, and ankle pain - but mostly severe knee pain.  However - when it gets bad it starts with my lower legs between my knee and ankle - just feels like my bones are being crushed into pieces...then moves up to my upper legs.  The pain is so aweful and feels like theyre bruised all over.  It's not the same fibro pain I get in my back or that muscle pain I'm used to but just feels like the bone pain is horrific.  I don't know if its more related to the lupus - but folks seem to think its more to do with fibro...almost like shin splints times 300.  I take 4 10 mg percocets per day and when its this bad it only makes my head foggy but does NOTHING for the pain...not even close.  I use heat which helps a bit and ended up in the ER once for it and they gave me IV Diluadid which would last about 45 minutes and then I was back to writhing in pain. Of course they couldn't give me more for 2-3 more hours.  So of course after 11 hours there...they increased some of my Lupus meds, increased my steroids and increased my savella to 150 mg per day.

Does this sound familiar to anyone??  I take vitamin D supplements but they are still most likely oing to do a density scan...the pain is just horrible combined with the already stabbin joint pain from the lupus...blah...thanks in advance!

Hi Penn, Bone crushing pain is how I always describe my flare pain, it's how I
first described my pain to my rheumy. It's intense to the point where I feel
like I'm going to pass out at times...it's as if my legs were in a very tight vise
with something ramming into them. I attribute the pain to fibro. I also have some connective tissue diseases going on and my worst flares are when every-
thing starts acting up.

I get some relief using muscle relaxers, doing deep breathing, meditation and
soaking in a warm- hot bath.

The leg pain is horrific and I had a bad episode yesterday...a cold front was
moving in and I'll blame it on that :)

Hope the pain subsides!

Hugs, Robin

Hi there,

Yes I often get this pain in the lower legs...like shin splints, but worse and if I have to bend down, I feel like my bones won't straighten out to stand me up again! Not fun!

I only have fibro and I get bad pains also in my lower legs..... no way to really describe it.

Thanks for the support, it is hard for others to understand. My family knows the pain is real which is a relief because I have ran across others whose families don't even get that the pain is very real. My family complains that I cry in my sleep from the pain, and as my husband put it, it is kinda hard to fake something in your sleep.

What I experience sounds alot like yours. I cant take pain pills due to liver and pancreatic problems (or so that is what the gastro is saying at this point). Heat is the only thing that helps me. I soak in a hot bath. The pain eases almost as soon as I get in, however it returns before I can even finish drying off. Most times it is lower legs and sometimes it is from hips to feet.  It seems that I do not really suffer from the average symptoms of fibro. I was dx in dec. of 11 with fibro and have had two other primary dr.s and two rheumys confirm the fibro dx. So according to them this is a text book symptom of fibro. I wish I could offer you the answer that could make it all go away. I havent been to er with it, but I have asked my husband to just chop 'em off 'cuz dear God it could not be worse than the deep intense throbbing and atleast with that solution there would be relief eventually. I am starting to get the same feeling in my hands and lower arms. The pain is so bad and can come out of no where and for no forseen reason. More often after or while I am running errands, but can hit when I have enjoyed a leisurely day as well. I choose to deal with this by seeing Dr. after Dr. (idiots just run same basic blood work), in hopes that I can find some peace and regain my life back. I keep going to them because that seems to be how they learn to understand just how bad it is. I also keep asking for referrals to different specialists in a desperate attempt to find a dr. to fix it. Maybe you can try a pain management facility. My mother-in-law swears by the acupunture methods, but the thought freaks me out and I dont know if I could make myself go through with it.

I wish you the best and hope that you find help for this soon.