me and my fibro

Hello to everyone; I am new to this site. I have read all the topics under fibromyalgia and thought I would post a little about what I live with. I started having severe pain in 1998. Saw more doctors that I could count and they said I was either out of shape, having depression problems, and I know they thought I was hypochondriac. I finally went to see a sports med doc and he referred me to a neurologist. Did MRI's, cat scans, mylegram, discogram and finally he told me he could not help me and was almost certain I was suffering with fibro. I became depressed, frustrated and began suffering from panic attacks. I really did not know where to turn. I began working in the car business in sales and that tired me so badly I had to stop. Took a job in the Finance Dept. The stress of working 12 hour days and all the work this job demands finally got the best of me. I had taken several leaves of absence. I would do well for about 3 months then would have to take 2 off. Finally I decided that it was time to file for disability. I filed (had a lot of documentation I had kept) so my application was very thorough. 4 months later I got a call from the Social Security office, went in and found out I had been approved on the mental side and the physical side. It was a relief for me but it seems like since I quit work, my pain levels are out the roof. Each day it gets harder and harder. I always feel like I have a slight fever, my knees are killing me and it feels like I have no strenght to walk. Can not sweep or mop anymore because my arms feel so weak and painful. I am really frustrated waiting on doctors and appointments (don't have insurance and won't get medicare until July 2011. I have tried cymbalta, savella, darvocet (which they just took off the market). lyrica, ambien cr, trazadone. I am now on 1800 mg of Neurontin daily, Lortab 10 mg as needed, celexa, effexor xr, seroquil, a statin for high cholestrol, and lisinopril for high blood pressure. If I don't stay on the Lortab I can not function. I guess I am in denial with the use of a cane or walker. Does anyone take something other than what I mentioned that might give me some relief. I am in dire straits, please help.....

Welcome to the forum!! Robin gave you some great advice and right now I can't think of anything to add.

Hi - welcome. Sorry you're going through such a hard time, and I wish I had some help for you. I can't mop either, or scrub, or vacuum. Everything I overdo AT ALL comes back to bite me in the left side of my body (esp neck through sacroiliac.) I do try to walk some each day, though, and as Robin said, stretch my muscles - I know I should do this a lot more.

Are you currently seeing a doctor who you can believe in? That makes such a difference.

Debbie