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Posted 3/2/2011 9:53 PM (GMT 0)
Exhausted is more like it. I'm here whining because I know you all know what I'm talking about.  I've been 'sleeping', but I can't seem to get enough lately. I think I am pretty well off with the fibro thing so far, and am not always convinced that is my issue. lol. Denial is a wonderful thing. This horrible exhaustion, however, is kicking my butt!!

An even bigger kicker? Tomorrow I have to take my Dad to the hospital for a procedure, and it will be an all day thing. I'm already exhausted and achey, hurting far more than usual and tomorrow I have to get up early and do the hospital thing. :(  It's not that I don't WANT to go, but I don't FEEL like going... you are the only ones who understand what I'm saying.

Anyway, I am thankful that I am able to take my Dad and be there for him. I took Friday off of work to recover, so I'm sure it will be a temporary thing.  

Thanks for letting me whine.   I'm off to pick up a book and a couple of magazines to keep me company tomorrow.  Any suggestions on dealing with this exhaustion would be much appreciated!

:)

Posted 3/3/2011 12:20 AM (GMT 0)
Hope all is well with your dad!! I have been known to get comfy and fall into a lite sleep for those extended hospital procedure days.

I can't seem to get enough sleep myself. No insomnia for a couple weeks, asleep usually around 11:00 or 11:30 and I am sleeping until 9:00 or 10:00. I mean deep sleeping, I don't even hear the dogs bark when hubby lets them out. I don't know whats up with that.
Posted 3/3/2011 2:05 AM (GMT 0)
Luvskermit, I agree with Denise, just be prepared to sleep if you can. I bring a pillow everywhere, but for something like this, I might bring 2, and a little blanket or throw.

It's so hard when you want to be there and your body won't cooperate. The night my dad died in a nursing home, I spent the whole night in the lounge, where I could see him - but he was unconscious, and as I realized later, he couldn't see me or know I was there. I tried lying on a couch, but couldn't get comfortable enough to dose off. So I didn't do him or myself any good ... (If only I'd thought of asking someone to wheel a cot into his room!) I was hurting pretty bad and exhausted beyond belief, not thinking straight.

I finally left to get a bite to eat about 8 am. I told him I loved him and that I knew he had to go, and when I got back, half an hour later, he was gone.

I hope everything goes well for your dad and that you're able to get some rest.

Debbie

"Life can only be understood backwards but must be lived forwards."
Posted 3/3/2011 5:56 AM (GMT 0)
I've had that fatigue out feeling for many months with the malaise. I can't kick it either. I just go to work and come home then sleep. Still feel tired even with coffee and lots of sleep. The general feeling of malaise of feeling sick is always there it's hard to describe to a Dr. that does not have Fibro. It's not the cold or flu. It's feeling ill all the time, but I have SLE too. I always have to take a nap then go out and do something like run errands or visit friends. If it's a work week then I can only work then sleep. It's hard just to go get gas or clean the house. Even to keep up my personal hygiene and take a shower I put off. Gross. My Dr's wonder how I live alone and I do too. I need a roommate to help me out or just someone to be around to help me through this.
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