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Posted 3/17/2011 1:57 PM (GMT 0)
Hi everyone,
I haven't been on for a while, but i have low vitamin D and was advised to take 5,000iu of vitamin D.

I have been taking it for about 2 weeks and i haven't felt any difference in my pain or fatigue, if anything my fatigue seems to be worse.
I am not low on iron etc, does anyone have any advice or get no help from vitamin d?

thanks
Posted 3/17/2011 2:55 PM (GMT 0)
Hi, I was also very low on vitamin D and still take 5,000 IU a day. My level is up to 72 which is good. I don't notice much if any difference after getting my level up either. It takes more than 2 weeks to raise your levels so I would give it time and maybe you will notice a difference as we are all different.
Posted 3/17/2011 3:42 PM (GMT 0)
maybe a vitamin with malic acid and magnesium combined?
Posted 3/17/2011 5:17 PM (GMT 0)
If you are really low in D, it could take longer for you I imagine.  I was very low and it took me months to barely reach "normal"...32.  I'm still taking 5,000 IU a day and will probably do that the rest of my life.  If you are in the sun with no sunscreen, you  can get 10,000 IU in about an hour but that would be unsafe because of skin cancer.  I live in Florida and am in the sun a lot but I wear sunscreen.  So, I am deficient in D. 

 

Also, are you taking D3?  There are a couple of different vitamin D supplements but you want to take D3.

 

My fatigue will come and go.  I was so fatigued several weeks ago that my doctor checked my thyroid and B12.  The tests came back normal, of course!  That's usually what happens with fibromites.  turn    But now I'm not having the fatigue. 

 

Try not thinking about it so much.  Just take the vitamin, because you obviously need it, and keep going.  If you think about how you are feeling a lot, you will feel worse.  At least that's what happens to me.  I don't think about my illnesses.  I just live my life to the fullest and enjoy life.

 

Sherrine

Posted 3/18/2011 12:26 AM (GMT 0)
There has been news going around for a short while about calcium supplements being associated with cardiovascular disease.  today a new study came out that said:

  • "Calcium plus vitamin D supplementation can reduce the risk for fracture among adults;
  • The current meta-analysis finds a higher risk for myocardial infarction associated with the use of calcium supplements without vitamin D;
  • Calcium supplements did not significantly affect the risk for stroke, a composite cardiovascular outcome, or death;  
  • There is no compelling evidence that the combination of calcium with vitamin D significantly increases the risk for cardiovascular events, and physicians may continue to recommend this therapy to postmenopausal women unless new research demonstrates an increased level of risk"

    • There are also several articles saying vitamin K is necessary in order to utilize calcium.  K is found in leafy dark greens - broccoli, spinach. lettuce ..

    The toxic level for D is 10,000 a day, but it IS possible to get too much D.  We all need to have blood tests.  There are several types of D in our systems, so you really need a doctor monitoring.  I neded to take 4000 units a day in winter, but this puts one of my levels a bit high.  I'm trying to get a little more vitamin K to see if it levels things out.

    Posted 3/18/2011 6:19 AM (GMT 0)
    I am sorry you are not getting any relief yet. You may not notice an improvement yet, it takes awhile to build it back up, (at least it did in my case) it took me about 3 months to start feeling better with the IV line in, but I can't say enough about how wonderful I felt. I also have sever vitamin D deficiency ( along with many others). My level for march was 14. I take 50,000 2x week. When I had my central line in my chest, I got bags of food and vitamin supplements. It got as high as 34 and it made me feel wonderful. I could actually walk normally, no cramping in muscles, energy was up. I had 9 glorious months with the line in, but do to my immune suppression, had to take it out for fear of another massive infection. Bit by bit my levels dropped again and am back in the wheelchair and in so much pain. Even with the massive amount of supplements I now receive, my body just can't absorb enough on it's own. I have literally begged them to put the line back in my chest so I could get all my vitamins, but they can't. Vitamin D deficiency causes me so much pain and has lead to other illnesses developing. Hypoparathyroidism, osteopmalacia, osteoporosis, and a few others. It did hurt more at first when I started supplementation, doctors explained to me that when you are deficient, your bones fill with water and get soft and brittle, as it is being replenished, it forces the water out and replaces it with the proper cell structure which is more dense and causes pain and muscle weakness at first. I am so sorry you hurt, but if you can, try to hold on and keep taking it. If your body absorbs it, you should feel some, and possible a lot of relief. You will be in my thoughts.
    Posted 3/18/2011 11:21 AM (GMT 0)
    Chatters...have you ever tried eating gluten free?   Malabsorption is one of the #1 issues with gluten intolerance.  If gluten is an issue for you, you will not absorb any vitamins properly.

    A new study out is saying that 1 in 20 people are gluten sensitive.  Our bodies were neaver meant to digest grains and many of us can't eat grains.  Every one of your diagnoses can be attributed to a gluten intolerance.  I was 45 before we figured this out and have been sick all of my adult life.  I still can not get enough vitamins from eating, yet with supplementing, I have gotten my levels up.

    Also I would like to touch on B12.  Many doctors do not understand B12.  A B12 "normal range" starts as low as 200, only goes to 900, I believe.  200 is way too low for anyone and 900 is too low for most.  My neuropathy has stopped progressing because I take B12 daily.  I am under the care of one of the best neurologists out there and my level is at 1800, he is in total agreement that this level is fine for me.  I was taking 5000mcg of sublingual methylcobalamin B12, now am trying to see if my level will stay stable on 2500mcg.  We will test again at my next appt in June.

    It is true that Vit D needs to be D3.  The shots they give you, and the 10,000IU RX pills are not D3.  We aren't able to absorb as well from D2.  Chatters, are you still taking Vit D by mouth?

    Posted 3/18/2011 12:24 PM (GMT 0)
    Thankyou for your replies, I'm sorry to hear about your problem Chatters, I hope they can figure something out for you soon.

    I am going to keep taking the vitamin D and hope that it makes a difference the longer I take it.

    To change the subject, I have also found that theres certain food I can't eat, eggs, cheese and chocolate. I have IBS, I have never had any problems with these foods until recently. Is it possible that all of a sudden your body can reject certain foods?

    Thanks
    Posted 3/18/2011 4:00 PM (GMT 0)
    To change the subject, I have also found that theres certain food I can't eat, eggs, cheese and chocolate. I have IBS, I have never had any problems with these foods until recently. Is it possible that all of a sudden your body can reject certain foods?

     

    Yes, at any time your body can change it's mind.  Often times when we have auto-immune issues, your body may suddenly see certain things as enemies...such as a certain food.  I started out intolerant to gluten (wheat, rye, and barley) then the intolerance's exploded.  Actually for me, it's leaky gut syndrome.  Sometimes when you finally get the leaky gut to heal, you can add the food back in.

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