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Posted 3/30/2011 2:06 AM (GMT 0)
Hello everyone...

I have a question.  Do you find that you are hypersensitive to sound, light and touch?  I seem to be very sensitive to all of these and it seems to correspond to my Fibro and when I am in a flare.  TIA.

Hoping for a pain free night for all of you.

Lisa smurf

Posted 3/30/2011 3:01 AM (GMT 0)
Very sensitive to sound, bright sunlight and sometimes touch. Not too talkative tonight

I try to never drive at night as the other cars headlights blind me and even in the day when it is sunny is bad.  Hubby has the TV turned 3/4 of the way up and it actually hurts my ears.  And his love-taps owwiiee about kill me sometimes and it was not always like that.

He is out of town for 5 days and I just made myself a nice juicy T-bone steak yumm good.

Posted 3/30/2011 3:07 AM (GMT 0)
I am very sensitive to sound.  It actually hurts when my husband coughs or someone is in the kitchen messing around w/pots and pans. I have the same issue with touch. Sometimes it hurts for someone to touch me, and tags on clothes drive me nuts.  Guess I am not alone, eh?

V

Posted 3/30/2011 3:22 AM (GMT 0)
Hi Lisa,

I am also sensitive to sound for an example when my hubby is home watching tv I usually find the sound to be screaming loud and since we are sharing a vehicle until the roads are clear I immediately have to turn off the stereo when I use it. Lights yes I am finding sunlight makes me tear up so everyone is enjoying a sunshine day I am too but I have tears running down my face. My hubby can not "pat" me gentle enough and high fives with my grandchildren even hurt me. So yes I am also very sensitive to sound, light and touch.

Take care
Rose
Posted 3/30/2011 3:50 AM (GMT 0)
Thanks guys...I am babysitting a baby until Sun and his cries are driving me crazy! I never had that reaction before. My 5 year old loves to run around screaming also so with the two of them and my daughter fighting, sometimes it drives me crazy!!! Sunlight always have bothered me and when my kids want to cuddle and lay on top of me, it can hurt. And they feel so boney that it feels like it is going through my skin(if that makes any sense) And I am up because I cannot sleep. My mind wants to sleep but my legs and back hurt! Oh well.
Again thanks,
Lisa
Posted 3/30/2011 6:34 AM (GMT 0)
Hi Lisa~

I'm another one who is very sensitive to light and noise and add temperature. If I'm warm or in a hot shower and someone were to splash 1 single drop of cold water on me every muscle in my body jolts and I'm ready to take them out. The other one is touching anywhere in my neck/shoulder area. I've put a couple of people on the ground for coming up behind me and doing that. Swing first, then see who's down there looking up at you...lol My SIL spaced out on this fact about 8 months ago and came from behind to give a caring pat. His huge hands went over the tops of my shoulders and he felt me instantly go stiff. He quickly jumped back and didn't stop apologizing for about a week. Just thinking about it I got goose bumps down my arms!

And those screams you are describing? You and I would both be on the ceiling together on that one. If we were to look at the symptoms that encompass fibro these sensitivities would all on there plus many more. I found this information while searching the internet. It really tells the story. Hope it sheds some light on this topic.

Chutz

These results on FM sensitivities are from a survey done by FM/CFS/ME RESOURCES.
fmcfsme.com/art_lowcostdrugfibromyalgiacfs.php

*Cold - 71%
*Heat - 65%
*Light - 72%
*Noise - 78%
*Smell - 57%
*Touch - 54%
Posted 3/30/2011 11:47 AM (GMT 0)
Chutz~, HA, I am glad that I am not the only one to react to this. I was never like this before and I loved working in the baby room when I worked at at daycare center. Now I think that I couldn't handle the hard crying babies do. not to mention the picking up and bending over. The little one I have is one and weighs 25 lbs! As for my son screams, my first reaction is to run or scream at him... And yes scrape my off the ceiling....with a chisel!Not the most productive thing! And thanks for finding the article on sensitivities, It is very interesting! I thought that I was going crazy or something is wrong with me because I could not handle this now in my life. It stinks that Fibro robs you of not only activities of your life due to pain but changes your senses in life and how you react to things! Again, thanks to everyone for helping me and answering my questions. I don't think people understand the way fibro affects your day to day living as well as the pain. Oh well. When life gives you lemons, make lemonade!
Talk to you later.
Lisa
Posted 3/30/2011 12:30 PM (GMT 0)
Add me to the group!  I am sensitive to so many things, including light, sound, and touch.  I call myself the "Princess and the Pea"...I can't stand things touching me, more so on certain days.  There was a time when a necklace would drive me nuts within minutes, no watch, no bracelets..nothing.  Couldn't tolerate sleeves touching my elbows, hated pants touching my knees.  I also have sensory neuropathy, so now not sure if it's the neuropathy or the fibro, maybe both.  My eyes are very sensitive to light, and some sounds just make me crazy.  Although, I like my music loud, only my music though! wink
Posted 3/30/2011 12:36 PM (GMT 0)
Oh yes, sound, touch and light.  Clothes with any kind of texture too them drive me crazy...it isn't painful but the sensation of the fabric against my skin gives me goosebumps.  I was in Walmart a few days ago and the woman in front of me in the check out line was thurmbing through a People Magazine while her child arched his back and screamed until he choked.  I had to move to another line.  Can't take it!

Donna

Posted 3/30/2011 12:37 PM (GMT 0)
Makes you want to slap the mother, doesnt it??? nono
Posted 3/30/2011 12:47 PM (GMT 0)
My ears actually "beat" or pulse when I hear certain sounds. Unfortunately one of those sounds is my daughter's voice and more unfortunately is that she is a yacker. I usually have to tell her to tone it down. Loud sounds like in a restaurant makes me grit my teeth.

I've always been sensitive to bright light. I had the German Measles when I was twelve and almost went blind so my eyes are light sensitive.

Touch doesn't seem to bother me much. But I do find that at times I tend to avoid things and people that want to touch or hug. Not that it hurts but its uncomfortable.
Posted 3/30/2011 12:51 PM (GMT 0)
Ah, the sound of a child's scream! If it is a mother not giving inyo a tantrum, good for her. If it is a mother who is ignoring her kid, then shame on her!
Posted 3/30/2011 3:10 PM (GMT 0)
I am so glad I found this post. I was dx with fibro back in May 2010 and prior to that noise didn't bother me, but now I am so sensitive to noise. It doesn't even have to be loud. I can be with my husband and daughter and my ears are ringing and throbbing and  I ask them if whatever we are hearing is too loud for them and they look at me like I'm weird!! I loved to listen to my ipod and now I can't hardly stand to have it in.

We have the cutest daschund puppy and she loves to sit in my lap, but there are times when I can't stand to have her on my legs. When she jumps up on my her feet feel like daggers going into my thighs.

I wholeheartedly agree with a previous post that it isn't fair that not only has fibro taken away what we can physically do, but it also effects our wonderful senses of sound, seeing, and touch. 

But it does feel good knowing that I'm not going crazy and that it is just this horrible disease.

Posted 3/30/2011 6:17 PM (GMT 0)
I watch children for a living and sometimes yes sounds gets to me I take a tramadol and that helps.
Veronica K
Posted 3/30/2011 7:12 PM (GMT 0)
add me in there too...I try to avoid crowded eateries too...I just want to stand up and scream, could you just keep it down????
everything feels over the top!! sound, light, touch, weather...
Posted 3/30/2011 8:08 PM (GMT 0)
Wow, I have all these sensitivities too. As far as clothes and sheets - anything next to my skin, is has to be soft cotton. I find anything with polyester or acrylic in it irritating.
Posted 3/30/2011 11:45 PM (GMT 0)
Count me in too.
Marilyn
Posted 3/31/2011 12:22 AM (GMT 0)
I am so happy (you know what I mean) that others have these type of sensitivities as well and I am not going crazy! Thanks for everyones input.
Lisa
Posted 3/31/2011 12:54 AM (GMT 0)
Bright light, check. Touch, check (I buy the good, expensive sheets, because the cheapo sheets made my skin itch).

Sound, double-check with a frickin' cherry on top.

Also, smells.
Posted 3/31/2011 2:25 AM (GMT 0)
Myself, I actually splurged and bought 1200 thread count sheets......pure heaven!!  I forget what I paid but I got them online, recomended by a friend.  Buy one set get one free, another friend split the cost and got the other set.
Posted 3/31/2011 11:21 AM (GMT 0)
Me too, I'm starting to notice I can feel fabric on my skin at times, kinda like sticking me....odd.

Also I have been raising children for many years so I am use to LOUDNESS however I can't take it anymore. It stresses me out and causes my heart to race, then I can't focus.
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