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BOTOX INJECTIONS FOR RELAXATION?THATS CRAZEE!

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Fibromyalgia
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Posted 4/6/2011 7:00 PM (GMT 0)
OK...i HAVE BEEN DIAGNOSED WITH FIBRO,CFS,RESTLESS LEG,HYPOTHYROID...HUMMM..WHAT ELSE..OH,SLEEP APNEA,B12 DEFICIENCY&VITD.bUT i AM TESTING POSITIVE FOR LUPUS,HAVE THE RASH SIS HAS IT,HAVE ALOT OF SWELLINGETC.WHAT i WOULD LIKE SOME TAKES ON IS THIS..THEY ARE GOING TO SHOOT MY MUSCLES UP WITH BOTOX TO MAKE THEM RELAX.NOW,IM ON PLAQUENIL,AND I KNOW THATS AN IMMUNE SUPPREESANT-SO IS THE BOTOX THING SAFE?HAS ANYBUDDEE HAD THIS OR HEARD OF THIS?iM THIINKIN"NAW,I REALLY DONT WANT BOTOX IN ALL MY MUSCLES."
Posted 4/6/2011 7:09 PM (GMT 0)
I know I wouldn't do it.  Gentle exercises like walking, swimming, yoga and also gentle massages could help with your muscles but I wouldn't be putting botox in my body.  That's just my opinion.  It is basically a poison given in small amounts and it lasts about four months and the you have to do it again.  Here is what the National Institute of Health says about botox.

 

http://www.nlm.nih.gov/medlineplus/botox.html

 

Sherrine

Posted 4/6/2011 7:59 PM (GMT 0)
i KNOW EH.MY RHUMY WANTS ME TO GO SEE THIS DUDE TO GIVE ME THESE INJECTIONS.AND WHAT IF I REFUSE?DO THEY TREAT ME UNFAIRLY BECAUSE I QUESTION IT?i QUESTIONED A DOC BEFORE..TURNED OUT I WAS RITE.BOY HE WAS MAD.HAD TO SWITCH DOCS CAUSE HE TREATED ME SO BAD.AND I HAVE TO GET THIS LESION THING TAKEN OFF MY FACE,THEYRE GUNNA TEST IT FOR LUPUS.WHAT IF IT COMES BACK POSITIVE?AND iVE ALREADY HAD THESE STUPID BOTOX INJECTIONS?i CANT SEE IT BEING GOOD WHEN YOURE IMMUNE SYSTEM IS SO LOW..YEAH,I DO STRECTHES AND STUFF.USED TO BE ATRAINER SO IM AWARE OF ALL THE STUFF TO DO WITH EXERCISE.ITS THE HURTING,SWELLING AND REAL STIFFNESS THATS HARD.iVE HEARD OTHERS TALK ABOYUT LYRICA IN OTHER ROOMS,BUT I WAS ON THAT AND PUT ON 50 POUNDS IN 3 MONTHS.NOW IM OFF IT AND THEY TELL ME TO LOSE WEIGHT.STINKIN WEIRDOS.i DO CARRY IT WELL..ITS ALOT OF BOOB MOSTLY HATE THAT.MAKES YOUR BACK HURT EVEN MORE.HOW LONG HAVE YOU BEEN DIAGNOSED SHERRINE?AN YA KNOW,I STILL HAVE EVN FAMILY THAT TREAT ME LIKE IM FAKIN IT.
Posted 4/6/2011 9:02 PM (GMT 0)
Shoeless, I think I'd just tell them that you feel uneasy about it and want to think about it.  Then drop it.  You don't have to do anything they suggest.  If they are professionals, they shouldn't treat you differently.  If they aren't, you need to find a professional doctor that treats fibromyalgia.

 

I have a board certified Internist who has suggested Lyrica and Savella to me.  I'm not willing to take them and told him so.  He dropped the subject but still gives me excellent  health care.  You need a doctor like that.  Don't put anything in your body that you don't want to.  This is a free country and you are the boss and it's your body.  You would be the one to suffer any bad side affects...not them.  Remember, when you see a doctor, you are hiring them for their services.  Just use your good judgement.  You might decide sometime down the road to try botox but is should be YOUR decision.

 

I've had fibro for 24 years...this month, actually!

 

Did you read Fibro 101...the first thread on the forum?  There are a couple of great links you might want to print out and give to your family that don't believe you.  The links are Doctors Respond to New York Times Article and also A Thorough Explanation of Fibromyalgia.  This might help them understand.  Sometimes, nothing helps them understand.  It's best to just let it go.  You know you have this pain and your doctors do too.  So just ignore others as best you can.  You don't want to stress over their ignorance of fibro because that will only make your pain worse.

 

Now, can you do me a favor?  Please do not write your posts in all capital letters.  It is considered yelling!  I didn't know that.  Also, it's very difficult to read and it also is against our forum rules...Rule #15.  Thanks!

 

Please let us know what YOU decide to do with your own body.  We really do care about you. 

 

Sherrine

Posted 4/7/2011 12:03 AM (GMT 0)
Hey-sorry it was caps.just started that way so I was too lazy to change it.my typing is not great,to put it mildly.Im in Canada and you have to be referred to another doc...and they can turn you down especially after they have seen the other docs opinion.Oh well,I guess I will have to cross that bridge when I come to it.But I was wondering if anyone else had the botox thing for fibro.
Posted 4/7/2011 12:21 AM (GMT 0)
My neuro has suggested twice that I allow botox injections in my forehead to help alliviate my headahes and twice I have told him no.  He said he had to try at least one more time...he knows I hate meds and would be unwilling to do the botox, yet he had to make the offer.

It is our body, not the doctors.  We were raised to think the doctor was always right, but I now know that isn't always true either.  You must do what you feel is right.

Posted 4/7/2011 1:44 AM (GMT 0)
Hi shoeless,

I have never heard of the botox thing for fibro but wouldn't do it anyway. I'm in Canada too and its still my body and I decide what I will put into it or not. I know what you mean though about referrals and the way the Drs are here.
Posted 4/7/2011 6:58 PM (GMT 0)
yeah,they have an opinion before they even see ya!
Posted 4/15/2011 1:38 AM (GMT 0)
I have had Botox injections for muscle spasms and tightness in my back, shoulders, neck, head and forehead.  This is the only thing thats has provided my with lasting relief from muscle pain and headaches.  I went from having a headache 29 days out of 30, to not having a single headache for 6 months.  I too was leary of Botox at first, but called my neurologist after a painful 3 days in bed and told him if he could do it that day I would finally give in and have it done. 

Just a few things that I noticed afterwards...  since my shoulder muscles were paralyzed from the Botox, I had a hard time doing things like picking up a gallon of milk or lifting things higher than shoulder height.  Because I had Botox in my neck, sometimes my head was too heavy!  tongue   When getting up after lying down sometimes I had to support my head with my hand while I got up.  And your muscles do atrophy because they are not contracting.  Good news though is that all this wears off eventually, so if you don't like it it is not permanent.

I have had this done 4 times now and each time the results last longer.

Posted 4/15/2011 3:08 PM (GMT 0)
thats cool.kay,Im on plaquenil,which suppresses the immune system,are you on it ,cause I had to get a docs note just to get my teeth cleaned.
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