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Posted 4/13/2011 5:44 PM (GMT 0)
Well, I went back to my doc yesterday. He is very supportive but...I told him how I get the sick feeling and fatigue if I over do things, and he said that's because Im not used to doing more stuff!!??? What??? I am! I don't sit around all day, I take breaks and I know when to stop,  I'm sorry he is wrong here. Call it activity intolerance or whatever, but he thinks exercise is gonna solve that. I can't stand how they think exericse is going to cure everything. I have a problem...it's called fibromyalgia...duh, sorry had to vent. I do keep busy and moving, he must think I lay around all day. whatever.

I have felt better the last two days. yay. Last week was horrible. I do cherish the good days.

KL

Posted 4/13/2011 6:31 PM (GMT 0)
I know it's very frustrating.  There are a lot of doctors out there that think that.  Yes, exercise is important for fibro and it does help you feel better but it has to be gentle exercise and you have to build up to it.  Nevertheless, it doesn't help when you run out of steam.  I feel energized after a walk but I still get very tired in the afternoons.  I, too, am active, take care of my home, shopping, gardening, etc. all by myself.  That's a lot of exercise but I still get tired.  So you are not alone and you are not "crazy" either.  These doctors need to take a crash course on all the new information about fibromyalgia.

 

Don't let this get to you.  You know you are right.  He hasn't walked in your shoes so just let it roll off you.  You now know that your doctor doesn't totally understand this illness.  Not many of them do, unfortunately.

 

Sherrine

Posted 4/13/2011 7:03 PM (GMT 0)
KL,

Yes, I know what you mean! The blank looks - oh, those blank looks - they haven't got a clue!!!

Debbie
Posted 4/14/2011 8:41 PM (GMT 0)
That sorta falls into the "well, you know, if you lost a few pounds you might feel better" catagory. Duh, tell me something that I haven't heard for the past......um, 40 years. I hate when doctors always blame the weight when I say that I am tired, having joint or muscle pain, etc., etc.

Usually I say " well I am about 120 pounds lighter than I used to be and fibro didnt start till way after I lost that weight so....try again".

One way or another you are going to be the reason you don't feel well.

Doctors!
Posted 4/14/2011 9:57 PM (GMT 0)
Sherrine, it's a good thing you already have disability, because under today's guidelines, if you are able to take care of yourself, do housework, and work in your yard, you are not considered disabled. The lawyer I saw didn't think I was very disabled because I could do ADL by myself.  I don't do yardwork, I don't shop, and I do only minimal housework, and he still told me that is how SS thinks.
Posted 4/14/2011 10:46 PM (GMT 0)
wow bwfm that scares me because I am going to try to apply for disability soon. I can't keep a steady job. I have missed to much work due to fibro. I know a few people that got it the first time without help...then some takes 3 times or more.

KL

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