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Tingling/Buzzing/Throbbing in Feet & legs - You too?

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Posted 4/17/2011 4:22 PM (GMT 0)
Hi Everybody, Hope everyone is well this morning.

I'm seeing my doc next month and I want to bring up the tingling/buzzing that turns into a Throbb up my entire legs when they get bad.  This was one of my first symptoms and I used to lie awake in bed at night listening "to my legs sing."  At some point, as time went by, the sensation got so loud, it became pain and aching beyond the thrum.  I know it is not peripheral neuropathy as I've been tested with the tuning fork and I'm fine.   What I would like to know is how many of you have this symptom?  Thanks :)

Posted 4/17/2011 4:44 PM (GMT 0)
I get a little of this...not my whole leg.  It happens if I've been sitting too long or on my feet too long.  Getting up and walking around helps.  I really don't have this problem at night, though.  That would be quite a problem.  Maybe if you walk in place or do some walking around the house before you head to bed, that might help.

 

Sherrine

Posted 4/17/2011 4:52 PM (GMT 0)
Yes, in fact this is getting to be one of my most consistent problems. It's fairly recent with me. I can kind of feel it all day long, but in the late afternoon it really amps up and becomes "louder," as you say, and gets to be an ache. That's when I pop a half a Tramadol and it fades into the background. But why it's happening at all is a mystery to me.

It used to just happen if I'd overdone it, but for the last few months it happens every day (grumble, grumble)

I'll be interested in how many others have this and also what your doctor says.

Debbie
Posted 4/17/2011 5:21 PM (GMT 0)
Hi, Sherrine, Thanks for the suggestion about walking but it makes it a lot worse. Although, I will walk when I can't stand it anymore with my legs up just for the distraction.

Debbie, I'm wondering too what he'll say which is why I'm asking how many of us there really are with this so I have some ammo, so to speak :) & it's not just me. I was also wondering if maybe it was from or related to triggerpoints or those knots as my legs are loaded with the things. Have you gotten more knotty problems in your legs you've noticed since your buzz started getting worse? I take Neurontin for all the nerve stuff but it barely can take the edge off of this similar to what the vicodin I take does. I'm not diabetic so I just really don't understand. And, like you, I'm real curious to see what the others have to say and if they have it.
Posted 4/17/2011 5:25 PM (GMT 0)
You are certainly not crazy...this happens to me...a LOT! Mostly it is in my arms and hands..especially the left. And I can hear my heartbeast in my thumb and my wrist. It is weird!
Posted 4/17/2011 8:59 PM (GMT 0)
FibroProf! Oh, that is weird! Does it do it all the time? Mine are pretty much constant to one degree or another. I get some in my hands and up arms but nothing like the legs. Do you do alot with your arms & hands? Have you ever noticed a correlation with what you've been up to?
Posted 4/18/2011 12:10 AM (GMT 0)
I have the same sensations in my legs and it is worse when I am wearing something with a texture to the fabric...like nubby sweat pants or stiff jeans.  The skin feels tight, crawls, buzzes and tingles...or like bugs are crawling on my legs.  It was the first symptom I had when I was dx'd with fibro and has continued for all these years.  I was treated for Restless Leg also but it didn't help.  It's annoying, especially the buzzing and the feeling there is water dripping down my legs.  I was told it was due to hypersensitivity in the outer layer of skin.

Donna

Posted 4/18/2011 3:36 PM (GMT 0)
I have foot pain, tingling, numbness and all over pain and sometimes it goes up my legs. I also have problems with my left hand from the thumb on up my arm a bit. This is addition other fibro pains. I've been tested for neurothaphy with electric tests to the back of my legs, x-rays, foot doctor's appts. They can find nothing. However none of my doctors believe it's fibro as it's not a traditional trigger point. My latest internist wants me to get the foot testing again as it's been 5 years. Well the problem hasn't changed.

None of the 3 fibro medications (cymbalta, lyrica, savella) helped me. I've tried foot sole inserts etc.

I get a massage everyother week and soak and rub my feet all the time. That is the only relief I get and it doesn't last long. We are susposed to exercise to help the fibro. How can we do that with numb nd/or tingling feet?

Has anyone found a doctor that has recognized or even helped with this?

I've also noticed that several of you have some form of IBD or IBS.  I recently had to have my colon removed and now have a J-Pouch, because of my Ulcerative Colitis.  I think this is all autoimmune related and wish someone could connect the dots for us!

Post Edited (toughenough) : 4/18/2011 9:39:49 AM (GMT-6)

Posted 4/19/2011 3:01 AM (GMT 0)
I really haven't noticed knots in my legs at all, just lots of tender spots. Actually, my legs seem to be shrinking and I DON'T like it! Looking in the mirror the other day, I realized I look almost like a refugee - no calves, no hamstrings - ugh.

That was beside the point, sorry. (Minor meltdown) :) Bad night in fibroland...

Debbie
Posted 4/20/2011 12:00 AM (GMT 0)
Yep, yep, yep.

Very sensitive to textures. Socks and tights can really bother me.

I take a bath every night. I also rub my feet and ankles afterwards with lotion. If I don't, I wake up with them vibrating and twitching.
Posted 4/20/2011 12:09 AM (GMT 0)
So I have to ask...is fibromyalgia also a neuropathy?  These symptoms sound very similar to small fiber neuropathy.   Do the two relate to one?
Posted 4/20/2011 3:57 AM (GMT 0)
Yes, I wonder about that, too. Who the heck knows what it is?!

Debbie
Posted 4/20/2011 10:14 AM (GMT 0)
It makes sense to me.  I had already been diagnosed with small fiber sensory polyneuropathy..I've had all the tests for it.  EMG's, with needles and without, been seeing a neuro for 3 yrs.  The symptoms everyone are mentioning are the same as for small fiber neuropathy.

Maybe one day the doctors will make the connection.  I find they are much slower at figuring these things out than we are! yeah

Posted 4/21/2011 10:43 PM (GMT 0)
Oh Wow. I thought I was having this issue because of something else. My legs have given me problems for years! I was only dianosed with Fibro last year, and only when I insisted on seeing a rhuemetologist, and my GP told me that she didn't remember me telling her I hurt! Why did she send me to a neurologist? And February last year I took a bad fall down the stairs in my house and tore the legaments and tendons in my right foot. I told her then that I was having problems but I guess she didn't put two and two together. But I digress. I have the dull throbbing all of the time awake asleep sitting down standing up laying down, crawling under my house to run cable wire to the other side of my living room..... There were nights when I would get home and just bawl because I couldn't stand the pain. Like someone poured gas on my legs and lit a match. I am on 1800 mg of neurontin, 300 mg tramadol and 20 mg of flexeril. Most days a am ok not my best but ok. I have the hyper sensitivity in my legs a lot, and patches on my back and sometimes my shoulders. I have pain in my legs almost continually on bad nights I can't stand to have my six pound chihuahua walk on my legs. I refused to get an emg, I have had them before and just the thought of doing an emg from my lower back to my toes sent me into panic attacks. So add me to your list. :)
Posted 4/22/2011 5:51 AM (GMT 0)
HI

I think a lot of us diagnosed with fibro and having these sx as burning, tingling, vibrating, buzzing, stabbing, shootin, tearing....

might have small fiber neuropathy.

Dont let your neuro dismiss this or say ya you probably do. there is a very simple and extremly rliable test for this.

ITs Skin biopsy. They are suppose to do three different spots on one leg.

I had it done but for some odd reason my doc only did one spot. (my one spot was normal...meaning no nerve loss or sweat gland loss) so i was not diagnosed with it but even the lab called me and asked why in the world doc did one spot.  Cause they need to see other two sopts going up the leg and thigh.

The point is. this is a new test for verifying small fiberr neuropathy and its quite accurate. You can check the website for the lab that runs this test. www.therapath.com

they have tons of info.

Its very very very simple procedure. they only take upto skin. its not like a muscle biposy. its a punch biopsy. you can even view it on youtube.

I know a lot of people who finally got confirmation thru this test. I have been going to docs for 13 years and I was stunned why my neuro never mentioned this. I had to beg him. I know my one spot wasw negative but still.

If it turns up positive then you can look for causes. But atleast gives you something tangible.

I dont have insurance right now so I am not asking my doc to do the other two spots.

well thats my two cents!!.

i know we are all having these odd symptoms...with our nerves and muscles.

tulips

Posted 4/22/2011 5:54 AM (GMT 0)
http://www.therapath.com/Mast_Cell_Density.php
Posted 4/22/2011 11:25 AM (GMT 0)
Thanks Tulips, you confirmed my thoughts.  I do not need further testing to prove my small fiber neuropathy.  My neuro one of the best in his field and he has not been wrong with one single diagnosis so far, so there is no doubt in my mind.  He says for many neuropathies it is very difficult to pinpoint a definite reason, in my case, there is no doubt in his mind what caused it...vitamin and mineral deficiencies from my gluten intolerance. 

People get so sick of we gluten intolerants trying to help them understand how bad gluten actually is for everyone.  They have now found that 1 in 20 people actually have issues with gluten...now that's a lot.  Had I known about gluten when my kids were young, they would be so much healthier now. rolleyes Had the powers that be left grains alone and stopped trying to hybrid them, we would be in much better shape.  As is usual, bigger is not always better.

When I see my neuro in June, I will now have a new list of questions for him! smilewinkgrin

Posted 4/22/2011 2:07 PM (GMT 0)
Hi deb

There are many times these neuropathys get confirmed but remain idiopathic. That's the case with me. No known reasons like diabetes..
My recent glucose tolerance test bowed impaired so perhaps a clue!
I think gluten is a big problem. Terry was a big study that proved many schizofreania patients were positive for gluten and after going on diet improve drastically.

So it's like if tw test comes back positive ten u are still looking for cause but I guess gives peace if mind for some that it is something.

I did the stool test with entrolab and it showed intolerance not full celiac disease.
So I have to get on diet. It also showed protien loss.

Tulips
Posted 4/22/2011 2:20 PM (GMT 0)
Believe me Tulips..gluten intolerance is every bit as bad as celiac disease, if not worse.  Most celiac's I know do not have any where near the issues I have with gluten.  Most celiacs are able to eat the gluten free processed foods, which actually are not truly gluten free.  Those porcessed foods are "gluten free" to the standard set by whomever, which means they can have up to 20ppm of gluten and be considered gluten free.  Even 5ppm of gluten makes me ill, and very ill, for weeks.

My dad and sister both are diagnosed celiac's and do not have even 1/4 of my problems.  I often tell others I wish I was simply celiac, it would be much easier.  Besides, the diagnosis for gluten intolerance is the same as for celiac...going gluten free.  There isn't much study yet into gluten intolerance and that is because the pharmaceutical companies don't back the research simply because there is no drug to assist with this issue.  You can bet if there were meds that "fixed" the issue, there would be lots of studies going on.

MAny people with neuropic symptoms will find they disappear once gluten free..I wasn't that lucky, but I do know many whom were.

Posted 3/31/2012 7:11 PM (GMT 0)
I had horrible pulsating buzzing in my left lag for two days. We had been sitting in a car for two days then a plane for four hours. It felt like a cell phone on vibrator mode. I had had success with sciatica using my device called a radial, two years ago, so I was hoping it might help with this. I charged it up, using ice water like recommended, and fell asleep with it on. Midnight or so, I woke and unhooked it. This morning the buzz was waaaaay down, and now noon, it's gone. Will continue treatment tonight. It worked wound fully for severe sciatica two years ago, in which I could not sleep for more than a few minutes at a time for a month or more. It took virtually all the pain from the right side on day one, then all from the left side day two. I bought mine fifteen years ago for cold feet, used it a couple times then put it on a window sill as my feet were from then on always warm. Fifteen years later the sciatica hit and I wondered if it might help, so I searched Internet and found other people had success and so I tried it, it was a miracle for me. I even took it to my doctor who had told me that very day it would only get worse from here. He looked at me like I was a nut case. Oh well. Forums like ths might get the word out. It works, and years ago it cost one hundred dollars. Now I think they are one eighty or so. Baar products is where I got mine from. Bruce and Cathy Baar run their home business and are a wealth of knowledge. I've never met them. Except on the phone, but they are helpful to the utmost degree.
Posted 4/1/2012 3:46 PM (GMT 0)
That is been the first and constant issue..Constant burning in my left buttock. It sometimes gets worse and goes into my leg and foot as well. But a completely new thing is my hands. They have fallen asleep before but it is getting more severe while sleeping and my right hand sometimes feels like its dead!! Seriously, and then when I start to move it around I get the most horrific pain..Even sitting here typing to ya'll now my arms and hands are going to sleep. I'm going to my pcp tomorrow because I'm also retaining lots of fluid..this may have a big part in why my hands feel so wierd..have I ever said, I HATE THIS ILLNESS!!!!!!!!

My husband have taken our grandsons fishing, which was one of my very favorite things to do... I can't do it anymore. I tried a couple of weeks ago, went out for a short while and I couldn't move the next day..Literally couldn't move...

sorry, my turn for the pity party and thank the Lord no one hear to view it but Sonny, my beloved friend and dog!!! He often looks at me like I've completely lost it!!!

fibronana
Posted 4/1/2012 3:47 PM (GMT 0)
oops, just realized this was an old post...but so appropriate for me...
Posted 4/2/2012 1:32 AM (GMT 0)
I have buzzing all over my body. No one understands. I am so frustrated, this all started one day about 3 months ago. I have a positive ANA, but all other 25 blood tests are normal. I think it is Fibro, my family DR wants to start me on MTX, Rhuemy DR wants to brush me off due to normal test levels. I ache, buzz, head aches. What do you do for the pain. I just joined this site.

Thank you!

Posted 4/5/2012 8:04 AM (GMT 0)
I too feel like my legs are full of pins and needles! I sometimes get woken up (from the little amt. of sleep that I can get) by my leg pain and that allover static type feeling. And I thought it was just me.....
Posted 4/7/2012 11:14 PM (GMT 0)
I've been diagnosed with restless leg syndrome and physiotherapy ("physical" therapy for those of you in the U.S.) helps me a lot. I find that doing specific leg exercises does wonders for alleviating those symptoms and if I get up and do the leg stretches right when the tingling, throbbing pain and "singing" hit me thru the night - then put the bolster (foam wedge) under my knees when I get back into bed, I can get back to sleep with my legs up on that bolster and will be okay till morning.

Hope you find a solution that works for you ...

blessings and peace
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