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On top of it all I now have Lyme.

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Posted 5/5/2011 10:38 PM (GMT 0)
I have been slacking lately with everything.

I haven't even been following all your threads, sorry.

It's just that I have been feeling so much worse lately.

Now I know why.

I have been getting outside and doing more when the weather allows.

Planted, raked and started cleaning around getting ready for the summer like everyone else.

Went to to PCP yesterday to follow up on blood work and found out I now have lyme. lol

So what's a few more pills to take.

The run down is this:

Thyroid Disorder (been bouncing between hypo & hyper), Low Potassium, too much Iron in my blood (haven't gotten that all figured out yet) and now Lyme.

My body hurts ssssoooo much and nothing seems to be helping.

Oh, I forgot, I also have Swimmers Ear for the second time in the last 4 months.

I am still trying to stay active, haha, if you can call it that.

All I want to do is cry and sleep.

I go back to the Dr.s this month, all 3. Endo, Rhmy and PCP.

If anyone has any ideas about how to get some relief from all of this, please let me know.

All the normal stuff I've been doing doesn't seem to help. Stretching, meditation, hot baths, smelly candles, relaxing music,  etc.

The Dr.s still haven't ruled out Fibro or Lupus. lol

Maybe by the end of this month I'll have some answers. lol

 

Posted 5/5/2011 11:31 PM (GMT 0)
Megosun, I'm so sorry to hear that you have lyme disease.

Know that the quality of your life can be greatly affected by stress. It is so important that you keep your stress level down...this is an area where you do have some control. I'm glad that you are trying to stay active, it helps to keep your mind off health issues.

No matter how many diagnoses a person gets, I know it is possible to still have a good life. We are more than our diagnoses and we can still have fun...that is always high on my list :)

Each day focusing on positve things, what I'm still able to do makes me happy. Life is too short to spend time asking why me?
Get together with friends and spend time laughing takes the focus off the crummy stuff. I do know at times it can be overwhelming but I know it doesn't make me feel good to spend time being angry at conditions I can't change so I try to change the things I can to make life better.
Wishing you the best of luck!!!

Hugs, Robin
Posted 5/5/2011 11:40 PM (GMT 0)
I'm so sorry to hear this.  But, you know what?  You can get help for Lyme.  You know that.  We had a member here that used to be on all of the time.  Her fibro was getting worse all of the time and she then was checked for Lyme...again.  It turns out it was Lyme she had had and not fibro!  She got the help she needed was was doing far better last time I emailed her.  She is the one that put together What Else Could It Be for Fibro 101.  You also can have both fibro and Lyme but getting the Lyme taken care of will help you feel better.  So, no matter what, you should feel better once you get the Lyme under control and heading out the door. 

 

You probably will want to check out our Lyme forum on HealingWell.  You can learn a lot there, too. 

 

Sherrine

Posted 5/9/2011 7:25 PM (GMT 0)
What does Lyme diease do to you? 
Posted 5/9/2011 10:08 PM (GMT 0)
Lyme Disease has many of the same symptoms as fibro and that's why you want to be tested to have this ruled out.  This is from the Mayo Clinic about symptoms of Lyme.

 

http://www.mayoclinic.com/health/lyme-disease/DS00116/DSECTION=symptoms

 

Sherrine

Posted 5/9/2011 11:48 PM (GMT 0)
My illness started with Lyme. I was very sick and probably would have been diagnosed with fibro but I tested positive for Lyme. After 4 yrs of treatment, I got a lot of my life back.

I do still have chronic pain and other problems and have been unofficially diagnosed with fibro. I can do most of what I want most of the time but it still limits me. Had I been diagnosed with fibro first and not been treated for the Lyme, I would have probably been disabled for the last 20 years.

Read and learn as much as you can about Lyme. The treatment can be controversial and I believe too many docs stop treatment too soon. You may be surprised by how many of your current health problems are caused by Lyme.
Posted 5/10/2011 1:31 AM (GMT 0)
Thank you Dagger for your input.
I am trying to get as much info as I can but I'm having trouble understanding it all.
Does that go along with Lyme? Foggy brain?
I go to my Rhmy Thursday so I will have alot of questions.
Do you have any suggestions what I should ask.
Posted 5/10/2011 1:44 AM (GMT 0)
MeGo, What are the doctors saying about the iron overload? That alone will make you feel crappy, did any of them mention hemochromatosis (SP?)? I had ferririn / iron overload but it was porphyria (PCT). The way they lowered my iron was phlebotomies and they check it (my iron) quite often. Good luck
Posted 5/10/2011 2:37 AM (GMT 0)
The brain fog was a lot worse before I took antibiotics. I had to give up being an engineer, I couldn't read blueprints anymore and numbers didn't make sense. I'd forget to pick up my daughter from daycare and sometimes, I even forgot I had a daughter. I couldn't read a book and I couldn't remember enough to follow a movie plot. It was like my IQ was cut in half. It was really scary.

I still have brain fog, it got a lot better but never completely went away. I never could go back to engineering, I still have trouble reading blueprints some days and my math skills change with the wind. I work in a school teaching special ed now. The kids think it's funny when I screw up my sentences, can't remember words, and make mistakes.

It took 4 years of antibiotics to get to this point. For the first few years, I'd take antibiotics, get better, stop the pills, and get worse within weeks. Eventually, I stopped getting worse when off the pills so I stopped taking them - I've been the same for about 17 years now.
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